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The Times they are a changing

HUMBUG777
Posts: 9
Joined: Jan 2019

On the site for several years and tried to be helpful when I could, but was kicked off for expressing my true feelings of what we all have to face every day. I mean who wants to think Cancer 24-7. Got back on a couple of months ago until I was shot down again by the site when I was being helpful to the new members. After having to fight to post to other people facing what we all face every day and getting shot down again I do not think it is worth it to me to be posting at all. I feel as though I am being told what we can post and what we can't. So if I offended anyone in my post since since 2010 I am sorry. They will block me again, but I will not be trying to get back on again.

I wish all a bright and successful New Year with many, many more to come.

ShadyGuy's picture
ShadyGuy
Posts: 355
Joined: Jan 2017

is what you were accused of. I fail to see how a personal attack can be made on a forum where everyone is anonymous. On the other hand I can say no one should be attacked personally or anonymously. Disagree yes, attack no. There may be more to your story than I know - ie PMs to people. I seem to remember you were booted shortly after you criticized Obamacare. The purpose of this site is to help people with lymphoma and I think it accomplishes that for some people. As my health is declining rather rapidly I hope to continue using it. I find it somewhat helpful as I face an uncertain future. Best of luck to you and your beautiful grandaughter.

Evarista
Posts: 250
Joined: May 2017

When you came back, Humbug, I was able to trace back to the original issue that likely resulted in your being kicked off.  But I've been reading this forum daily ever since and I cannot fathom to what you are currently referring.  I have seen nothing from you that I would consider offensive or even overly opinionated.  Like Shady, I have to wonder if it was something in a PM?

Best of luck to you.  

Shady: please get better!!!

HUMBUG777
Posts: 9
Joined: Jan 2019

As far as I can remember I never PM'ed anyone except talking about kids, grandkids, cars and other personal subjects. I did talk openly about the health care system at times directly on the site because I was, like everyone else tied up in it. Without the proper insurance we could have all lost out big time. I am glad so many made out better with what is out there. I was facing extensive cuts as were several others on here and was only giving a heads up. Again sorry for any offensive remarks and hope all works out for all.

HUMBUG777
Posts: 9
Joined: Jan 2019

Come back only lasted about 2 or 3 days before I was booted again for whatever reason.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3116
Joined: May 2012

[This comment has been edited by the CSN Support Team due to a violation of the Terms and Conditions.]   

What happened after your recent three-days back ?  I have no idea. Perhaps your old censor became your new censor ?   You will not be forgotten here, ever. You were not during your most recent banishment either.

max

HUMBUG777
Posts: 9
Joined: Jan 2019

Don't know what happened. I was going to post to a newbie on the site and it said I had to sign in. When I tried to sign in it said, ''SORRY, You have been blocked from CSN.'' The old censor was back as my new censor did cross my mind. As fast as I was removed it sounds very logical, but again I do not know. See how long it takes this time. I had follicular in June 2010 and went into remission in Oct.2010. Everything has been good since that time. Hope that is a good sign, but never know about this stuff. I hear the longer the remission the better chance of it not coming back, but like I said it was just something I heard. I hope it never comes back, but as wide spread as cancer is we never know what tomorrow will bring. I know you have been through a lot through the years.

ShadyGuy's picture
ShadyGuy
Posts: 355
Joined: Jan 2017

Wow, 1966 Cobra - not one but two! I drive an F150 and a Cadillac ATS. Wanna trade?  I had the pleasure of driving a 427 Cobra several years ago. That kind of power can be downright scary but there is a thrill in being scared that is priceless. I am thinking I would go with either a 289 or351 and must have power steering and power brakes. I once had full use of a Sunbeam Tiger 289 and even that was a handful. They quit selling them because, among other readons, a disproportionate number of owners were dyiing in accidents.

i sure hope you can stay on here. I was searching and reading some of your posts from 2010. They were great posts. Very helpful and very insightful. What I gained from my reading of your old posts was that someone thought your Cobra666 was a Satanic name. Your explanation was excellent. You owned a 66 Cobra and 66cobra and cobra66 names were already taken so you just added as 6 to make cobra666. Not offensive at all. Best of luck!

