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Pain

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

Hi.. some help please#

Right kidney.. it was me who pushed Gp and made sure I was tested after being told several times i was just anxious

4.4 cm LPN .. chromie

contained

no mets

6mm clear margin

had six month US and chest x Ray.. radiographers talked me through tests and said as far as they could see all clear but obviougly still need medical confirmation

seeing surgeon next week

However I am still getting some symptoms which are driving me mad as I thought it would have improved by now

1) headache and dizziness.. pushing for a brain scan...not all the time but it’s still there

2) funny pain in shoulder and right elbow..and middle right finger,.slowly improving

3) pain at top of spine. Just above lung area

4) numb and tingling feeling in pelvis..can’t understand this.. had gp check reflex and feeling and was fine

5) tired.. not as bad as at beginning but still hanging about

is this unusual 

again.. gp just says I am anxious  ( drives me insane)and prescribed nerve tablets 

should I now be not almost back to old me

help

Annie

 

 

 

todd121's picture
todd121
Posts: 1449
Joined: Dec 2012

Who wouldn't be? I was. I was anxious and I had lots and lots of weird symptoms the first 1-2 years even.

The first year particularly, I had weird symptoms. I was particularly tired the first 6-9 months. My theory is it takes a long time for your insides to heal and your body to get used to one kidney (assuming you had the radical nephrectomy, which I don't know if you had a radical or not...).

And I got anxious with any weird symptoms for the first 3 years (that was one year after my adrenal gland tumor). It was, however, less with time. It crosses my mind these days, but I'm not as anxious. In the past 2 months I've had shingles for 6 weeks followed by a really bad cold, followed by something else. And I've been incredibly tired and depressed. All of this has made me wonder if my cancer might not be back. However, I have scans in 2 weeks, so I know there's no point in calling my oncologist. I might as well just wait for the scans and talk to him in 3 weeks after the scans.

Hope you feel better (in body as well as mind...)

Todd

todd121's picture
todd121
Posts: 1449
Joined: Dec 2012

You said it was chromophobe? I guess because it was 4.4cm it was Stage 1?

I don't know much about the risks of chromophobe. Generall ccRCC Stage 1 has a about a 95% cure rate, so you'd be pretty sure to be ok. But with chromophobe I don't know if that's more aggressive or less aggressive than clear cell. It's more rare.

In any case, if you're anxious, you're entitled. I'd try not to worry. It really doesn't help at all. I understand easier said than done, but consider it. It doesn't mean to not get follow ups or not to talk to your doc about issues, but maybe try waiting a week on a pain to see if it's still there before doing anything about it. Generally they say that transitory pains are not cancer.

Best to you,

Todd

 

Supersum's picture
Supersum
Posts: 103
Joined: Aug 2017

Do you feel tense, anxious, or excessively worried? That might contribute to 1/.

Number 2/ could be after effects of CO2 used in surgery if it was used, irritating nerves in shoulder and referring the pain down through the elbow to the finger. If not CO2 after effects then something else affecting your shoulder (and referring the pain).

3/ no idea

4/ could be some ache due to getting back into shape, carrying weight again. I don't know how old you are, could be an aging type little ache (it does happen). Coincidently, I have a very light pain and some numbness on hip/top of femur oncologist said it is musculoskeletal but I will be following it up, especially if it gets worse.

5/ it can he hard getting back to normal. Worry, anxiety, diet. exercise, sleep, relaxation. How are all these going for you? Just walking, building it up over time, can help. It's okay to have a nap.

I am not an expert in this area but from what I know I might be thinking I would want a CT scan sometime in the near future if that is something which can be arranged in your area and with your health cover. Ask your surgeon about it. Also realise you might be monitored by a urology team rather than oncology let alone an oncologist with an interest in RCC.

I understand how you might want a brain scan, but I might want a CT scan of chest pelvis abdomen first, unless headaches/dizziness becomes urgent. Hope you can get more feedback about this. 

 

 

Supersum's picture
Supersum
Posts: 103
Joined: Aug 2017

I just came across this essay about "Onco-anxiety" on another forum.

It doesn't mean our little pains are always not a problem, but it can help us put them into perspective (and demonstrate what everyone is going through):

http://www.wbur.org/commonhealth/2018/03/23/onco-anxiety-twinge-pang

 

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

I love the time and effort you both give to others on here

had a partial.. had scans.. not ct.. nothing showed up

seeing Consultant on tuesday

will see what he says

loved The article.. does not prevent the anxiety but helps when the scary fear hits

annie

 

 

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