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NED

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

Wanted to share my good news. I had NED yesterday for my scans. It's been 3 years since my adrenal tumor.

I thought ya'll might be interested in my doc's prognosis. When I had the metastasis to my adrenal 3 years ago, doctor said I had a 66% chance of it coming back somewhere. I got another opinion and the other oncologist said somewhere between 50-66% chance.

My doc hasn't been willing to give me a percentage the past few years, but yesterday I pushed him a little and he said the risk is more like 10-20% now. I'm quite happy with that. It's similar to my risk after my nephrectomy (which was stage 3 grade 3) 5 years ago.

Now I have to get back on my food plan and exercise plan which I fell off of over the holidays. Gained 2/3 of the weight I lost last year back. I want to get back where I was. I felt a lot better at the lower weight.

Peace,

Todd

Steve.Adam's picture
Steve.Adam
Posts: 460
Joined: Oct 2016

Three years NED sounds pretty good to me. Long may it continue.

I also have some weight to lose (again).

Steve.

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

a) That is brilliant news... so happy for you...the relief must be great

 

 b) that is a massive change in the %...I pray.. it will continue..

 

c) are you scheduled for Life scans.

 

Annie

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

Thanks! What are Life scans?

My doc says he has no plans to ever stop this. I'm less thrilled about that. I'd like to move to 4 months now, but he doesn't agree. I moved this one on my own. Eventually, I'd like to go to 6 months at least. It's a 1-2 hour drive each way to see them and I have to go twice to do this, so it means missing 2 days of work every 3 months.

Todd

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

That’s what I meant... scans for life

oh dear that is a burden but  it must take some of the fear away( in a funny reverse way)

you have a good guy on your case

Annie

 

sandy23
Posts: 137
Joined: Jan 2017

That's awesome!!  Thanks for sharing the wonderful news!!

stevez
Posts: 51
Joined: Dec 2017

Great news!  I too am getting back to my pre-holiday, pre-surgery weight.  I've gained 10 pounds and don't like it at all.  Happy to hear your news Todd.

Hd67xlch's picture
Hd67xlch
Posts: 143
Joined: Apr 2016

congratulations, hope you get many more NEDs.

AnnissaP's picture
AnnissaP
Posts: 623
Joined: Sep 2017

Whew!! Congratulations and great news. Keep on keepin on!!

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I think by now you know that I expect a long future for you. No doubts whatsoever. I wish i could place a bet. It has always been a sure thing.

daisybud's picture
daisybud
Posts: 460
Joined: Jan 2016

Great news!

Tapman63's picture
Tapman63
Posts: 136
Joined: Dec 2017

Congratulations!

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Congratulations on the good news.

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

Congrats on the three-year NED!

Jobie123's picture
Jobie123
Posts: 32
Joined: Dec 2017

This is amazing news ! So nice to here some good news !

i had my results on my chest scan on Monday and they have said they are sure it’s not a met from the lung and some inflammation from somewhere , so I’m being forwarded to see a lung specialist ! All part of the rollercoaster I guess !!!

Canadian Sandy's picture
Canadian Sandy
Posts: 508
Joined: Jul 2016

Great news! Congratulations.

BoondockSaint's picture
BoondockSaint
Posts: 241
Joined: Mar 2017

Awesome news my friend!! Best thing I've read all morning.

Krissyd73's picture
Krissyd73
Posts: 9
Joined: Dec 2017

Wonderful news!!! 

klj15's picture
klj15
Posts: 38
Joined: Jun 2017

Congratulations!

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

Wonderful news Todd

 

MelBlessed's picture
MelBlessed
Posts: 71
Joined: Aug 2017

Great News! Ugh the after holidays weight gain, always a problem here.  Good luck!

Cybball
Posts: 111
Joined: Nov 2017

Well done!  Super excited for your news.  That has to feel great hearing that.

Angie1496's picture
Angie1496
Posts: 154
Joined: Sep 2017

WOnderful news!  I hope to hear NED in March as well.!

Allochka's picture
Allochka
Posts: 869
Joined: Nov 2014

Congratulations! Your granddaughter needs her grandad, and you'll be healthy and around for her for a long-long time! :-)

donna_lee's picture
donna_lee
Posts: 900
Joined: Feb 2009

So glad to hear the news.  It's what keeps us all with our fingers crossed for the rest of the gang.  May all news be good news in 2018.  And that's a motion we all can vote pro on.

Hugs to you,

donna_lee

Max57's picture
Max57
Posts: 158
Joined: Mar 2015

Great news! May all be blessed with NED

Rockspin
Posts: 77
Joined: Aug 2017

Congratulations! Great news!

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012

Appreciate all the notes. We all need all the good news we can get. I always look forward to hearing it here.

Hugs,

Todd

stub1969's picture
stub1969
Posts: 796
Joined: Jul 2016

The kind of news we like to hear.  Congratulations, Todd.  May you have many years of NED.

Stub

marosa's picture
marosa
Posts: 332
Joined: Feb 2015

Very happy to hear the good news and to hear from you!  Now get to work in lossing those extra pounds!

 Donna_Lee, love your new pic!Kiss

 

Pandabear1011
Posts: 123
Joined: Jun 2014

Awesome news, Todd!! And, that lower recurrence % has to make you feel good..:)  Wishing you the best ...~Panda~

adman's picture
adman
Posts: 338
Joined: Jul 2012

such great news; Continued great news and health.

God Bless! 

lobbyist0724's picture
lobbyist0724
Posts: 387
Joined: Sep 2016

Gongrats, we all know it won't get to 0%, but hope the doctor will give you a lower number everytime you meet him!

rhominator's picture
rhominator
Posts: 232
Joined: Nov 2015

Congrats, Todd!  :-)

I get my quarterly scan in 10 days. I hope mine is as good a yours.

repaid
Posts: 17
Joined: Dec 2017

Great news. Very happy for you. My next scans are on the 26th.

siloman
Posts: 9
Joined: Jan 2018

i just had my nephrectomy on dec 20th.....i have lost 14 pounds over the holidays...unfortunatly not the way i wanted too....glad to hear your good news......hope my first scan is as good in march.....best of luck to you  

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Donna~

Skagway Jack's picture
Skagway Jack
Posts: 221
Joined: Oct 2013

Great news Todd!  Ya gotta like them odds!

 

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Way to go Todd! That is awesome news!

Big hugs

Jojo

Hoss79's picture
Hoss79
Posts: 78
Joined: Nov 2017

Awesome news!!

angec's picture
angec
Posts: 923
Joined: Mar 2012

Awesome news Todd! you made my night! keep it up!

Ange

Mighty Frog's picture
Mighty Frog
Posts: 138
Joined: Jul 2017

Glad to hear that! Yes... being lighter is Great! Keep it up! Man.... U can do it!

Karen8873
Posts: 35
Joined: Dec 2017

Thats wonderful news ! 

CRashster's picture
CRashster
Posts: 230
Joined: Mar 2017

NED is always good.

DreamOnDeb
Posts: 112
Joined: May 2017

Congratulations, Todd!!!

adman's picture
adman
Posts: 338
Joined: Jul 2012

congrats; awesome news. Three letters I never grow tired of seeing in that order :)

God Bless! 

Trucker1's picture
Trucker1
Posts: 82
Joined: Sep 2017

SWEET!!

klj15's picture
klj15
Posts: 38
Joined: Jun 2017

Comgrats! That's great news!

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