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Hi, old friends!

Darron's picture
Darron
Posts: 303
Joined: Jun 2013

i just read iof Fox’s passing. Those of you who recognize my name have been here a while. Those that are new(er) to the site, will not recognize my name at all, not know my story. My apologies for not being the solid support like Iceman has been for such a long time. 

I do want to simply share my progress. I am an BMS 1106 ( I think that is it) phase I trial patient from 2013. We all know it as Opdivo, or Nivolumab now. I started taking it in combination with sutent in February 2013.

i still cintinue on infusions every 3 weeks of Opdivo. I still take 37.5 mg if Sutent, 4 weeks in, two weeks off. Most importantly, I have not seen any evidence of cancer in my quarterly scans since August 26, 2014.

I Have Been in treatment over 6 years and well over 4 years cancer free.

Believe in yourselves, believe in your treatments!

 

Allochka's picture
Allochka
Posts: 863
Joined: Nov 2014

Hello Darron,

I'm one of those who knows you and your story, and I'm thrilled to read your good news! So happy to hear positive stories from fighters like you! 

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Thank you for Posting Darrin. Your story is encouraging for many like me who don't know you.

ChristineCD's picture
ChristineCD
Posts: 11
Joined: Aug 2018

For someone who is relatively new to all this and a lurker, it helps to hear success stories from those who have lived with this for many years. Thank you for sharing! 

stub1969's picture
stub1969
Posts: 792
Joined: Jul 2016

When I was first diagnosed back in August 2016 I spent days reading through the posts on this site.  I read your posts many times and I'm familiar with your journey.  It's always good to see you and hear how things are going.  I'm happy to hear your good news that the meds continue to be effective for you.  

Thanks for checking in!

Stub

marosa's picture
marosa
Posts: 332
Joined: Feb 2015

Good to hear from you and with such good news!

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

I remember you too, and I am very happy that your treatments have been successful.  This Board could use good news like yours.  Thank you for sharing.

Manufred's picture
Manufred
Posts: 239
Joined: May 2017

Thanks to early trial participants like you, I was able to reap the benefits of NIvo (Opdivo) through a later Phase III trial (Checkmate 214).  I did that for 3 years and we decided no more was needed.  Full story on my profile page.

Wonderful  to hear you are still NED after so long.

Thanks again and best wishes, Fred 

Darron's picture
Darron
Posts: 303
Joined: Jun 2013

I read your profile. I am envious that you have stopped taking Nivo. The Nivo doesn’t bother me, but the Sutent still makes for some nagging side effects. I am still terrified that if I stop taking the combo, Ill see a progression. It is a risk I still don’t want to take. Part of the fear is from the fact that I am not sure I can get a Nivo Sutent combo off the trial. Insurance could always say they are not paying for both Drugs. 

Glad to see good results!

Jan4you's picture
Jan4you
Posts: 1317
Joined: Oct 2013

Welcome Home, Darron~

Hope you know it is good to hear from folks from time to time. 

It is wonderful that you stopped by!

Glad your treatment has been working for you. You seem to have

a great attitude~keep on keeping on

Healing hugs, Jan

 

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

Thanks for sharing your update. It's rather encouraging to see that there is hope for long-term management of this beast. 

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

Keep going 

beautiful smile

 

APny's picture
APny
Posts: 1934
Joined: Mar 2014

I remember you too. Great news on your current status. Keep it up!

Dominick0711's picture
Dominick0711
Posts: 89
Joined: Jan 2019

This is inspiring Darron and as I am having some major anxiety heading into my first series of scan post surgery a story like this gives me incredible hope! Thank you for sharing and wishing you a continued cancer free future!

Deanie0916
Posts: 241
Joined: Nov 2016

I joined several years after you. I'm thankful to hear your good testimony. Hope you have NED for a long time to come.

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