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5 Years NED & Discharged!

Miashelle1's picture
Posts: 44
Joined: Aug 2013

Hi All. 

Not quite sure how I feel about the discharged bit @ 5 years.

But, apparently I have been very lucky. 

I am fit, healthy and oficially a survivor of PT3a Kidney Cancer.

I feel humble and very blessed.

I was looked after with love, respect and care by everyone of my medical team. 

I hope this gives you hope in your respected journeys.

Much love from the UK.

Michelle xxx



icemantoo's picture
Posts: 3354
Joined: Jan 2010




Although the odds are in your favor look into US going forward.




Posts: 67
Joined: Jul 2013

My son was discharged after 6 years. t1a chromophobe.


Manufred's picture
Posts: 241
Joined: May 2017

Congratulations and may there be more of that for everyone else.

Enjoy life.


ChristineCD's picture
Posts: 11
Joined: Aug 2018

This most definitely gives me hope!!!! Congrats!!!

eug91's picture
Posts: 330
Joined: Jan 2019

Congrats, Michelle! 

Canadian Sandy's picture
Canadian Sandy
Posts: 721
Joined: Jul 2016

Wonderful news to hear. Congrats!

Allochka's picture
Posts: 969
Joined: Nov 2014



these are wonderful news indeed! That shows how confident docs are about your health. I'd like to second Iceman though - maybe you could do an abdominal US and chest x-ray from time to time for your own reassurance? Like once in couple of years?


Wish you NED forever! 


Ree_Maryland's picture
Posts: 161
Joined: May 2014

IT will be 5 yrs in April since my nepl DR says i need to get check every 2 yrs after . not everyone is the same. for 4 yrs than im good to go .CONGRATS TO THE FIVE YRS NERD Mash

APny's picture
Posts: 1998
Joined: Mar 2014

Congrats, that's wonderful news. But I do agree that evey now and then an US and x-ray would not be a bad idea.

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 206
Joined: Oct 2017

Especially since I'm the same stage-what was your grade? Good luck and good health going forward and always!!!  June

Tapman63's picture
Posts: 137
Joined: Dec 2017

That is awesome news!


Miashelle1's picture
Posts: 44
Joined: Aug 2013

Thanks for good wishes.

I plan Xrays etc...

I also think I would be aware of how I felt at the time in the lead up to diagnosis.

June .... I was grade 1 to 2 classed as intermediate risk on my path report. 


Michelle x


Limelife50's picture
Posts: 476
Joined: Nov 2011

Are you atleast going to have an anual ultra sound just too keep an eye on things

Posts: 111
Joined: Nov 2017


Mighty Frog's picture
Mighty Frog
Posts: 152
Joined: Jul 2017

Congratulation and NED forever! 

Posts: 80
Joined: Aug 2016

I just received five years ned and I was also told that I'm done no more Ct scans . Just to go to my yearly checkup . I'm in Ohio. It's a relief that I'm considered cured and don't need any treatment but also seems odd no more scans. I think I will request us and X-rays every three years . Iceman do you still get scans ?

JerzyGrrl's picture
Posts: 761
Joined: Jun 2016

I didn't realize we get to graduate at some point. That's great news!

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