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Lymphoma with bonemarrow biopsy

Lauraisabel
Posts: 43
Joined: Jun 2017

So I had a bonemarrow biopsy done a week ago. Dr seemed nonchalant and did say I should get a second opinion with Moffit..which I’m Ok with..but she did say she wants me to have 2 iron infusions one week apart..it seems my body does not absorb it well...

also  have a history of low grade b lymphoma...the report says..there are significant numbers of nodular and well circumscribed lymphoid aggregates comprised of small lymphoid cells with dense chromatin....with T cell predominance. The number of aggregates seen is somewhat atypical. Reticulin stain shows moderate fibrosis within the lymphoid aggregate....so now I’m seeing that B cells are less but more T cells.....does anyone have any idea?....I see a dr in 2days..and wanted your opinion...also has anyone had an iron infusion?

thank you so much for any feedback!!!!

yesyes2
Posts: 584
Joined: Jul 2009

Hi Lauraisabel,  So sorry you are continuing to have bone marrow problems.  Given your history I think a second opinion is a really good idea.  You did not specify if your doctor was a dedicated Hemotologist or if he/she also treats other types of cancer.  I think it's best to have a doctor who only sees blood cancers and hemotologic diseases.  

My blood was showing low iron, for non specific reasons.  The cause was never found and over a 2 year period I became pretty animic.  I had 3 of the recommended 6 or 8 iron infusions.  The first was ok, the second I was sick for 3 days, the third I was sick for almost a week, worse than my 2 times with heavy duty chemo.  After a few month we switched to a different iron formula.  I had 2 infusions which were easier to tolerate but was a little ill with the second and would have refused a third.  After the last infusion my iron, ferritan and other level were way to elevated.  I was told not toworry as due to the infusions.  Over the past 1 12 years my counts did not return to normal.  In January I was diagnosed with a Myloproliferative Neoplasm ( bone marrow cancer).  First thing my Hemo/Onc said was, I've seen this happen with iron infusions before.  Now I am dealing with a cancer that can not be put into remission and creates many other health problems.  I'm not trying to scare you just telling you my experience with iron infusions.  I know there are other members who have had iron infusins, Max is one of them, and has had no problems.  I may just be an odd duck.  

I wish you the best.  Please let us know what you decide to do.

Leslie

 

Lauraisabel
Posts: 43
Joined: Jun 2017

Thank you so much for the info....my oncologist is also a hemotologist....tomorrow I see another one at Moffitt...what I see is that a lot of things that we have to take to help us also hurts us...I know they want me to continue with rituxin....I hope Max can tell me how he felt After his iron infusion ..also my bonemarrow shows more T cell activity...I will le you know what they say...So you never really felt better?...after the iron? Which Max was the one that got infusio?

thank you

Laura

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3293
Joined: May 2012

Laura, I responded regarding iron infusions on your other thread.  Please take a look there.

max

Lauraisabel
Posts: 43
Joined: Jun 2017

Hi there...why would My Bonemarrow biopsy say possible myelodisplastic syndome....they are saying no signs but not rule that out...why

Lauraisabel
Posts: 43
Joined: Jun 2017

why would they say that from Bonemarrow....that The cannot rule this mds out?

Lauraisabel
Posts: 43
Joined: Jun 2017

Hi there everyone!...wanted to ask you a question......so had Bonemarrow biopsy....under comments..it says..right now there are no signs of mds....but they cannot rule it out...very scary that they even say that...can you tell me why the even say that?.mds is short for myelodysplastic syndrome......

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3293
Joined: May 2012

Laura,

I am unfamiliar with MDS.  The attached article is from the MDS Foundation. There are literally hundreds of other articles available, so you may find one that specifies what the pathologist reported to you.  The easiest and most direct way however is to simply ask your own Hematologist.  Intuitively, the pathologist's comments seem to be saying that your sample does not prove MDS active, but that other indicators suggest it may be present. This is no more than a literary evaluation of the sentence.  Po or some of the others may have a clearer read of the passage.

max

https://www.aamds.org/research-article/seroreactivity-lgl-leukemia-specific-epitopes-aplastic-anemia-myelodysplastic-syndr

Lauraisabel
Posts: 43
Joined: Jun 2017

Thank you!

po18guy
Posts: 994
Joined: Nov 2011

Three years ago, I had MDS in my marrow at 26% blast cells, even though my only symptoms were from the two non-Hodgkin's lymphomas I had at the same tme. My variety was 20q deletion MDS, which is a low risk variety. Yet, at 26% (most leukemias are diagnosed at anytihng over 20% blast cells), it must have been growing in there for quite some time. 

The reason why they cannot rule MDS out is because to do so, they would have to examine every cell in your marrow - an impossibility. They may be responding to other circumstances which point toward it, but are not diagnostic of MDS.

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