HUMBUG777
Posts: 9
Joined: Jan 2019

I have often wondered if the 666 rubbed some people the wrong way. It was innocent, but never know how people think. I did not even realize at the time how it sounded when added to Cobra till after I saw my post way back then. BTW: When I first started posting back in 2010 I had the cobras in the picture. They are both Cobra blue with the buried white stripe.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3116
Joined: May 2012

Shady/Hum,

A great friend from work, who died 5 years ago of prostate cancer, got me interested in attending car shows with him, which led to a general interest in collectors.  My friend owned a 1955 Olds Super-88 convertible then, all original, which took Best-in-Show many times. As you both probably know, new, reproduction Cobras today are quite common.  While they may offend a purist, they are close to undetectable to non-specialists.  And a performance shop in Charlotte, in the 70s at least, had numerous UNASSEMBLED, new, "original" ACs. I have no idea what became of them or where they are today.

My brother owned a different Cobra, a 1968 Shelby GT 500 Mustang, 428, dual qual, etc. Said he could floor it at 60 mph on the highway and break the rear tires loose....

max

HUMBUG777
Posts: 9
Joined: Jan 2019

The 1968 GT500 was the KR also known as the "Super Snake" model and highly sought after today. Originally priced at $7500, but reduced because of lack of sales. It was totally designed by Carroll Shelby from the ground up with the funding entirely from Ford. Nothing on the track or street could get near it. Caused the down fall of the Corvette at the track. When the guy delivered my second Cobra kit from Shell Valley he had one of the GT500KR's on delivery truck going to South Carolina. He wouldn't tell me what the customer paid, but said it made him nervous hauling it. The wrong person finds out and there might be trouble. People are crazy !!!!

illead's picture
illead
Posts: 842
Joined: Aug 2012

I was saddened once again when you were taken off the 2nd time.  Max and I PMed about it, we were very upset.  I can't imagine that CSN would trespass our privacy by reading our PMs, do you think that is possible? I dare not say what I think about that if it is true, I may be booted too.  I wrote to CSN after your first boot, but alas to no avail.  As Max said, we never forgot you.

Shady, I too hope you get better...so sorry.

Hang in there both of you,

Becky

ShadyGuy's picture
ShadyGuy
Posts: 355
Joined: Jan 2017

I have a Dr appointment Thursday. My RBC is very low and I have anemia. A blood transfusion will be a last resort for me. Also I am continually getting colds, sore throat and sinus infections. Have a great 2019.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3116
Joined: May 2012

Shady,

About three years after I achieved C.R. I went for a six-month blood panel, which came back severely anemic (my hematologist/oncologist [he is both] has me on annual follow-up visits for life in their Survivorship Clinic ). No results had shown me low on RBC hemo prior to then, it just fell from the sky.   He had me go for a colonoscopy and celiac tests, both negative.

He put me on I.V. iron, two bags a week for two weeks.  It gave me a chance to catch up with the infusion nurses I had known.

Next test, RBC was perfect, and has remained so since.  He told me later that he has no idea whatsoever as to what caused it, but that his first fear at the time was relapse.  I hope your results bounce back to normal also,

max

HUMBUG777
Posts: 9
Joined: Jan 2019

Don't know about anything anymore. Don't want to speculate about anything. Nothing is impossible I have learned through the years when you think it could never be all of a sudden you see you were wrong. It makes me think, but do not want to say anything that could make me get booted sooner than later.

I see your post all the time along with everybody else's and at times wish I could jump in and make a response, but was unable to. I see Bill has a few ups and downs over time. So many newbies have come on since and you can tell they are in the same place as all of us when we first posted. Don't know if you remember Vinny or not, but he stopped posting not long before I was kicked off. I often wonder about him as well. He had head and neck cancer but was doing good the last I heard. Still can not get in touch with Sue

I read over this 3 times and did not see anything political LOL

Shady: Hope everything works out.

illead's picture
illead
Posts: 842
Joined: Aug 2012

Shady, When Bill was first diagnosed all of his blood counts were very low, rbc 1.6 platelets 33 etc.  Instead of tranfusions they gave him EPO shots and he also took liquid chlorophyl (don't know if that helped or not) but he turned around and his counts went up.  He now suffers from a chronic sinus infection which we think is caused by rituxan which he was getting 1/mo, so we requested to stretch it out to every 2 mos.  He also went to an ENT who said he would probably never get rid of it.  Your counts being so low certainly isn't helping.  The ENT has his own formula, of all things it is a prescription dermatologic salve that Bill mixes in water and salt and uses in a nasal flusher.  I'll give you the specifics if you want. One might think a sinus inf is not a big deal but Bill really suffers, so I know how you feel, of course the Glenlivet probably helped Surprised.

