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DLBCL with High Grade Features - Sub-type Triple Expressor

dewdrs
Posts: 9
Joined: Jan 2019

Hi All,

 

New here.  My wife was recently diagnosed with Diffuse Large B Cell Lymphoma with High Grade Features Sub-type Triple Expressor.   Just compled second round chemo DA-EPOCH-R at MD Anderson in Houston.  Hematologist/Oncologist is recommending consolidative therapy with Auto Logus Stem Cell Transplant.  Scheduled to be back for round 3 and consult with Stem Cell Transplant team next week.  

Does anyone have any experience with this particular sub-type and the consolidative treatment approach?

dewdrs

illead's picture
illead
Posts: 842
Joined: Aug 2012

My husband is the one with lymphoma, but not the same type, however others will chime in who have more experience.  We can say though without reservation that MDA is one of the best places you can be for expert experience and advice.  That is where we went after needing further treatment and we are very confident in the expertise of the oncologists there.  I am sure you can tell by the awesomeness of the facilities and the lymphoma center that they know what they are doing.  I will leave it at that and let others help with your wife's type of lymphoma.  My best to you and her, I know that at the moment this is very hard but also very hopeful.

Thinking of you both,

Becky

dewdrs
Posts: 9
Joined: Jan 2019

Becky,

Thank you for your note.  We are lucky to live close by and are equally as impressed with the degree of specialization and scope of the facility.  Our Hematologist/Oncologist said to us early on, "Don't ask me about any other type of cancer, Lymphoma and Myeloma is all I know."  As you know cancer is all they do.  

dewdrs

Evarista
Posts: 250
Joined: May 2017

Hi Dewdrs.  My diagnosis was nearly identical to your wife's:  DLBCL with high grade features; double expressor.  I think the word "plasmablastic" was in there somewhere too.  I did 6 rounds of DA-R-EPOCH Feb - May, 2017. Intrathecal Methotrexate in conjunction with the first 4 rounds.   ASCT did not come up as an early treatment option, but that may have been because of my age (68) and dire medical condition by the time I was diagnosed. I am currently still in remission 18 months out from completing treatment.

As you have by now discovered, your job at this point is to help her get through the treatment and manage the side effects. My husband was a star when it came to taking care of me and that was so incredibly essential.  For now, do everything that you can to help her be active: walking the halls in the hospital or just to the bathroom and back.  The fatigue tends to be cumulative, so if she can keep up her strength now, it will serve her well further down the road. 

You are in good hands at MD Anderson and lucky to have ready access.  Please feel free to "PM" me with any questions, no matter how trivial.  (You do the Private Messaging by clicking on a user's name after logging in).

Be well and don't forget to take care of yourself too.

dewdrs
Posts: 9
Joined: Jan 2019

Evarista,

Thank you for your kind offer and the tip on activity level.  We did about 1.5 mile walk today since the weather is nice and that was enough for her today.  We walk the skywalk to the Mays building at MD Anderson (.25 mile) and back and visit the Park often when there.  I think she is doing well so far.  She handled the second round much better than the first round so hopefully she wil continue to do well.  18 months out is quite a milestone!  We wish you continued remission and health.

dewdrs

 

 

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