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Joined: Jun 2018

Hello everyone, just came home from the oncologist, and my wife’s CEA and CA-19 have gone up.  The doctor feels the chemo’s are not longer working and is now putting her on Lonsurf.  Just wondering if anyone has any advise as to what to expect.  Any suggestions would be greatly appreciated.



Joan M's picture
Joan M
Posts: 411
Joined: Oct 2016

I don't have any advice about Lonsurf, I am still on Folfiri which seems to be working to shrink the tumors in my lungs and liver.  I am trying to get on an immunotherapy trial due to side effects from the folfiri. 

Has your wife checked into any clinical trials?  Is she eligible for any immunotherapies?  

I hope the Lonsurf helps her.  I think others on here know more about how it works or side effects.   


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