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Lobectomy

ksk1226
Posts: 11
Joined: Apr 2019

Today is 1 week 1 day since my lobectomy of my rt. lower lung.  The pain is incredible, but is lessening every day.   

My story began with a coronary scan screening for high cholestrial, those numbers were fine, however a spot on my lung was determined, that sent me for another type of Ct.  That did determine a mass on my lung, so after a broncopsopy and then a week later and EBUS, the conclusion was most definatetly a mass with cancer was resting on my rt. lower lobe.  Doctors recommented the Lobectomy since PETSCAN showed no other areas lighting up.  So, here I am 1 week and 1 day after and still suffering with the pain and the discomfort. It is improving each day so far.  The results showed Lymph Noids negative, but mass was 4 centimeters so treatment is going to follow.  

Has anyone have any thoughts and suggestions about treatment.  So far the word radiation is being thrown out there.  I meet with the Oncologist in 4 days and I guess I will know more at that time.  Any suggestions as far as questions etc. to discuss with the doctor.

Has Anyone gone thru radiation treatment for this Stage 2 Lung Cancer?  Has anyone had any other type of treatments for this type of cancer?

Thank you 

Karen

ksk1226
Posts: 11
Joined: Apr 2019

Ok just found out I will getting 4 to 6 treatments of Chemo..Any Advice

tmassar
Posts: 4
Joined: Apr 2019

I prefer chemo to radiation. I had 6 treatments and it was not as bad as I had thought in my mind. After each infusion I had a few good days with a couple of not so good days to follow but they weren't that bad just not good. I went to work every day except the day I had my infusion and work helped me a great deal, gave me something to do to occupy my mind instead of the thoughts of cancer and treatments. God luck, stay busy, and keep your good attitude and you will be fine.

Terry - Atlanta

ksk1226
Posts: 11
Joined: Apr 2019

Thank you Terry, I feel better knowing that you DID go to work everyday and did ok there.  I guess thats my fear, don't want to get to work and feel sick.  I start treatment this thurs and going to see how the weekend goes, if ok I am scheduled to go back to work on Monday.  I am hoping for the best.  Why did you not go in on the days of your treatment. I was told that I should feel pretty good that day.  Its the couple of days after that I won't feel to good. 

Karen

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jorola
Posts: 225
Joined: Mar 2016

So aweome they found it early!

So chemo is not as scary as the movies make it out to be. However the medications that are prescried to go along with your treatment to help with th side effects are a must. I am going to assume you are from the US? Do you have a good medical plan?

Some tips:

- First and foremost drink tonnes and i mean tonnes of water. Very importrant you stay hydrated

- Eat well, especially now as you may lose your appetite but I kinda doubt it with only that many treatments. I think my husband had 38 treatments and the beam eded up burning his esphoagus so eating became a real problem.

- Dress in layers, people often tend to get cold during the treatment

- Take something to do, you may be there a while

- make sure you have a ride the first time until you know how you react to it. My husband got "drunk' on chemo and would not have been safe to drive afterwards so I always had to drive him.

- It may make you drowsy - nap if you need to, don't push it

Check out this link to CSN's info on chemo. It should help too. Remember they caught it early and the goal is a cure. Fcus on that ok?

https://www.cancer.org/treatment/treatments-and-side-effects/treatment-types/chemotherapy.html

 

 

 

ksk1226
Posts: 11
Joined: Apr 2019

Thank you Jorola for all your advise.  And yes I am from the US we do have pretty ok Insurane.  Have a 5,000 deduct, met that and have a 10,000 out of pocket getting close to meeting that.  Tomorrow I get the port put in, did your husband have that?  I do feel lucky that it was caught early, and purely by accident.  Went in to have a coronary CT done for my cholestrial, an they found a spot on my lung that then sent me for a CT of that area.

Alittle nervous about Chemo which starts next week, from what I'm hearing it doesn't sound like its going to be too bad...I HOPE

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jorola
Posts: 225
Joined: Mar 2016

It is ok to be nervous. Who wouldn't be? I was nervous for my husband. LOL I was more nervous than him! It worked out in the end. He knew he was going to beat it. He settled that in his heart, mind and soul from the begining. I truly believe that mind set made a diffierence. So believe hun. BELIEVE with all you got that you are going to whoop this things butt ok?

