CSN Login
Members Online: 15

You are here

Bowel obstruction think we are at the end of the road

Slow-runner
Posts: 44
Joined: Oct 2017

So my husband was diagnosed about 19 months ago stage iv Mets to liver lung peritoneal lining. Handled fulfox,fulfuri, tace procedure x2, an unsuccessful couple of months in a clinical trial, an oral chemo capcitamine(?) then lonsurf with avastin and most recentlynback to avastin, oxcal(?) and irennican.  My spelling on these meds is terrible but... Any way Buck now is in the hospital with a bowel obstruction. Doesn’t seem to be just one section. There is hope that it is waking up but if not they are suggesting a peg tube and TPN if he wants to continue treatment. This would mean no true eating by mouth as it would just vent out the peg tube.  Asked if this is reversible and the answe was something like, not usually.  I’m fearing that we have come close to the end of the road here yet I continually think of JanJan and they many challenges she has conquere.  Our regular onco doc is away right now. We are being seen by others in the group. We are at Penn and have always felt confident in the care provided. Guess I’m just looking for hope. Two weeks ago Buck was putting in a new kitchen now I feel he may never enjoy it.  Anyone? Mary 

Trubrit's picture
Trubrit
Posts: 4569
Joined: Jan 2013

I am so sorry to hear that your your hubby is so unwell.  You know there is always hope, but you also know that there will be an end, you just don't know which one is which right now. 

So, I say go with the hope.  Let the good Doctor's do what they need to, to give  relief to what Buck is going through now, and then take the next step. 

And yes, Jan has been through so much, others as well. Hold on to that, and move forward. You are both in my thoughts and prayers. 

Tru

Slow-runner
Posts: 44
Joined: Oct 2017

Thanks Tru, you're right, we just have to get through this hurdle and then figure things out. The change just happened so fast.  In God's hands. Mary

JanJan63's picture
JanJan63
Posts: 2284
Joined: Sep 2014

Hi, I'm glad that I inspire some hope for you, that's really important to me. So do I have this right? They keep trying different things to varrying degrees of success or no success at all? And now he has a blockage or several blockages? Do they know why he would have them? 

I feel like I have a partial blockage right now but I can't think of anything that would have caused it. And there's a stomach virus going around so it could just be that. When you have cancer it's easy to attribute every little thing to the cancer but we also just get sick so I think that's what's going on for me right now. Lots of gas, which can be very painful. My ostomy bag keeps filling up like a balloon.

I'm wondering what they'll do for him if he has a complete blockage or several. I thought they immediately did surgery for that. Maybe they think it will rectify itself? Mine always do but they're partial, not full. Some take longer than others. I can give some advice as to how to eat to avoid them if that will help him. Right now I haven't had one in months. I have a stricture on one area that causes issues.

I hope he feels better soon. Blockages are miserable. I usually have to go to the hospital for fluids when I get them. As for the different chemos, I don't know what that means. They need to find something that works but are tsruggling to find one?

Jan

Slow-runner
Posts: 44
Joined: Oct 2017

Hi Jan, I think of your trials and triumphs often and relay your story to Buck when he needs to hear it.  I am a nurse yet feel so incompetent when it comes to dealing with Buck's doctors.  I never have the right questions to ask, feel I never probe deep enough.  Thank you so muich for reading and responding to my post. I think we have 1-2 more days to see if his bowel starts working, if not they are recommending a PEG tube in his stomach, not even talking colostomy. I'm hoping his oncologist is back Tuesday, will feel better hearing our options from him. Thanks again for listening.  Mary

JanJan63's picture
JanJan63
Posts: 2284
Joined: Sep 2014

I don't know what a peg tube is but I'm sure it's no more pleasant than any other thing they do to us. I thought that if a person had an obstruction they did surgery and that was that. Do they know why he got it? It would be nice to know why so he can prevent it in the future. 

What have the suggested he eat in the meantime or nothing? When I have the partial blockages I have to drink lots. It helps move things along. I've had them last anywhere from a couple of days to over a week and been sick from it for two weeks. As long as he's drinking he should be okay, we can go without eating for much longer. Is he passing anything at all? If he is then he must have a partial rather than a full blockage. So that's promising. I hope I'm not saying anything you already know with you being a nurse.

Ugh, I hope this passes, literally and figuratively, and he gets back on track. Blockages are miserable.

Good luck!

Jan

RickMurtagh's picture
RickMurtagh
Posts: 584
Joined: Feb 2010

I just had one that lasted four days...with a slight fever on the last day and for two days after that.  I just wait to see if the fever spikes over 100 then always plan to go to the hospital.  They know what they are doing and I am confident that if something needs being done or corrected they will do it if called upon, but in ten years I have only had 8-10 blockages that lasted more than a day.  Surgery is always a risk, but maybe that is what Buck needs.  Get second and third opinions.  Talk to the docs that do special procedures at the hospital you go to.  Mine came up with all kinds of ideas to help with all kinds of problems I was having.  Mary, I found out I had cancer after putting in a pretty sweet pantry off our kitchen and was worried about having a backache the next day, took some aspirin, and the rest is history.

Kitchen done?  if so, Buck can enjoy it now - job well done!  If not, make a plan to get it done (maybe with some help?).  Plans for the future may help get Buck through some tough spots, give him something to look forward to.  Future plans helped me get through the here and now of chemo, neuropathy, failed reversal, etc.  Maybe they might give Buck some hope for whatever is next...

 

Best wishes,

Rick

Subscribe to Comments for "Bowel obstruction think we are at the end of the road"