Anyone with papillary type 2

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Justinb40y
Justinb40y Member Posts: 22
in Kidney Cancer #1

Hi

is there anyone with papillary type 2 with stage 1 and NED for more than 5 years

Thanks

Comments

  • Jan4you
    Jan4you CSN Member Posts: 1,330 Member
    #2
    Sorry no one has responded at

    Sorry no one has responded at all. Lots of folks have read your post but probably thought they couldn't be helpful.

    I would re-post or try SmartPatients.com

    they have more folks there.

    Let us know how you are doing.

    Sending you HOPE and HUGS,

    Jan

  • Justinb40y
    Justinb40y Member Posts: 22
    #3
    Jan4you said:

    Sorry no one has responded at

    Sorry no one has responded at all. Lots of folks have read your post but probably thought they couldn't be helpful.

    I would re-post or try SmartPatients.com

    they have more folks there.

    Let us know how you are doing.

    Sending you HOPE and HUGS,

    Jan

    Hello Jan

    Hello Jan

    I have really lost my peace of mind and feeling shattered

    I really feel apprensive about my family.I have kid and I want to see her grow

    Dr Google does not give good stats for this rare rcc.

     

  • Wehavenotimeatall
    Wehavenotimeatall CSN Member Posts: 488 Member
    #4
    Justin

    Your mass was on the small side

    I totally understand the fear but I assume your surgeon has indicated that you still have all the positives of an early detection

    There are a few Others on here.. with same as yours but don’t always post... search and you will see

     

    Please don’t suffer.. come back and let us know how you are getting on

    Annie

     

  • Justinb40y
    Justinb40y Member Posts: 22
    #5
    Hi Annie

    Hi Annie

    I am very much shattered.i am not able to sleep

    Every  one and stats tell different story not sure whom to believe

  • lobbyist0724
    lobbyist0724 Member Posts: 516 Member
    #6
    Hi Annie!

    I did a search, please check this post, seems to me there is another member has type II as well, please read.

    https://csn.cancer.org/node/262401

    Early detection is the most important!

    All the best!

  • Wehavenotimeatall
    Wehavenotimeatall CSN Member Posts: 488 Member
    #7
    Thanks Lobbyist

    Justin

     

     

    folk in the above link are still logging on

     

    try contacting them direct... by email

    I am a chromie and know how hard it is when you just want information 

     

    Annie

     

  • Justinb40y
    Justinb40y Member Posts: 22
    #8
    Wehavenotimeatall said:

    Thanks Lobbyist

    Justin

     

     

    folk in the above link are still logging on

     

    try contacting them direct... by email

    I am a chromie and know how hard it is when you just want information 

     

    Annie

     

    HI Annie/Lobbyist,

    HI Annie/Lobbyist,

    Thanks for your help.I sent private message to Janna.Hopefully she will see it

     

     

  • Jan4you
    Jan4you CSN Member Posts: 1,330 Member
    #9
    Hey, Justin, I was checking

    Hey, Justin, I was checking SmartPatients.com for your diagnosis and see you have posted and others responded.

    How do you feel now?And what is your doctor telling you about your prognosis?

    Here for you all the way!

    Sending you HOPE and HEALING HUGS!

    Jan

  • Justinb40y
    Justinb40y Member Posts: 22
    edited February 2018 #10
    Jan4you said:

    Hey, Justin, I was checking

    Hey, Justin, I was checking SmartPatients.com for your diagnosis and see you have posted and others responded.

    How do you feel now?And what is your doctor telling you about your prognosis?

    Here for you all the way!

    Sending you HOPE and HEALING HUGS!

    Jan

    Hi Jan

    Hi Jan

    SP community give good prognosis as well as my doctor said the same thing.

    My friend's doctor told 30per chances of recurrence  which scared me.

    Thanks

  • hydrangea
    hydrangea Member Posts: 32
    #11
    Papillary type Ii

    So sorry l haven't been on site for awhile. I have responded privately to Jason but welcome any questions others may have.  At the time of dxd l was given a 50% chance of reoccurance in December 2011.  Tumor was Grade 4, Stage 3, invaded perinephric fat and over 90% necrosis, 4.1 cm.

    I continue to be under the care of an oncologist and so far have remained NED.  The thoughts of reoccurance always linger in my mind but l try to remain positive.  My doctor is impressed with my journey so far as he felt this was a very aggressive form.  I wish everyone on this site the very best of health.  Try to make the best of every day.  

  • Justinb40y
    Justinb40y Member Posts: 22
    #12
    hydrangea said:

    Papillary type Ii

    So sorry l haven't been on site for awhile. I have responded privately to Jason but welcome any questions others may have.  At the time of dxd l was given a 50% chance of reoccurance in December 2011.  Tumor was Grade 4, Stage 3, invaded perinephric fat and over 90% necrosis, 4.1 cm.

    I continue to be under the care of an oncologist and so far have remained NED.  The thoughts of reoccurance always linger in my mind but l try to remain positive.  My doctor is impressed with my journey so far as he felt this was a very aggressive form.  I wish everyone on this site the very best of health.  Try to make the best of every day.  

    Hi Hydrangea,

    Hi Hydrangea,

    I have not received your privite reply .Can you please resend

    Thanks

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