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Long But Good Day at MUSC-It's About To Get REAL

mojogirl67's picture
mojogirl67
Posts: 99
Joined: Oct 2018

Just an update..I had the colonoscopy today at MUSC and the colon surgeon said he would do the surgery laproscopically at the same time as the liver resection. He was able to get the scope past the tumor and examine the colon since the tumor had shrunk. He aslo said the tumor was higher up and not rectal which was a good thing. Based on what he saw, he said he doesn't think I will have an ostomy unless there is some unforseen complication witht the liver resection. I am relieved that I will be having both done in one surgery but still afraid of how hard the recovery might be. I think I feel much better about doing mopup chemo with both surgeries finished instead of spreading it so far out and apart. I did ask about the epidural and told that would be used for pain management. I have been blessed in so many ways since this journey started for me. This board has been such a wonderful place to vent, laugh, and ask any and everything from people on the same train. I just want to give a sincere "thank you" to each and every one of you. I won't ramble on. I much prefer to take advantage of the drugs still in my system from the colonoscopy and get a good night of sleep. Most of last night was spent in the bathroom due to the colon prep, lol. Wishing everbybod a good weekend!!..Hugs, M

Trubrit's picture
Trubrit
Posts: 4574
Joined: Jan 2013

I hope you sleep like a baby ...... wait, silly saying, because babies don't sleep thruogh the night. So, I hope you sleep like a log......wait, do logs sleep? 

OK, I hope you sleep soundly  and wake up refreshed and happy  

It is good news, knowing tumours have shrunk, and surgeries can be combined.  

My advice, for what its worth, don't (try not to) worry about recovery, and prepare your body and mind for the surgery part. Tell yourself that you WILL recover well, and then wait to see how it goes. 

I lost your PM due to the site crash, and would love another one.  And please add your beautiful picture/avatar again, as that has disappeared with the crash. 

Tru

mojogirl67's picture
mojogirl67
Posts: 99
Joined: Oct 2018

Sweet "True"...every faithful and uplifting you are..thank you! I slept well and feel so much better with a plan in place. I'm anxious about all of it but I've lost enough to this nasty disease. I'm in fight mode. I will spend the time before surgery getting in as best shape as possibe for what is to come. I replaced my pic with one that was taken last week while I was in the mountains...happy girl!! I am headed back to the mountains this week to work on the little place I bought. I intend to soak up as much "life" as I can before I go under the knife, lol. Hoping your weekend is off to a beautiful start. Stay warm!! Hugs your way, M

Kazenmax's picture
Kazenmax
Posts: 256
Joined: Feb 2016

here’s Hoping your recovery is smooth. Be patient. Allow yourself time to heal. I will be thinking of you.

k

mojogirl67's picture
mojogirl67
Posts: 99
Joined: Oct 2018

I'm working on the patience part..lol..thank you so much for the encouragement!

beaumontdave's picture
beaumontdave
Posts: 896
Joined: Aug 2013

Always feels better when a plan is in place, and there's less uncertainty. Sleep tight.......................................................Dave

mojogirl67's picture
mojogirl67
Posts: 99
Joined: Oct 2018

You are absolutely right. I do feel better with a "plan". I crashed last night and I'm still in PJ's this morning, lol. Great pic you put up!! I'm still anxious about all of it but it seems to be the best road to take to maybe lead me to the light at the end of the tunnel with all of this. Wishes for a great weekend!!...hugs, M

Annabelle41415's picture
Annabelle41415
Posts: 5887
Joined: Feb 2009

Yup the prep can do that to you so hope you get a great nights sleep.  Glad they can do it all at once and you might not need the ostomy.  Praying for a good outcome on the surgery to come and it's a complete success.  I'm happy that you can find comfort and answers on this board.  We have a wealth of information between all of us.  Always remember that we are just a question and post away if you need comfort, answers, or just to vent.  Our ears and eyes never close to anyone.

Kim

mojogirl67's picture
mojogirl67
Posts: 99
Joined: Oct 2018

Thank you for the encouragement. It is a great comfort to be able to come here at any hour and find someone such as yourself who will listen and support you as needed..Much appreciated as always...hugs, M

PamRav's picture
PamRav
Posts: 237
Joined: Jan 2017

I had close to the same surgery that you are facing.   In spring of 2017, after receiving 3 rounds of intense chemo to shrink the tumor,  i had a liver abalation and a partial liver resection ( lesions were on opposite sides of the liver) And LAR via robotic surgery done on the same day, same operative setting. Liver guy did his part first, colon surgery was last.  Like you, my tumor was high enough that i did not require an ileostomy or colostomy.   I did 5 rounds of chemo in the months following the surgery  

Its a major surgery so recovery takes time and effort.  The first 2 days post op were rough, but once the IVs and catheter were out and it was easier to be mobile things improved greatly.  I was in the hospital for three days and once i was home controlled my pain with Tylenol ( the stronger pain meds, just made my stomach hurt like h.ll.).  

in the meantime before your surgery do everything you can to make your body strong. Good food, exercise, fresh air....whatever works for you.  i found meditatin and visuslization to be helpful for easing my pain and sleeping well.  

I wish you well, you’ll get through this just fine.  

if you have any questions feel free to DM me.  

P

SandiaBuddy's picture
SandiaBuddy
Posts: 668
Joined: Apr 2017

It sounds like things are working out as well as they can.  Best of luck with the surgery.  Enjoy your days of peace in the mountains and keep us updated on the surgery.

mojogirl67's picture
mojogirl67
Posts: 99
Joined: Oct 2018

Thank you! I have been blessed by the grace of God thru this. I realize things could go much differently and I look forward to getting the surgery behind me and hitting the "healing" path asap. Looks like somebody else enjoys the mountains as much as I do...Hugs, M

SandiaBuddy's picture
SandiaBuddy
Posts: 668
Joined: Apr 2017

Actually, all of my profile photos are from Grand Canyon hikes (my little obsession) which is kind of a reverse mountain (one mile altitdue change from the rim to the river).  Hopefully the weather has turned warm there in the East.

mojogirl67's picture
mojogirl67
Posts: 99
Joined: Oct 2018

It is on my list.  Glad you have an obsession that you find joy and contentment with. It sure helps to get lost in something and not dwell on cancer related issues. I will be working on a little place I bought in the upcoming week but I wll make time to sit on the mountain or by the river. Hope you are enjoying your weekend!! Hugs, M

SandiaBuddy's picture
SandiaBuddy
Posts: 668
Joined: Apr 2017

I hiked the Canyon at the end of every off week during chemo.  With the physical exertion and attention to footing (and views), it was the only time I did not think about cancer.  It provided some much needed emotional relief.  I also think the long hikes help to fight cancer.

feckcancer
Posts: 64
Joined: Jun 2018

Fantastic they can do both ops at once laproscopically ,that must mean a easier healing time. Hope you enjoyed your sleep, if you have to have a colonoscopy at least they give you good drugs rightCool.  (silver linings & all that). Enjoy your mountains. plus love your new photo. Happiness radiates from you. sending you healthly healthing vibes from here at the beach. xx

 

 

 

mojogirl67's picture
mojogirl67
Posts: 99
Joined: Oct 2018

I will take all the "healing" vibes I can get, lol. The liver resection will be an open surgery but the colon resection will blaproscopic. Hoping I have no set backs with the liver resection and they can safely finish both. I would love to feel beach sand between my toes but it will be a while before I can make that trip. Enjoy!..Hugs, M

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