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It was twenty years ago today

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

      That I was on the operating table and had an aggressive stage 3 c tumour removed from my transverse and descending colon. It was only moderate in size but it had invaded 6 nodes. My surgeon described it as frightfully aggresive and was very blunt with his prognosis. Three years at the most. I had 48 sessions of chemo , an old regime of 5fu infusions and a drug called levamisole(banned in 2001 for often fatal side effects). I have now been cancer free for twenty years. I still have regular scopes but no cea or scans.Last aprils scope produced four tubular adenomas , the biggest 11mm. All had mild displaysia but no cancer. I have some serious long term side effects. Nephrotic syndrome of the kidneys requiring cyclosporine twice a day, early tretment with high dose prednisone has put me into type two diabetes. I have  moderate auto immune hepatitis. I have auto immune seronegative polyarthritis, believed to be psoriatic arthritis. For several years i have had over 11000 premature ventricular and atrial ectopic heart beats a day. I spent the second day of the year in hospital after a severe vertigo attack. I was treated for dehydration. They did two ecgs on the day and I have now been dxed with atrial fibrillation and I am now taking warfarin every day. I am still working four days a week.. It has been a long hard road. Ron.

Canadian Sandy's picture
Canadian Sandy
Posts: 689
Joined: Jul 2016

Wow.....you are a big time survivor Ron! Sorry for all the other things but congratulations for surviving them. I hope I can be as strong as you have been. 

Trubrit's picture
Trubrit
Posts: 5378
Joined: Jan 2013

 

Really, 20 years!  

I know it hasn't been easy, but you're here, and we're happy. So happy we're running around emoticonwith joy. 

Tru

pkbras68's picture
pkbras68
Posts: 2
Joined: Jan 2018

That's great to hear 20 years since diagnosis.  Your story is very encouraging.  I was diagnosed two months ago and am hoping for a long cancer free life as well after my chemotherapy treatments!

 

tanstaafl's picture
tanstaafl
Posts: 1299
Joined: Oct 2010

Congratulations on the super survival Ron, and thanks for sharing your journey.  I can't help feeling that there are natural chemistries that would help your organ damage even now.   

NewHere's picture
NewHere
Posts: 1281
Joined: Feb 2015

The issues you have had subsequent have been far from easy, but 20 years is awesome.  

PamRav's picture
PamRav
Posts: 288
Joined: Jan 2017

you’ve been through so much to be here today.  Congrats on 20 years.  You’re an inspiration to all of us fighting the fight.

Hope you’ve had some kind of celebration,  you certainly deserve it!

Tunadog's picture
Tunadog
Posts: 235
Joined: Mar 2017

I'm doing pretty good, but not as good as you.

Getting my 6 month PET/CT Tuesday before I see my Oncologist on Friday.

Things are holding together.

Peace

Annabelle41415's picture
Annabelle41415
Posts: 6682
Joined: Feb 2009

Thanks so much Ron for coming on here all the time and giving your story.  You are someone that we can look to for much information and support and you are always there to give support to those that need it.  WOW 20 years.  You deserve much praise for going through all the things that you have because of a bad drug they gave you and all that it caused it.  Much praise and congratulations to you dear Sir.  You deserve much and wishing you the best moving forward.  Sorry about your recent diagnosis, but wishing you the best with that and hoping that the Warfrin helps.

Kim

Woodytele
Posts: 163
Joined: Apr 2017

sounds like it haven’t been easy for sure, but you are still here.  You are one tough guy. 

Semira's picture
Semira
Posts: 378
Joined: Mar 2012

What a Stroy.

A big hug from Germany.

Petra

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Ron, when I get whiney about my side effects I think of you and all you've been through. I didn't realize you were at the 20 year mark, though, wow. You're amazing!! I didn't know you're still working! And your kidneys finally started improving after all these years recently, didn't they? My goodness, you are TOUGH! Thank you for sharing this. And many more years!

Hugs,

Jan 

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

I had what I thought was the vertigo attack the night before new years eve . I was actually on the loo when it hit me. Needless to say I finished up on the bathroom floor covered in vomit , sweat and stuff I'd rather not mention . I was on the floor for around four hours. every time I would raise my head i would vomit. I was sweating so much the pool nearly reached the living room carpet. I eventually got to the doctor on the 2nd. He called me all thhe idiots under the sun and sent me straight to er. They are not convinced it was vertigo and believe it may have been a slight heart attack. I was dreadfully dehydrated , my urine was full of keytones from not eating for four days and my liver and kidney functions were both out of kilter. They pumped me full of saline. I have not been dxed with atrial fib before so they were more inclined to suspect heart attack. I am having trouble getting the warfrin dose right. theythink that a flare in my auto immune hepatitis is interfering. They do a finger prick test called inr (international normalised ratio) which is just a long way of saying clotting factor. IT SHOULD BE 2.3 TO PREVENT CLOTS FORMING BUT MINE HAS BEEN UP TO 5.2 WHICH HAS PUT ME AT SERIOUS DANGER OF BLOOD LEAKS. I have the inr test most days , the last reading was 3. Sorry about the capitals , iwas not shouting , just hit caps lock and too tired to retype. I am really having problems getting everything back in order. Plus I have a very heavy workload at this time of the year. All of the schools in the area send their home ecconomics sewing mavhines over the christmas holidays  . i only just managed to get them done in time for return to school. Thanks you all for your kind words . Better health to all this year. Ron.

