CSN Login
Members Online: 5

You are here

Anyone with papillary type 2

Justinb40y
Posts: 22
Joined: Jan 2018

Hi

is there anyone with papillary type 2 with stage 1 and NED for more than 5 years

Thanks

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Sorry no one has responded at all. Lots of folks have read your post but probably thought they couldn't be helpful.

I would re-post or try SmartPatients.com

they have more folks there.

Let us know how you are doing.

Sending you HOPE and HUGS,

Jan

Justinb40y
Posts: 22
Joined: Jan 2018

Hello Jan

I have really lost my peace of mind and feeling shattered

I really feel apprensive about my family.I have kid and I want to see her grow

Dr Google does not give good stats for this rare rcc.

 

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

Your mass was on the small side

I totally understand the fear but I assume your surgeon has indicated that you still have all the positives of an early detection

There are a few Others on here.. with same as yours but don’t always post... search and you will see

 

Please don’t suffer.. come back and let us know how you are getting on

Annie

 

Justinb40y
Posts: 22
Joined: Jan 2018

Hi Annie

I am very much shattered.i am not able to sleep

Every  one and stats tell different story not sure whom to believe

lobbyist0724's picture
lobbyist0724
Posts: 431
Joined: Sep 2016

I did a search, please check this post, seems to me there is another member has type II as well, please read.

https://csn.cancer.org/node/262401

Early detection is the most important!

All the best!

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

Justin

 

 

folk in the above link are still logging on

 

try contacting them direct... by email

I am a chromie and know how hard it is when you just want information 

 

Annie

 

Justinb40y
Posts: 22
Joined: Jan 2018

HI Annie/Lobbyist,

Thanks for your help.I sent private message to Janna.Hopefully she will see it

 

 

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

Hey, Justin, I was checking SmartPatients.com for your diagnosis and see you have posted and others responded.

How do you feel now?And what is your doctor telling you about your prognosis?

Here for you all the way!

Sending you HOPE and HEALING HUGS!

Jan

Justinb40y
Posts: 22
Joined: Jan 2018

Hi Jan

SP community give good prognosis as well as my doctor said the same thing.

My friend's doctor told 30per chances of recurrence  which scared me.

Thanks

hydrangea's picture
hydrangea
Posts: 32
Joined: Oct 2012

So sorry l haven't been on site for awhile. I have responded privately to Jason but welcome any questions others may have.  At the time of dxd l was given a 50% chance of reoccurance in December 2011.  Tumor was Grade 4, Stage 3, invaded perinephric fat and over 90% necrosis, 4.1 cm.

I continue to be under the care of an oncologist and so far have remained NED.  The thoughts of reoccurance always linger in my mind but l try to remain positive.  My doctor is impressed with my journey so far as he felt this was a very aggressive form.  I wish everyone on this site the very best of health.  Try to make the best of every day.  

Justinb40y
Posts: 22
Joined: Jan 2018

Hi Hydrangea,

I have not received your privite reply .Can you please resend

Thanks

Subscribe to Comments for "Anyone with papillary type 2"