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Responding to treatment

Amy_Jo's picture
Amy_Jo
Posts: 69
Joined: Apr 2018

I recently had scans to see if my treatment opdivo/yervoy is working. Prior to treatment I had nodules in both lungs lesion in groin liver and two large lesions on T spine and L spine. My scan showed my lungs were all clear and my groin was clear of metastatic disease. Lesions remain in my liver however they are smaller and the lesions on my spine show no change or growth. Thank you all for all your thoughts and prayers. 

Steph85's picture
Steph85
Posts: 157
Joined: Feb 2018

That is amazing news!!! I couldn't be happier for you Amy jo!! I hope you feel up to celebrate! Thank you for keeping us updated. You are an inspiration. Take care, 

 

Steph

MarkDavid18's picture
MarkDavid18
Posts: 57
Joined: May 2018

I am so happy for you!! Praise the Lord. So do you now move to Opdivo every other week?

Amy_Jo's picture
Amy_Jo
Posts: 69
Joined: Apr 2018

Mark from what I understand I will continue on Opdivo every three weeks. I had a treatment on Monday of just the Opdivo. I have been feeling pretty rough. I had scans last week I was given IV and oral contrast. Also injected with nuclear medicine for bone scan. I wonder if my body is just reacting to all the junk it's been injected with. 

MarkDavid18's picture
MarkDavid18
Posts: 57
Joined: May 2018

I hope that is the case. It is rough to get all of those things injected in your body - hopefully you start feeling better soon. I just got my final combo infusion. Scans end of August. 

Amy_Jo's picture
Amy_Jo
Posts: 69
Joined: Apr 2018

I contacted my oncologist because I haven't felt to great since my last treatment. She explained that I'm getting a higher dose of the Opdivo so that could be why I was having increased side effects. She said I can get the higher dose every three weeks. I haven't had much of an appetite however I'm feeling better today. My body took time to adjust to my first combo treatments hopefully this will pass as well. I will keep you in my prayers hoping your scans show good results. 

stub1969's picture
stub1969
Posts: 776
Joined: Jul 2016

I'm hopeful you have a long ride on the opdivo/yervoy treatment.  Enjoy this great news!

Thanks for sharing.

Stub 

Canadian Sandy's picture
Canadian Sandy
Posts: 484
Joined: Jul 2016

Wonderful newS Amy! 

Tapman63's picture
Tapman63
Posts: 135
Joined: Dec 2017

Great news!  Keep on getting better!

Jim

APny's picture
APny
Posts: 1915
Joined: Mar 2014

I am so happy for you! That's fantastic news.

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 204
Joined: Oct 2017

Hope it's the beginning of only good news-June

paintergrl's picture
paintergrl
Posts: 47
Joined: May 2018

I'm so happy for you!!

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

So happy for you! Fingers crossed for continued success!

Cin

HDPete
Posts: 13
Joined: May 2017

Great news Amy!! I’m really happy for you!!

daisybud's picture
daisybud
Posts: 452
Joined: Jan 2016

Wonderful, wonderful news!

Allochka's picture
Allochka
Posts: 853
Joined: Nov 2014

This is so wonderful! Keep going!

Hugs,

Alla

MelBlessed's picture
MelBlessed
Posts: 71
Joined: Aug 2017

So happy for you, stay strong!

LeeAllen's picture
LeeAllen
Posts: 40
Joined: Jun 2018

This rules Amy Jo! So excited for you! 

AnnissaP's picture
AnnissaP
Posts: 617
Joined: Sep 2017

Wow! This is great news! I am so happy for you!

Amy_Jo's picture
Amy_Jo
Posts: 69
Joined: Apr 2018

I just wanted to say thank you for all your thoughts and prayers. I'm hoping this is the beginning of good news and renewed life. So thankful for all the support and guidance you guys have given.  

lobbyist0724's picture
lobbyist0724
Posts: 379
Joined: Sep 2016

So happy for you! Stay healthy and look forward for more good news.

Jeffris1
Posts: 38
Joined: May 2018

You are an inspriation.  My husband is getting his second treatment of opdivo/yervoy on Monday.  We won't have a scan for another month or two.  Hoping it works as good as you.

JoeyZ's picture
JoeyZ
Posts: 193
Joined: Mar 2018

I am so happy to hear this news! I have been so worried about you. This must be a huge relief. Are there other ways they can treat the liver? I hope so. 

 

SO GLAD to hear this!!

Amy_Jo's picture
Amy_Jo
Posts: 69
Joined: Apr 2018

As of now they are only advising the Opdivo/yervoy treatment. I pray that eventually my scans would show NED but for now I'm pleased with my results so far. I'm happy knowing my situation is improving. Hoping my next scans show even more improvement. JoeyZ thank you for thinking of me. All the support and prayers are so appreciated. 

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

I pray for you every day

sending you strength and very best wishes

Annie

Amy_Jo's picture
Amy_Jo
Posts: 69
Joined: Apr 2018

Annie your prayers are so appreciated. I will be thinking of you as well. 

marosa's picture
marosa
Posts: 331
Joined: Feb 2015

Wishing you a continued succes in your treatment!

Manufred's picture
Manufred
Posts: 225
Joined: May 2017

Amy-Jo,

Excellent news that the immunotherapy seems to be helping.  It takes time, and the liver lessions may just need a little longer than the lung nodules to fully respond.

I am delighted that we can be having discussions like this about the efficacy of these new drugs.

Hope you get to full CR in coming months.

Best wishes,

Fred

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