As for the port, he did have one in his arm. Was no big deal at all. Some get one up high on the chest. A little more to getting that one but not much. Trust me the port makes your life much easier although showering is annoying. Just use LOTS of seran/cling wrap.

ksk1226
Posts: 11
Joined: Apr 2019

Thank you Jorola, next Thurs. I start Chemo. Do you know anything as far as the side effects.  I will be taking the Carboplatin and the Pemetrexed (Alimta).

I am planning on going back to work the following Monday, do you think I will be ok.  I am a receptionist, so mostly sitting but having to have to get up and down alot of the time.

What is it like to feel this fatigue that they talk about?

jorola's picture
jorola
Posts: 225
Joined: Mar 2016

 

Sorry I did not see your message until now. Everyone, of course, reacts differently. I can tell you that my husband Mick is his name btw, who never napped before, was ok the first couple of rounds. After that he showed signs of fatigue to the point of pure exhaustion. As in he fell asleep anytime, any where and for long periods. It was not just physical fatigue but mental as well. And it built. The more chemo sessions he had the more he felt the side effects.

 

Now you also have to take in account the types of chemo - he was on etoposide and cisplatin - the dosages, which I have no clue of. The doctor did say he was going to give it as strong as Mick could take as this was a last shot to save him. Probably the best people to ask are the RN's who administer your chemo or of course your Dr. Your RN's though see the people daily who are receiving the chemo. They may be better able to give you an idea.

 

Just please, if you have the insurance, sick time or whatever, use it if you need to. If you have limited amount then yes now is the time to return to work if you can. Explore your options there.

 

ksk1226
Posts: 11
Joined: Apr 2019

Thank you for your support.  I will find out more about the treatment on the day of, I'm sure.  I start Thurs. and if all is ok over the weekend I am planning on going back to work on Monday.  I have Short term disability but I love the people I work with and they have been extremely supportive during these past month.  I will try work but if I am feeling too sick or to stressed I will take more time off.  I hope your husband is doing better now.  

blessme's picture
blessme
Posts: 7
Joined: Apr 2019

Karen  I go in on 18th for MRI and Cat scan. I also had a nodular found in my lower left lung. Biospy was done and they say I have non-small cell cancer. I am healthy and don't take any medications,so all of this has me scared. Doctors have mentioned radiation and chemo. I have no idea what to expect or do I have no support or anyone to talk to.What ever you find out keep posting. This is my next journey and your information will help me. Thank you 

ksk1226
Posts: 11
Joined: Apr 2019

Hi Blessme,

I know exactly how you are feeling, because when they told me all this, I was also super scared and in shock.  My Dad passed away 16 years ago from lung cancer, then just recently I lost my Aunt, my Mom and my sister to lung cancer.  The worst was my sister, when she got diagnosed she was already stage 4 but she had no hope for life and became extremely negative and did not last very long.  

I feel lucky that mine was caught early only because I went in for a CT for my cholestrial and they saw the spot.  3 weeks ago I had a lobectomy where they removed part of my lung and some lymph noids that were tested and were negative for any cancer cells.  They will be starting chemo next week but they say it is only precautionary because they  got all the cancer and want to prevent it from coming back eleswhere.

Are they planning on surgery for you to remove the mass?  Have you had a pet scan yet?  If the mass is just in the one place and they suggest surgery although the recoup is painful for a couple of weeks, but if they can get it out then they can treat with some chemo, this is what I am having and hopefully this is the right thing to do.  Good Luck and keep me posted.

blessme's picture
blessme
Posts: 7
Joined: Apr 2019

I am having surgery on the 10th to remove lower left lobe.I have no cancer any where else. I am glad it was found early stage 1. I have never been in hospital I am just really scared and  don,t know what to expect. Hope you or feeling good and Chemo hasn't been hard for you. Thank you for being here for me 

 

 

 

ksk1226
Posts: 11
Joined: Apr 2019

Hoping you made out well with your surgery. The pain sucks for a while but that does let up.  Glad to hear no other cells found.  Had 1 treatment of chemo.  Was good untill today, feelling the nausea and fatigue, buut if it only lasts a day or 2 I can handle this.  Good luck and feel better real soon.

blessme's picture
blessme
Posts: 7
Joined: Apr 2019

I am home feeling really good,I do have metal stitches that or causing some discomfort. I had no chemo or radiation go see my surgeon on the 21st. Got you in my prayers you get to feeling better and take care. Thank you for being here for me.

