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Cold sensitivity

Marley1983's picture
Marley1983
Posts: 16
Joined: Jan 2018

Hello all,

My name is Traci and I am 53 years old. I am new on here and I am thankful that I found this site.

I was diagnosed in August of 2017 with stage III colon cancer 8/24 nodes. I have had surgery to remove the cancer and will be having my last treatment soon. My question is that I started with the neuropathy in my hands and now it has gone into my feet. I have had the neuropathy in the hands all along, but the feet just this last two treatments. Does it get better after treatments?

Thanks, Traci

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Our timelines seem similar and I’m going through Adjuvant Chemo of Xeloda and Oxaliplatin. 

The cold sensitivity is caused by the Oxaliplayin. The neuropathy is also caused by the Oxaliplatin but some symptoms can be caused by the Xeloda or 5FU as well.

Ive heard that the neuropathy can be temporary or permanent.

 

Marley1983's picture
Marley1983
Posts: 16
Joined: Jan 2018

Thank you for replying. I am on the 5FU and the Oxaliplatin. I originally had it in my hands but the last treatment it showed up in my feet.Thank you for replying and I hope that you are doing well with your treatments.

~Traci~

 

Marley1983's picture
Marley1983
Posts: 16
Joined: Jan 2018

Mikenh,

you might ask your Doctor if you can try liquid calcium magnesium. It really helped with my hands. Just something to think about. ~Traci

 

 

 

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Welcome Traci! I was diagnosed in July of 2017 with stage 3B and just completed my adjuvant chemo in February. My neuropathy started in my fingers after my 4th treatment and went to my toes during last 2 treatments. Since my completion a month and a half aog, I feel somewhat lessen in my fingers but my still lingering in my toes. I can't wear shoes or boots without feeling comfortable. Neuropathy can be temorary or permanent depends on individuals. I also heard that taking vitamin B complex helps with neuropathy. 

Marley1983's picture
Marley1983
Posts: 16
Joined: Jan 2018

Thank you for replying. I had it originally in my hands and then last treatment it went into my feet. I have one more treatment and hopefully it will be when it‘s scheduled. I have been on calcium magnesium for the neuropathy and it really helped with my hands not so much with my feet. I have had to have treatments delayed because of my platelets being to low. Hope your doing well.

Thank you ~Traci

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

More cats?

Marley1983's picture
Marley1983
Posts: 16
Joined: Jan 2018

Sorry Cats? Not sure what you mean.

Thank you,Traci

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Lol Traci. I think Mike was asking me. I had 1 cat pic before and now i have 3. 

Mike, yup more cats. i love dogs but I'm turning into a crazy cat lady. Lol 

Annabelle41415's picture
Annabelle41415
Posts: 6549
Joined: Feb 2009

Unfortunately, mine never went away and I'm on medication 9 years later.  See if your doctor can reduce the oxy in the last round but let them know you are having issues.  Welcome to the board and hope that you can find more answers to any questions you have.  We have many people here that can help.  Wishing you well.

Kim

Marley1983's picture
Marley1983
Posts: 16
Joined: Jan 2018

Thank you Kim, I will ask about it.

TerryGibbons's picture
TerryGibbons
Posts: 13
Joined: Mar 2018

Yep I’m having 5fu also. Fingers and toes feel weird  Next week number 5 of 9 cycles then get rid of 

ileostomy bag ..... Cancer sucks alright sadly I didn’t realise sooner. Take care everyone and best wishes. 

Terry Auckland NZ

Annabelle41415's picture
Annabelle41415
Posts: 6549
Joined: Feb 2009

Don't forget to tell your doctor about your symptoms.  More doctors should be aware that the neuropathy can become permanent but they don't tell you.  Please be your best advocate. 

Kim

TerryGibbons's picture
TerryGibbons
Posts: 13
Joined: Mar 2018

I’m going through exactly the same. 

Marley1983's picture
Marley1983
Posts: 16
Joined: Jan 2018

Thinking and praying for you.

Trubrit's picture
Trubrit
Posts: 5222
Joined: Jan 2013

and I still have neuropathy in my finger tips and my feet and halfway up my calves. 

It is better than it was at first, but still there. 

Tru

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

I saw a paper explaining the pathway for the neuropathy yesterday and a potential cure. I wasn’t sure of the source though.

Marley1983's picture
Marley1983
Posts: 16
Joined: Jan 2018

That would be interesting to read!

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

The paper is behind a paywall and I'll work on seeing if I can get it.

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