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EMPD Extramammary Vulvar Paget’s Disease

cfisher8192
Posts: 1
Joined: Nov 2008

Is there anyone out there with EMPD??

RoseinMaine
Posts: 1
Joined: Apr 2018

I was diagnosed a couple of years ago with Paget's Disease of the vulva. I had surgery, and at the one year checkup, there was no evidence of disease. But I just found out it's reoccurred. Feeling a little scared! 

KatherineT45
Posts: 1
Joined: Oct 2019

Hi, I just finished treatment for EMPD colorecta. 

I would love to talk to someone who has gone through this. 
How long does it take for the digestion to calm down. Suffering with incontenence as well.

 

JeanneMermaid
Posts: 2
Joined: Sep 2021

I was diagnosed with Extramammary Paget's disease in June of this year (2021) and had a partial vulvectomy in July. I was looking for other folks to discuss whether you had reconstructive surgery to rebuild a "normal" vulva - or anything else that you can share about your journey. I am being co-followed by my oncoloist and a dermatology specialist. The dermatologist is waiting for full healing to decide about topical treatments later this year.  Thanks in advance

JeanneMermaid
Posts: 2
Joined: Sep 2021

I was so happy to find this group. I was diagnosed this year with EMPD and am looking to share and find out what others have gone through.

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