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Update on Newly Diagnosed

Bart1978
Posts: 25
Joined: Aug 2018

Hello,

Back on 8/13 I was diagnosed with a 2 cm mass suspicious of RCC:  Incidental find.  Chest and abdomen CT were both clean other than the proverbial isolated 3mm pulmonary nodule that was labeled to be inflammation worthy of observation but not associated with the kidney cancer.  After consults with multiple surgeons and urologist consults, the prognosis was good and treatment ranged from 6 month observation to cryoblasty to partial nephrectomy.  

Last Tuesday I had robotic partial nephrectomy at University of Chicago.  The surgeon, who was outstanding, said my instincts to get it out were correct as it looked different from what the scans suggested.  It seemed to have traits of being aggressive due to visual inflammation. He took out more than he expected, but thought he got it all.  We would have to wait for the path report to be sure.  If there are any questionable results from path, we go back in and take the kidney.

i was told the results would be available in 7-10 days.  They came back Friday.  He got it all. Clean Margins!  stage pT1aNX 2.1x 2.0 x 1.0 cm RCC conventional clear cell type. It was indeed a tumor that planned on doing damage: Fuhrman grade 3.

I run and exercise regularly.  The surgeon complimented me on my insides saying they were indicative of someone in their 20's.  I'm 58.  Whether this cancer somehow snuck its way into my system despite the clean margins, or any other cancer decides to pick a fight with me, I have sent a message that I will not be an active observant. I will fight whatever comes my way.

I have been home since Wednesday night, and mostly feel good.  I feel blessed.

Other than post op maintenance and the future scans, (which will include the lung), no further treatment at this time.  If anyone knows of any questions I should be asking when I go for my follow up, please share them.

Bless you all.

 

 

icemantoo's picture
icemantoo
Posts: 3208
Joined: Jan 2010

Bart,

 

 

I was much older than you when I was nephed 16 years ago. I had just turned 59. My doctors say I will die of something else. Just follow up with the scans and continue to leead a normal active life,

 

 

icemantoo

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

Great news.  Congratulations

Allochka's picture
Allochka
Posts: 859
Joined: Nov 2014

Good news about small tumor accidentally caught in time. You will do fine, just don't forget to do check ups just in case.

stub1969's picture
stub1969
Posts: 790
Joined: Jul 2016

My tumor was found incidentally while monitoring kidney stone development.  If I hadn't gotten a new doctor that wanted a CT just to see what he was working with, who knows how big my tumor would have gotten before it would have been found.  I, too, count myself lucky.  

Your tumor was smaller than mine and my doctor gave me the fugure around 95% chance that I was cured.  I'm sure your doctor let you know the odds of further RCC issues is very, very slim.  

Stub

JoeyZ's picture
JoeyZ
Posts: 205
Joined: Mar 2018

What a nice post, Bart. Thank you for sharing your story with us. I hope this is the end of it for you. So happy for your great outcome!!

Shelly22
Posts: 2
Joined: Oct 2018

Hi everyone 

I have had a ct scan which has shown 2.5cm mass on left kidney plus 4.6cm cyst on left ovary and 4.5cm fibroid in uterus.

Does anyone have any experience, knowledge or answers to give me as I'm so scared and can't stop crying, thinking about it and googling 24hrs a day.

Thank you

icemantoo's picture
icemantoo
Posts: 3208
Joined: Jan 2010

Shelly,

 

I can only speak to the Kidney.

Assuming they believe it to be Cancer they will take it out and subject to follow up scans you should be 100% cured as far as the Kidney is concerned. You are lucky the Kidney mass was caught early.

Whether they address that before, after or at the same time as the other issues you will have to discus with your doc/surgeons. Sending good karma.

 

icemantoo

 

 

icemantoo

Shelly22
Posts: 2
Joined: Oct 2018

Hi thank you so much for replying, I feel so scared and need to be able to speak to someone about it, im from England and can't seem to find a site like this and feeling so ill  with crying. 

Shelly22

icemantoo's picture
icemantoo
Posts: 3208
Joined: Jan 2010

Start a new post and you will have a better chance for some of our ladies to reply.

 

 

 

icemantoo

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