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Port is out

lindary's picture
lindary
Posts: 626
Joined: Mar 2015

I know I haven't participated much lately. Work has been taking up a lot of my time. Let's just say with some of the tweaking of the visa "rules" our IT staff has lost a number of consultants so their work has to be spread out to the others. Since the group I am senior for is support, we are all affected. I am hands on so I am also picking up some extra work. 

This is a landmark month for me. Three years since my last chemo. One year since the end of the Rituxan maintenance. I saw my oncologist last week and she said we can change my visits from every 3 months to every 6 months. After a brief discussion I decided it was time to removed the port. That was done yesterday, Friday. It went well. The Surgeon gives a local but I sitll felt the tugging as he removed the stitches and then the port. No problem. We had plans that night to see a play (The Little Shop of Horrors) which shows my bad planning. 

The only issues I had was by evening that area where the port was was aching. Figured with all of the tugging they did to take the stitches and port out I had felt that the muscles were fighting back on the abuse. I took 2 tylenol when I went to bed and sleep great. This morning the aching was gone. There was a little tenderness in the area by noon so 2 more Tylenol. It has felt fine since then. I do have disolvable stitches covered by steri-stripes. The can be removed in 2 weeks. 

I know that everytime I need blood drawn I am going to miss that port but I really felt it was time. 

po18guy
Posts: 910
Joined: Nov 2011

What's that? :-D  Great news. Well, it must be a relief to have it gone, but even more so not to need it. Time to move on, right?

ShadyGuy's picture
ShadyGuy
Posts: 321
Joined: Jan 2017

i had my port removed in August. What a relief!  Congratulations! The bruising will go away in a few weeks.

lindary's picture
lindary
Posts: 626
Joined: Mar 2015

I hate needles but having a nurse put the needle into the port didn't bother me. For me it was a relief to have the port and not have someone digging in my arm to put a needle in. I had to admit to myself that it was time to give it up. It did bruise but "that too shall pass". LOL 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3074
Joined: May 2012

Wonderful to get this report and hear from you.  Sounds like your medical situation is excellent.  May you never need another port !

max

ShadyGuy's picture
ShadyGuy
Posts: 321
Joined: Jan 2017

i think my issue with the port, aside from getting comfortable sleeping, lay mainly in the fact it was a constant reminder of my situation. I had my first post port R a couple of weeks ago. I had had 26 R infusions over the years in my left arm, so I decided to try the right arm. The nurse was not very good at placing the catheter and had to, as you say, dig around a bit. But it all went ok once she finally got it placed. I still prefer that to living every day with a port. Very glad you are doing so well! Keep it up.

Rexmax's picture
Rexmax
Posts: 43
Joined: Apr 2017

I am hoping to have my port removed after my last Rituxan. Got 4 more treatments to go. I get search at airports every time cuz of port. So far everything is going good except for being allergic to Rituxan which has caused the Vasculitis on my legs. CT Scan was good, nothing found, so no Dr. Appointments for 6 months. Take care all.....

lindary's picture
lindary
Posts: 626
Joined: Mar 2015

When I finished the Rituxan my Dr asked if I wanted to have the port removed right away. I decided to keep it for a while. I think going to see my Oncologist every 6 months now had more to do with my decision to have it removed. If I had kept it I would still have to go in about every 8 weeks to have it flushed. More I thought about it the more it made feel like it was time to give it up. 

It's 2.5 days since it was removed and there is a little bit of tenderness in the area but only if I gently push on the area. I'm glad it's healing well.

Thinking about it I haven't been on a plane since 2013. I have been on a train and in a court house a few times. Never set off any alarms. That probably would have freaked me out a little if it were to happen.

 

CritterMamaLori's picture
CritterMamaLori
Posts: 43
Joined: Feb 2018

Glad you are doing so well. I'm still plodding along and waiting on my Stem cell transplant. Not so sure I will be giving mine up that easily with my phobia but I get you and maybe I will change my mind once I get to that point. All the best of the best to you and hope you never have to look back. Again, CONGRATULATIONS!!!! on your freedom!!!Cool

lindary's picture
lindary
Posts: 626
Joined: Mar 2015

When I completed the 2 years of rituxan maint last year I was asked if I wanted to give up the port. At that time there was no way I would. Now it was more the thought of having to schedule an appt every 8 weeks to have it flushed. I just felt it was one thing I could do without so the port went. I am sure this is one of those things that if you asked 12 people when & why they decided to give up their port you would get 12 different answers.  Smile

po18guy
Posts: 910
Joined: Nov 2011

At least the Power Ports. They have a tiny metal 'spout' to which the cannula attaches but the cannula is also polymer. So almost no metal to set anytihng off. About as much as a dental filling, I would guess.

ShadyGuy's picture
ShadyGuy
Posts: 321
Joined: Jan 2017

i saw my “Medi Port” after extraction. It appeared to be soft silicone rubber with a blue tube attached. I did not see any metal but there may have been a small amount. I doubt it could set off an alarm at the airport. There may be other types with more metal. Even a metal wristwatch will usually not set off the airport alarm. I traveled several times with mine and never set off the alarm.

yesyes2
Posts: 571
Joined: Jul 2009

I have a very small, smaller than a pediatric, power port.  Mine is purple and I have had it since Nov. 2009.  I don't fly much because of other reasons but my little port sets the airport alarms off each and every time.  Of course I also set it off because of my double artifical hips.  But they did tell me my port would set it off.  I love my port and can't imagine life without it at this point in time.  Because of my curent health problems, auto immune diseases and my other blood cancer my port is accessed at a minimum of every 2 weeks.  My Rituxin infusions, other infusions, plebotomies, blood draws, CT scans, the list for me seems endless.  Scary if and when it would need to be removed the amount of scare tissue there must be.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3074
Joined: May 2012

Perhaps airport trivia, but I have had a metallic rod (some sort of alloy is my guess, or stainless) in my femur since 1986, from the hip ball to the knee, and secured just above the knee with two transverse, metal screws. In other words, a substantial amount of metal, since it totally fills my whole femur.

In addition, the top of the same femur is wrapped together with surgical wire. Probably nearly a foot of wire; on X-ray the area looks like it is fixed with clothes hanger.

In activity related to my work, I have been through dozens of federal metal detectors: at numerous court houses, FBI offices, district US Attorney General's office, SSA appeals court, IRS facilities, and a large, international airport.   I have never set off a metal detector anywhere

Besides walk-through metal detectors, I have been "wanded" many, many times. Never a beep, ever.  I always tell the screener in advance that it may detect.  They have wanded the leg extra careful, touching the pants all the way up and down, inner thigh and outer.  Never a detect.

I have no explanation for this -- no idea.

 

.

 

twowheels's picture
twowheels
Posts: 14
Joined: Jun 2017

Titanium - non-ferrous alloy? Just a guess

ShadyGuy's picture
ShadyGuy
Posts: 321
Joined: Jan 2017

detect all metals. I have had one for years and found lots of copper, silver, nickel, aluminum and stainless steel items. No titanium that I know of. My best finds are 3 small meteorites (iron I think) and a 1796 mexican (spanish) silver 8-bit (8 Real) coin. I have quart jars full of dimes, and other non ferrous coins Found over a few decades. Alas but no known titanium though I may not even recognize it. Detectors can be tuned to be more sensitive or less sensitive to specific things. Bullets are brass and copper so I think airports would be on the lookout and optimized for brass and copper. Just a few random thoughts.

lindary's picture
lindary
Posts: 626
Joined: Mar 2015

I remember going through periods like that and thanking medical science for the port. 

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