Annabelle41415's picture
Annabelle41415
Posts: 6682
Joined: Feb 2009

So sorry that you have been going through all this.  Hoping that it wasn't a heart attack and they can figure out what really happened.  Hoping you feel better soon as you've been through so much you don't need to go through any more. 

Hugs!  Kim

plsletitrain
Posts: 253
Joined: Jul 2017

I wish I could also make it to 20 years times two.  It sure was not an easy journey but you're alive. That's what matters.  I hope your other non-cancer health issues will be resolved soon.  Here's to 20 more years and another 20!

beaumontdave's picture
beaumontdave
Posts: 1108
Joined: Aug 2013

It's a shame that surviving this stuff brought such a litany of other problems, but your being here still inspires. May 2018 treat you better.....................................Dave

impactzone's picture
impactzone
Posts: 542
Joined: Aug 2006

You are an inspiration to so many. All my best, always!

Chip

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

You really ARE an inspiration to everyone here. Congratulations Ron!!!!!

lhduffer
Posts: 86
Joined: Oct 2015

Congratulations on the 20 year mark!  You provide so much inspiration and hope for those of us much newer in the journey.  You are amazingly strong and are also an inspiration to be surviving the after effects of this horrible disease.  I'm hoping I will join your 20 year club someday!

Joan M's picture
Joan M
Posts: 411
Joined: Oct 2016

It's hard to imagine going through all that you have and still being able to work!  It sounds like you repair sewing machines? 

I'm very sorry to hear of all your health problems, especially the recent episode that caused you to be on the floor for days.  Is there any remedy to help prevent such an experience in the future?

 

Easyflip's picture
Easyflip
Posts: 588
Joined: May 2013

once in a while I check in on my friends here and I’m happy to see this, congratulations Ron, well done.

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

   I do appreciate the supoort you give us old timers here. May you all become oldtimers and post for many years. The ER must have taken my problems seriously as I get in to see the cardiac neurologist next tuesday. Just something else to survive, Cheers Ron.

StacyGleaso's picture
StacyGleaso
Posts: 1249
Joined: Mar 2003

I just happened to stop in after not being logged in for a crazy long time and was SOOO happy to read this, Ron!  I'm just a mere 16 yr survivor of stage 4, so I have a few years before I have your bragging rights!  Congratulations, Ron!  Glad all is well in your world!  Best wishes for 50 more years ahead!

 

StacyLaughing

marbleotis's picture
marbleotis
Posts: 710
Joined: Mar 2012

Wow - 20 years......... 

You are and to continue to be an encourgement for all of us!

Annabelle41415's picture
Annabelle41415
Posts: 6682
Joined: Feb 2009

Just wondering how your neurologist appointment went and if you have and information to share.  Wishing you well always.

Hugs!  Kim

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

(I even spelled your name right) So good to hear from you. At  16 years you can brag all you like and I suspect you have a greater chance at the 50 years than me. You have made my day , I think of all my old friensd often , Hugs Ron.

              Very disappointing Kim . He is actually the same guy I had years agao checking out my frequent premature ectopics. After two years of checking and no improvement he came to the conclusion that if I hadn't died by now I probably wouldn't. He had to admit this time I definitely had atrial flutter and almost certainly atrial fib. I have to have a 1 day holter monitor , a seven day event monitor and another echo gardiogram.

              I had to call the ambulance again today . I awoke at 3.30 am to find the room spinning. They took me up to the hospital at 6.30 , throwing up all the way . I really hate vertigo attacks. I finally got out at 5.30 this afternoon full of anti-nausea meds. hugs Ron.

Annabelle41415's picture
Annabelle41415
Posts: 6682
Joined: Feb 2009

So sorry to hear that.  I'm just so sad that you have to go through all of this.  You have been through so much even though you have been here for so long it seems like you have another hurdle to solve and you keep moving forward.  God Bless you as you, once again, deal with another issue.  Although you been dealing with vertigo for awhile, I'm sad that you had such an ordeal.  Doctor doesn't seem very sympathetic, so I'm hoping that you feel better soon.

Hugs!  Kim

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

It was twenty years ago today
Sgt. Pepper taught the band to play
They've been going in and out of style
But they're guaranteed to raise a smile
So may I introduce to you
The act you've known for all these years
Sgt. Pepper's Lonely Hearts Club Band.

Congrats Ron!!!

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

The big difference between us is that I have survived after cancer but you have survived with cancer, a big congrats back at you, all the best Ron.

impactzone's picture
impactzone
Posts: 542
Joined: Aug 2006

You are a superstar! Congrats on leading and inspiring so many of us.

Chip

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