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Good news to share

Diane_K's picture
Diane_K
Posts: 49
Joined: Jan 2019

I had scans this week, MRI and CT, and my results are good.  I am now two years and two months out from my last surgery with NED.  I'm a stage 4 colon cancer survivor with metastsis to two lymph nodes, liver and both lungs.  I'm just now starting to feel hopeful.  I wish the best for all of you and would like you to also know that there is hope.

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

That's wonderful news! Good for you! And thanks for sharing! We all need to be reminded sometimes that there is hope.

Jan

Butt's picture
Butt
Posts: 299
Joined: May 2018

How did they bring you to NED? Just chemo? Was there anything extra done on lungs—my area of interest? Butt.

Diane_K's picture
Diane_K
Posts: 49
Joined: Jan 2019

They were able to surgically remove my tumors and got clean margins.  I went on chemo twice.  The first time for six months with oxyplatin and xeloda and then after my lung surgeries I went on chemo for six more months, irinotecan and 5-FU.  I changed my diet, started taking supplements, began exercising daily and reduced stress.  So, I believe the surgery, chemo and lifestyle changes all helped my body to fight the cancer.

Kazenmax's picture
Kazenmax
Posts: 349
Joined: Feb 2016

great news! NED forever!

Trubrit's picture
Trubrit
Posts: 4824
Joined: Jan 2013

  Happy Dancing Man time. 

May you continue to have wonderful NED reports forever. 

Tru

beaumontdave's picture
beaumontdave
Posts: 992
Joined: Aug 2013

Great news Dianne, funny how after surgery gets it out you want to hurry up and be 2-3 years past to hit what they call the milestones, while still practicing the "live each day" concept. Enjoy the moment......................................................Dave

beaumontdave's picture
beaumontdave
Posts: 992
Joined: Aug 2013

Great news Dianne, funny how after surgery gets it out you want to hurry up and be 2-3 years past to hit what they call the milestones, while still practicing the "live each day" concept. Enjoy the moment......................................................Dave

Diane_K's picture
Diane_K
Posts: 49
Joined: Jan 2019

Dave,

That's funny but true.  I meditate and try to stay in the moment but it's difficult to do during stressful times.  Although, that's when we need it the most.

myAZmountain
Posts: 256
Joined: Apr 2018

I just love hearing NED results...gives hope!! I am reading the book by Dr. BLock and really embracing it! 

Diane_K's picture
Diane_K
Posts: 49
Joined: Jan 2019

AZmountain,

I'm glad you're finding Dr. Block's book helpful.  His approach is very sensible and easy to follow.  I started to feel physically and mentally stronger soon after starting his plan.

SpaceCadet
Posts: 2
Joined: Mar 2019

Thank you sharing this wonderful news!

Annabelle41415's picture
Annabelle41415
Posts: 6179
Joined: Feb 2009

What wonderful news.  Thank you so much for sharing with us.  Being stage 4 and everything you have gone through you deserve a big CONGRATULATIONS. 

kIM

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Awesome news Diane! Congratulations and may you stay NED forever! 

Sestra17's picture
Sestra17
Posts: 42
Joined: Jan 2018

great news, congratulations!

Beldoro55
Posts: 12
Joined: Mar 2019

Diane, so happy to read the good news about your scans! May you continue to have a long and blessed life!

Diane_K's picture
Diane_K
Posts: 49
Joined: Jan 2019

Thank you everyone for your well wishes.  It's great to have such caring people to share my good news with.

 

8colon8's picture
8colon8
Posts: 41
Joined: Jan 2019

Diane,

That's really great news with NED.  Did you do the one day inhouse consult with Dr Block or did you pick out what's relevant to your situation from his book in formulating your plan?  

Diane_K's picture
Diane_K
Posts: 49
Joined: Jan 2019

I sent him my medical records and then had three phone consultations with them.  The first call was with his nurse practitioner, the second was with Dr. Block and the third was with his dietician.  Each phone call was about an hour and I had all of my questions ready before the calls.

It's nice that his book is laid out in a way that makes it easy to formulate a plan, but I wanted him to look at my case and give me personal suggestions.  I'm sure having a one day inhouse consultation would also be very beneficial.

Best wishes.

8colon8's picture
8colon8
Posts: 41
Joined: Jan 2019

Thank you.  We were not sure which was the best way forward. Was not sure if the phone consult works. 

Diane_K's picture
Diane_K
Posts: 49
Joined: Jan 2019

I think the in-house consultation will be the most comprehensive.

KarenMG's picture
KarenMG
Posts: 109
Joined: Jun 2017

Congratulations to you and I hope you continue to live life to the fullest.

I know you will.

My best to you,

Karen

Alfalfa1's picture
Alfalfa1
Posts: 1
Joined: Mar 2019

It's wonderful to hear that, and I wish you all the best.  I was just diagnosed with Colon cancer and don't know yet what stage I am, but reading your post makes me hopeful and happy for you.  Thanks for sharing.

Diane_K's picture
Diane_K
Posts: 49
Joined: Jan 2019

Alfalfa,

Thank you.  I'm sorry for your recent diagnosis but hoping you get good news from your doctor.  You'll have to let us know when you find out.

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