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Adult Survivors of Childhood Burkitts from 80s

BurkittsSurvivor79's picture
BurkittsSurvivor79
Posts: 5
Joined: Mar 2018

Hello, I am a 38 y/o female survivor of childhood Burkitts (Early ‘80s). I’m  looking for other survivors from this time period. Im not suffering from very adverse effects but also not doing very well in general. Hurting all the time, getting worse over the years. A lot of non-cardiac chest pain (but had full cardiac workup). Also Thyroid Cancer in 2006. I had less radiation but more chemotherapy.  

Please feel free to message me  

 

Looking to share experience and for support. 

 

-A

Evarista
Posts: 261
Joined: May 2017

Hi there.  Are you aware of this program?  https://scholars.duke.edu/display/gra231800.  We we lucky to have the lead doctor for this program as our family physician for a bunch of years before he focused on Adult Survivors of Pediatric Cancers.  Maybe reach out to this group and see what might be available in your area? Good luck with it.

BurkittsSurvivor79's picture
BurkittsSurvivor79
Posts: 5
Joined: Mar 2018

Yes, I'm a part of the Long Term Follow Up Study. CCSS. They don't let you speak with other survivors, just offer research.

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