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Lulu7582
Lulu7582 Member Posts: 112 Member
edited February 2019 in Uterine/Endometrial Cancer #1

Ok so the PET scan report was released to my patient portal and the little beasts are responding to the everolimus. Still have some active disease in the lungs but the other lesions in my bones, lymph nodes have less FDG SUV uptake thingy!! There was no discussion of activity in my ribs and some other bone areas so I take that as a good sign the cancer is responding to the oral chemo. Will talk to doc on Friday and get her opinion on the results.... but thankgoodness the results don't say 'significantly worse progression' like the previous one!! So I am thankful (thank you Jesus) for the small changes even if they are small. xoxo

Comments

  • TeddyandBears_Mom
    TeddyandBears_Mom CSN Member Posts: 1,814 Member
    #2
    That sounds like great news

    That sounds like great news Lulu! Please come back and let us know what you doctor says.

    Love and Hugs,

    Cindi

     

  • MAbound
    MAbound CSN Member Posts: 1,176 Member
    edited February 2019 #3
    Thank goodness!

    Slow but steady progress is still progress. Happy for this positive news and praying the progress continues!

  • oldbeauty
    oldbeauty CSN Member Posts: 385 Member
    #4
    Two steps forward, one step back is still progress!!!

    You are well ahead of where you were when you began this therapy.  Take your victory lap!  Best wishes, Oldbeauty

  • LisaPizza
    LisaPizza CSN Member Posts: 358 Member
    #5
    So happy to hear it Lulu!

    So happy to hear it Lulu!

  • NoTimeForCancer
    NoTimeForCancer CSN Member Posts: 3,587 Member
    #6
    you'll take a lot of little

    you'll take a lot of little steps any day!  Great news!

  • evolo58
    evolo58 Member Posts: 293 Member
    #7
    Every little victory is precious

    Every one. Congrats!

  • Tamlen
    Tamlen Member Posts: 343 Member
    #8
    We like good news...

    of any size!

  • Blondeandblue
    Blondeandblue Member Posts: 4 Member
    #9
    Yeah!

    So happy to hear about your good report.  How many treatments of everolimus have you had? And what was the time frame of the scans?  Going to talk to my doctor about this pill tomorrow.  Thank you for sharing!

  • Lulu7582
    Lulu7582 Member Posts: 112 Member
    #10
    Blondeandblue said:

    Yeah!

    So happy to hear about your good report.  How many treatments of everolimus have you had? And what was the time frame of the scans?  Going to talk to my doctor about this pill tomorrow.  Thank you for sharing!

    Everolimus

    Hi Blondeandblue

    I started the everolimus in Dec for 28 days but had to come off for 10 days due to transitioning to COBRA insurance and then started it again Jan 19 for another 28 days. My PET was Dec 12 then it was repeated in Feb ...2 months later. Hope that helps. 

    L

  • Northwoodsgirl
    Northwoodsgirl CSN Member Posts: 571
    #11
    Lulu

    Sounds like you are holding your own. I haven’t read much about this compound but sounds like it is helping you. Thanks for sharing your good news! Every little improvement is a step in the right direction. Keep us posted on your progress towards NED . 

    Lori

  • Lulu7582
    Lulu7582 Member Posts: 112 Member
    #12
    Thank you Northwoodsgirl

    Yes every small sucess we need to celebrate. I really like my present gyn/onc she listens to me and I feel has my best interests at heart. After getting all my genomic testing results back she wants to present my case to the 'Microsatellite tumor board' and ask for their recommendations. She said there are some very smart people on the board and she would like their input so we wait to see what they suggest. I am open to a clinical trial and she had already talked about one that uses immunotherapy and chemo (oh well there goes my hair again!!). So we wait to see what the next treatment plan will be. And yes I would love to hear those words....NED!!! Praying this may happen!! 

    L

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