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What would you do?

Trillium2
Posts: 7
Joined: Feb 2019

Thank you I realise this is not the place to post this.

Northwoodsgirl
Posts: 483
Joined: Oct 2009

You have done a great job summarizing your experiences and hypothesis. 

The journal article is early science-not yet something to base a healthcare or lifestyle influencing your decision about a hysterectomy for precancerous or possible endometrial cancer of the uterus.  The relationship between one thing to another not sure if there is actually a direct relationship or causal relationship versus coincidence. 

”Spot checking” your uterus isn’t realistic. I couldn’t say one way or another whether you should get a hysterectomy. 

Conjecture could lead to an outcome you don’t want. 

Others will comment and provide opinions. 

I know you will do what you believe is best for you. 

Lori

SF73
Posts: 222
Joined: Oct 2017

I agree, what a great documentation of your complex history. You can click on my name to read my story. It is not similar. Please know that our reaction/recommendation is biased by what we have experienced in our journey. I regret keeping my ovaries where the recurrence happened. I don’t think it makes sense to take such risks. If I were you I would have the hysterectomy and still continue eating well and experimenting with canabis. Why take a risk?

Forherself's picture
Forherself
Posts: 46
Joined: Jan 2019

There are many cases where diet is not related to cancer.   My sister has MS.   She followed the diet and had minimal flare. ups so assumed the diet was the reason.   Yet we knew two other people who followed the diet and had no reduction in flare ups.    You are taking a risk with your life not following your doctors recommendation, in my opinion.  

barnyardgal
Posts: 153
Joined: Oct 2017

I think that's great you can control a lot of things with your diet. But that being said, since you are post menopausal, you won't be having more children,and you don't need the uterus anymore. I personally would have a hysterectomy. Why worry about whether cancer will occur there.

zsazsa1
Posts: 188
Joined: Oct 2018

Since we're all here because we have uterine cancer, we all wish we'd had the hysterectomy done earlier.  Many of us, me included, related symptoms and were told by our doctor not to worry, and then wound up being diagnosed later than we should have been.  The biggest risk factor for endometrioid endometrial cancer (as opposed to serous or clear cell) is weight, because fat secretes estrogen, which is related to the development of the cancer.  I think that you should listen to your doctor, and if they recommend hysterectomy, do it.

Trillium2
Posts: 7
Joined: Feb 2019

Thank you I realise this is not the place to post this.

zsazsa1
Posts: 188
Joined: Oct 2018

I would advise you to follow your doctors' advice.  They went to medical school.  Laparascopic hysterectomies are vaginal hysterectomies - they go in laparascopically to detach the fallopian tubes, ovaries, and uterus from the ligaments, place a bag around all of it, and remove it all, including the cervix, through a vaginal incision.  You have whatever procedure the gynecologic oncologist recommends.  She is the one doing the surgery, she knows what is best to do.

Don't allow your research into alternative and complementary medicine to delay your following your doctors' advice.  The stakes are too high.  My experience with the hysterectomy was that it was very easy to recover from.  Worst case scenario - you have a hysterectomy and there's no cancer, and your future risk of gynecologic cancer is reduced by about 99.9%.   But the real worst case scenario is that you don't have the hysterectomy until it's too late, and the cancer has spread.

You do realize that every woman here is here because we all have uterine cancer.

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Lulu7582
Posts: 80
Joined: Jun 2018

Hi Trillium2

I am sorry that I didn't have my hyster earlier so I could have avoided uterine cancer.  I had no risk factors for it... no family history,  exercised, my diet consisted of clean, organic foods ....ate my fruit and veges, used prayer to reduce stress and I am tall and thin. Sometimes we can do all the right things and still get cancer. I say listen to your doctor's advice. 

zsazsa1
Posts: 188
Joined: Oct 2018

Trillium, some of us are not "survivors".  Some of us are deep in the midst of cancer treatment, some with bad prognoses.  All of us, every single one of us, wishes that we had had our hysterectomies earlier.  That is why every single woman on this site would strongly urge you to follow your doctors' advice, and quickly. 

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