So sorry l haven't been on site for awhile. I have responded privately to Jason but welcome any questions others may have. At the time of dxd l was given a 50% chance of reoccurance in December 2011. Tumor was Grade 4, Stage 3, invaded perinephric fat and over 90% necrosis, 4.1 cm.
I continue to be under the care of an oncologist and so far have remained NED. The thoughts of reoccurance always linger in my mind but l try to remain positive. My doctor is impressed with my journey so far as he felt this was a very aggressive form. I wish everyone on this site the very best of health. Try to make the best of every day.
Joined: Oct 2013
Sorry no one has responded at
Sorry no one has responded at all. Lots of folks have read your post but probably thought they couldn't be helpful.
I would re-post or try SmartPatients.com
they have more folks there.
Let us know how you are doing.
Sending you HOPE and HUGS,
Jan
Joined: Jan 2018
Hello Jan
Hello Jan
I have really lost my peace of mind and feeling shattered
I really feel apprensive about my family.I have kid and I want to see her grow
Dr Google does not give good stats for this rare rcc.
Joined: Aug 2017
Justin
Your mass was on the small side
I totally understand the fear but I assume your surgeon has indicated that you still have all the positives of an early detection
There are a few Others on here.. with same as yours but don’t always post... search and you will see
Please don’t suffer.. come back and let us know how you are getting on
Annie
Joined: Jan 2018
Hi Annie
Hi Annie
I am very much shattered.i am not able to sleep
Every one and stats tell different story not sure whom to believe
Joined: Sep 2016
Hi Annie!
I did a search, please check this post, seems to me there is another member has type II as well, please read.
https://csn.cancer.org/node/262401
Early detection is the most important!
All the best!
Joined: Aug 2017
Thanks Lobbyist
Justin
folk in the above link are still logging on
try contacting them direct... by email
I am a chromie and know how hard it is when you just want information
Annie
Joined: Jan 2018
HI Annie/Lobbyist,
HI Annie/Lobbyist,
Thanks for your help.I sent private message to Janna.Hopefully she will see it
Joined: Oct 2013
Hey, Justin, I was checking
Hey, Justin, I was checking SmartPatients.com for your diagnosis and see you have posted and others responded.
How do you feel now?And what is your doctor telling you about your prognosis?
Here for you all the way!
Sending you HOPE and HEALING HUGS!
Jan
Joined: Jan 2018
Hi Jan
Hi Jan
SP community give good prognosis as well as my doctor said the same thing.
My friend's doctor told 30per chances of recurrence which scared me.
Thanks
Joined: Oct 2012
Papillary type Ii
So sorry l haven't been on site for awhile. I have responded privately to Jason but welcome any questions others may have. At the time of dxd l was given a 50% chance of reoccurance in December 2011. Tumor was Grade 4, Stage 3, invaded perinephric fat and over 90% necrosis, 4.1 cm.
I continue to be under the care of an oncologist and so far have remained NED. The thoughts of reoccurance always linger in my mind but l try to remain positive. My doctor is impressed with my journey so far as he felt this was a very aggressive form. I wish everyone on this site the very best of health. Try to make the best of every day.
Joined: Jan 2018
Hi Hydrangea,
Hi Hydrangea,
I have not received your privite reply .Can you please resend
Thanks