 Humbug, Hopefully CSN will give you another chance, you have served your time (whether you deserved to or not).  I do remember Vinny, and I think it was Jimwins who got in touch with him and he just wanted a break.  Hopefully he is cancer free and just living life. The onc nurses have told us that although head and neck cancer is almost always curable, it is one of the worst cancers to go through.  Wish we could know how Sue is doing, maybe she's just too busy fishing or canning salmon Wink, let's hope so.  Yes, Bill has had a few setbacks but he is doing good now so we are thankful for that.  

Becky

HUMBUG777
Posts: 9
Joined: Jan 2019

I have been following Bill and the others while I was banned. I could do that, but was not able to respond to anyone.. Sorta felt like a donkey with a carrot dangling in front. I could see but never get any where. That's all I could do. Jimwins and I used to joke on the site all the time. Just to break up the constant troubles we were all under. Somebody  new that was a self appointed gate keeper with a total of 6 post made the remark that the site was not an appropriate place for any jokes. I think it ticked Jim off and he posted very little after that and then no post at all. I kept making jokes here and there to a few of the old group, including Sue. I did get a boiler plate warning from Greta that a member reported I was making inappropriate remarks and it was not allowed. I did not post for a few days, but was reading them. When I did try to post is when I saw I had been banned. So I do not know if it was that or the political statements I made that did me in.

po18guy
Posts: 955
Joined: Nov 2011

I help moderate another forum and the entire mod and admin staff are right out there in public, their positions noted for all to see and to contact via posting in threads or via PM. PMs are looked into only if they are reported as offensive by one of the parties - that's why they are called Private Messages. As well, various warnings and suspensions are given first, unless the behavior is so egregious that it warrants immediate banning.

Really, all here have so much more in common than is often thought. Those of us with a particular set of political and other beliefs may not be acceptable to others, but isn't that a reflection of the very society we live in? It is said that difference of opinion makes the world go round. I guess that some with the ban hammer get dizzy and try to make the world stop spinning.

As to cars, old Carroll Shelby (may he rest in peace) was somehow involved with some "NOS" unassembled Cobra frames that were not NOS but actually new production artifically aged. The thought being that a few dozen new/old AC Cobras coiuld be assembled at a nice up-to-date price.

Never drove anything like an AC Cobra, but in 1971 did get to see an early 260 version that a local fellow had. I was selling him a Packard manual transmission for some project he had. He also had a .53 Studebaker low boy with a Cadillac engine in it - an easy swap since the two engines were quite similar in design and weight. I also remember in about '69 or '70 when  a fellow in the Seattle area had a an AC Cobra that he wanted 10K for. We thought he was insane! 

As to the need for speed, the scariest thing I have operated was a Kawasaki ZX14 of a co-worker's. Limited to 189 MPH on top. At the top of 3rd or 4th gear, it was not so much the cars in front of me that were fast approaching - it was the entire earth approaching. I cannot own such a vehicle, as the throttle hand seems to have a mind of its own.

Anyway, unless a member is malevolent or patently offensive, It can be only unreasonabnle forum rules or arbitrary decisions by forum staff that lead to banning. We can only surmise the reasons. 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3116
Joined: May 2012

Po,

International convention limits superbikes to an electronically-governed 186 MPH top speed.  Aftermarket computer chips make this very easily reprogrammed.  Most 1,000 or larger superbikes will easily run well over 200 mph, factory stock, except for the changed chips.  I have a buddy who races down long mountain stretches above Pickens County, SC, in western NC. Most of these guys routinely post on YouTube.  I have seen film of him entering curves at well over 140.  He can easily ride his bike on one wheel at up to around 110 MPH.

I have owned street bikes, but never ride in insane manners like they do.

max

illead's picture
illead
Posts: 842
Joined: Aug 2012

I remember those days and the joking.  I also chimed in at times, remember the green crayon?  I felt like everything was in good taste and think we were careful not to overdue it.  That's one way of coping, we can't just dwell on negativity.  Well, I'm sorry for any hurt feelings about our joking I may have caused, I just hope you are back, you are an asset on the forum.

Becky

HUMBUG777
Posts: 9
Joined: Jan 2019

I remember the green crayon and so many others too. They were some good moments for sure. I can remember certain post getting up to 35-40 replies and on and on. There were so many that joined in. Sometimes the jokes would come out from no where and it would begin. Yep, we all needed something else to get our minds off the waiting for Dr. reports and test results. Even had Vinny joining in at times and that was unusual. He was usually pretty straight forward, but that's ok too. Anyway I am a little skiddish about making any kind of joke or anything that may be on the lighter side anymore. People are funny in the way they see things and don't want to offend anyone.  I felt comfortable with the old group of years ago. I am not to familiar with the new group and the members change everyday. I am sure most could use a good laugh, especially with their minds stuck on cancer day in and day out. We can all identify with that scenerio. As a matter of fact I saw 2 post the other day before I got back on the site that I could have made some innocent light humor of, but even though the post are a few days old I just feel I better not say anything. Do you realize you, Max, Po and maybe a handful of others are alls left from that old group. I guess they moved on and I wish them all the best. The newbies are a reminder to us all that Lymphoma does not take a break or a holiday. Just let the newbies know they are welcomed and hope they can get some answers. There is plenty of knowledge here.

