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first trip to the emergency room

flowerrod
Posts: 57
Joined: Jun 2018

unfortunately, we had a pleasure of the first trip to the ER... after 13 cycles, my husband only got Avastin and 5-FU, or in other words we are now on "maintenance chemo". we stopped Oxaliplatin after 12 rounds. Doc said it will be easy now to handle chemo because the side effects will be minimum... just as we got our hopes high, the early morning of the 13th cycle before unplugging the pump, my husband was in scale-10 pain and was throwing up. couldn't even hold a sip of water... he had not thrown up once before!! so, we rushed to the ER. I'm pleased with Jefferson hospital, they took us in right away, gave morfin for pain and 2 1000ml bags of fluids to keep up with hydration. did blood work and ct scan on a spot. thank god, nothing else was found. Doc said it might be just a stomach bug or side effect to chemo. they have a chemo nurse on and she was able to unplug the pump when time came... Hubby is still resting a few days later at home, but feeling much better. Afraid of going back to chemo... let's pray and hope for the best... oh, and of course, waiting for that ER visit bill to come... i'm sure it will be big and juicy lol. however, you never know and don't want to take any chances... 

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abita
Posts: 481
Joined: Dec 2017

That is so horrible  glad he ended up okay. I get the fear. I ended up being taken to er by rapid response team during a chemo because of a reaction. And now, every time I go in, I have this fear that I may not go home. I told my oncologist, and he said, no, we watch you  now, so won't get that far. But still

flowerrod
Posts: 57
Joined: Jun 2018

what side effects did you experience? i'm terrified. i was mentally preparing myself that this day one day will come. so i handled good, with only a few tears. my husband, on the other hand, was in so much pain, that hurt the most... 

 

i did fail the drug list, i couldn't remember 5-Fu drugs, so good thing he had pump on, so they opened the bag and wrote it down. i'm now making a list of drugs, oncologist's number as a "business card " so that i could just give it if the 2nd time happens...

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abita
Posts: 481
Joined: Dec 2017

On my 6th infusion, I had became allergic to the oxaliplatin. They factors that made it so bad was that I had eaten soba noodles for lunch, and because I have allergies to many things, and was working from the infusion chair, I didn't really notice until it was too far gone. I threw up the noodles, starting taking my clothes off because I was so hot, and don't remember much past that other than being shaken and asked am I allergic to any drugs mulitple times in the er. Now I know that my blood pressure had dropped so low that the machine upstairs could not get a reading and that is why they called the rapid response team. BUT, the next infusion, when we wanted to see if allergic reaction. I immediately said, throat is itchy, and the nurse turned the drug off, and I was fine in less than 20 minutes. Oh, and I never bring a meal anymore, just pretzels or crackers and maybe a piece of fruit. Funny thing is, and long story, but I am now back on folfox because we know it works, and I had recurrence. I am still allergic but get so pumped full of medicines to control the allergy, that it is all fine.

 

Oh, wait, you asked about side effects, not my reaction

flowerrod
Posts: 57
Joined: Jun 2018

interesting story thanks for sharing! we used to bring snacks only to infusion, but one time a guy next to us opened the italian Hoagie and my husband was Staring at it as deer at the lights lol... since then we always bring a sandwich.

abita's picture
abita
Posts: 481
Joined: Dec 2017

the steroids make you starving!

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abita
Posts: 481
Joined: Dec 2017

My doctor is very careful with me now, and I hope that yours will be too. For instance, now that they know I can react to drugs, there is always a nurse close to me. Plus, I know how to clamp off the IV. Most oncologists and nurses care so much about the welfare of their patients.

Annabelle41415's picture
Annabelle41415
Posts: 5908
Joined: Feb 2009

Glad hubby is feeling a little better.  Treatment can get the best of you at anytime.  Maybe he could skip one week of treatment just so he gets his strength back a little more.  It won't be a big deal if he does as many people have to because of low blood counts.  Hope he continues to get better.

Kim

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