 

ksk1226
Posts: 11
Joined: Apr 2019

Thank you glad to hear your doing well.  Had 1 round of chemo and getting ready for my second round this week.. First couple days not bad then 3 days later boom, it hits only lasted about 3 to 4 days then back to normal.  Only have 2 more after this week.  I can handle it.  Thank you for being there for me and stay feeling good.

jorola's picture
jorola
Posts: 225
Joined: Mar 2016

You are taking this fight like a champ.

tmassar
Posts: 4
Joined: Apr 2019

ksk1226 - If I were you knowing what I know now I would ask them about all possible side affects so you can be somewhat prepared if that happens. I thought I was in the clear after radiation but side effects showed up 5 months after radiation. I have also had chemo to prevent and kill other cells that may show up soewhere else. I feel like the chemo was more predictable to deal with. I had my left upper lobe removed 1/15/16 with radiation to follow when I recovered form surgery. If they decide to do radiation ask them if there is any way to do target radiation so it doesn't affect other areas so much. All of these are doable and you will get past it, don't read books or go on the web to read about your cancer, just stay as busy as you can as you move foreward and it will definitely help staying busy. You can definitely beat this and live a good life after you get past this. I wish you the best and you are in my prayers.

Terry - Atlanta

ksk1226
Posts: 11
Joined: Apr 2019

Thank you Terry.  No radiation due to that they said they got all the cancer and there is nothing to radiate, so just chemo for preventative measures.  

Thanks again,

Karen

tmassar
Posts: 4
Joined: Apr 2019

Karen

NO RADIATION great news. Cancer free has a good sound doesn't it. I now you must be relieved and ready to get the treatment part of this behind you. Seems like once you've had this you are continually going to the doctor for check ups and testing. I was about to go to testing once a year when cancer showed up again so it was start this all over again - pain in the butt but a necessity.

Hope you are done with cancer and never experience this again. I'm happy for you.

Terry

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jorola
Posts: 225
Joined: Mar 2016

Sorry I am late to the party. I am ever so happy for you Karen! 

Jodie

ksk1226
Posts: 11
Joined: Apr 2019

Thank you Jodie,

Sorry I haven't responded lately.  Am back to work and tired when I get home.  Had my second round of chemo 2 down 2 to go.  This time around was good for the following 3 days then tues. not good. Home today relaxing.  Glad I get the 21 days reprive before next treaments.  Lets me get somewhat back to normal befor feeling crapy again.  Hopefully this is gonna be the all of it.  

Hope you all are doing well!!

blessme's picture
blessme
Posts: 7
Joined: Apr 2019

Got you in my prayers stay strong you got this. I am doing good pain has almost gone. Depression has been trying to mess with me other then that I am good. You take care and RELAX and tkae care of you. I agree with you and pray that you or done with all this very soon. 

 

joey2019
Posts: 2
Joined: Jun 2019

Hi Ladies, I am 3 weeks out from my surgery. You are right Karen, the recovery on this is painful. I was in the hospital for 8 days because I had what they called a leak in my lung. I thought I would never get home. Then when I did I wasn't sure I should be home yet. Did you have shortness of breath? Man I did, I still do, but it's getting better now. Not off the pain killers yet, but taking them further apart when I can. Still have to sleep propped up Did you? This pain lasting so long has really thrown me for a loop. Depression and anxiety taking a toll on me. Planning on seeing a counselor soon to handle it better. I am 65, in good health and smoked for 50 years. I am doing my very best to quit. I will get it done. I start Chantix tomorrow. I tried it before and had no side effects at all. I also have a vape to help. I have cut down on my own, but I need help to beat this. 50 years is a long time to have a habit.

My cancer was stage1 and caught quite by accident with a routine physical. Doctor sent me for low dose scan because of my history of smoking. I had no symptoms. I am very very blessed it was found at all. Nothing in my lymph nodes. I go on the 24th to another doctor to see if any more follow up is needed. My surgeon doesn't think so, but who knows, maybe as a precaution.

My Doctors tell me I am doing well Pain is just focused in one spot now, under my right breast. I have started walking what my body will allow. It's not a lot yet, but it's a start. I don't feel like I'm doing so well, mostly mentally and emotionally. Never been through anything this tough!!! Been through some surgeries, but none like this. I would never do it again, no matter what the circumstances. I'm sure soon I will turn a corner!! Doc says maybe my pain has lasted this long is because of my size. I'm 5'1 and 103 pounds. I don't know, but it made me feel better. He put me on gabapentin today with my pain meds. He thinks that will really help.

Thanks for listening Ladies!!!! So glad I found this site.

Robin

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