BTW: You know I still have my port from May 2010. Got an appt. for a flush on Friday.

ShadyGuy's picture
ShadyGuy
Posts: 355
Joined: Jan 2017

But never had much money to put into them till later in life. I was very poor as a child. My first car was metallic blue 1953 Mercury. I bought it for $125 drug it out of the weed patch, cleaned out the yellow jackets and mouse nests and got it running. After a while I traded it for an engineless 1940 Ford coupe into which I put a 400 CID Buick engine with a LaSalle manual transmission. She was fast and I learned a lot about how difficult paying speeding tickets could be. Then I got a job overseas and was out of the country 12 years. I came back got a wife had kids and drove Oldsmobiles. Yucch! The kids were great the cars left a lot to be desired.

I figure I don’t have many months/years left and I am ok with that. I want to have a very fast, reasonably safe car to leave my son. Gotta get him out of that stupid Toyota Highlander grocery hauler! I want him to experience life while he has it.

i refuse to let lymphoma take what life I have left and turn it into a sobbing party. I am not afraid to die but they will have to txke me kicking and screaming. And death better not make me spill my Glenlivet or there will be he## to pay!

lindary's picture
lindary
Posts: 634
Joined: Mar 2015

I don't know how I would have gotten through my treatments and all the other stuff without a sense of humor. I joked with my co-workers about wearing a cap because I wanted to enjoy not having to wash my hair or a wig. I had one co-worker who was diganosed with multiple myoloma and fought it for 11 years. He often made jokes aout the side effects of some of the drug cocktails. (Like one that turned his skin purple.) I do know there were 1 or 2 in our dept that thought some of the comments made to me were in poor taste. Fortuhately I was able to tell One of them that I was offended and that I actuall started the joke. 

Humbug777 you sound like someone I would enjoy talking to.

illead's picture
illead
Posts: 842
Joined: Aug 2012

Sad to say Humbug (John) got blocked again today.  Just wanted to let you all know.  He was a caring and nice guy, he will be missed.

Becky

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3116
Joined: May 2012

Times are changing ? No so much, at CNS, it sadly appears.  Hum was obviously well-received by all readers here, or so it appeared. The O'jays had a song on the subject....

Stalin had a man running the NKVD, precursor to the KGB, named Lavrenity Beria, one of the truly evil men of history.  He prided himself on the ability to criminally convict any man who opposed the state, regardless of how innocent, and quipped on the subject:   Show me the man, and I will document the crime !  The nobel prize winner Alaksandar Solzhenitsyn documented that Stalin executed 28 million civilians, outside of war; mostly innocent peasant farmers, which led to mass starvation in the 20s.   Billy Joel was right, only  the good die young.

Hum has achieved non-personhood again. I doubt he'll be back this time.  "Nothing to see here folks; move along ! "   I have known two or three banished here. They were the most intelligent, well-informed, and cogent members I ever read.  The most intellectual depth, medical knowledge, spirit, and (ironically) tolerance of all our writers (one was an M.D.).    I wonder what Thoreau would have thought of Hum's removal.  I also wonder if the Moderators know who Thoreau was ?

po18guy
Posts: 955
Joined: Nov 2011

There are many cancer forums. In each and every other forum I visit, the violations are obvious, the moderation measured, progressive, and neither arbitrary nor capricious. The quickest way to render a forum meaningless or obsolete is for the unseen to pick and choose who stays and who is banned.

Rocquie's picture
Rocquie
Posts: 826
Joined: Mar 2013

In my curiosity about this situation with John/Cobra/Humbug, I decided to refer to the CSN Terms and Conditions. One thing I noticed right away was that we are supposed to read the terms and conditions every time we access the site. I doubt anyone does that, I know I don't, but I did just re-read them.

According to the Terms and Conditions, "Users whose accounts have been suspended (blocked) will not create new accounts without first obtaining written permission from the CSN Support Team".  So by John creating new accounts, he is automatically in violation of the Terms and Conditions.

I hope John will see this and take the necessary steps to join our group again. It is obvious there are a number of us that would love him to be part of the group again.

Rocquie

 

 

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