NED

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todd121
todd121 CSN Member Posts: 1,448 Member
in Kidney Cancer #1

Wanted to share my good news. I had NED yesterday for my scans. It's been 3 years since my adrenal tumor.

I thought ya'll might be interested in my doc's prognosis. When I had the metastasis to my adrenal 3 years ago, doctor said I had a 66% chance of it coming back somewhere. I got another opinion and the other oncologist said somewhere between 50-66% chance.

My doc hasn't been willing to give me a percentage the past few years, but yesterday I pushed him a little and he said the risk is more like 10-20% now. I'm quite happy with that. It's similar to my risk after my nephrectomy (which was stage 3 grade 3) 5 years ago.

Now I have to get back on my food plan and exercise plan which I fell off of over the holidays. Gained 2/3 of the weight I lost last year back. I want to get back where I was. I felt a lot better at the lower weight.

Peace,

Todd

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Comments

  • Wehavenotimeatall
    Wehavenotimeatall CSN Member Posts: 488 Member
    #2
    Wow

    a) That is brilliant news... so happy for you...the relief must be great

     

     b) that is a massive change in the %...I pray.. it will continue..

     

    c) are you scheduled for Life scans.

     

    Annie

  • sandy23
    sandy23 Member Posts: 143 Member
    #3
    That's awesome!!  Thanks for

    That's awesome!!  Thanks for sharing the wonderful news!!

  • stevez
    stevez Member Posts: 51
    #4
    Congratulations!

    Great news!  I too am getting back to my pre-holiday, pre-surgery weight.  I've gained 10 pounds and don't like it at all.  Happy to hear your news Todd.

  • Steve.Adam
    Steve.Adam CSN Member Posts: 463 Member
    #5
    Three Years NED

    Three years NED sounds pretty good to me. Long may it continue.

    I also have some weight to lose (again).

    Steve.

  • Hd67xlch
    Hd67xlch Member Posts: 151 Member
    #6
    Great news.........

    congratulations, hope you get many more NEDs.

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    #7
    Whew!! Congratulations and

    Whew!! Congratulations and great news. Keep on keepin on!!

  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    #8
    Todd,

    I think by now you know that I expect a long future for you. No doubts whatsoever. I wish i could place a bet. It has always been a sure thing.

  • daisybud
    daisybud Member Posts: 541 Member
    #9
    Great news

    Great news!

  • Tapman63
    Tapman63 CSN Member Posts: 137 Member
    #10
    Awesome News!

    Congratulations!

  • Retcenturion
    Retcenturion CSN Member Posts: 240 Member
    #11
    Congratulations

    Congratulations on the good news.

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #12
    That's awesome!

    Congrats on the three-year NED!

  • Jobie123
    Jobie123 Member Posts: 32 Member
    #13
    This is amazing news ! So

    This is amazing news ! So nice to here some good news !

    i had my results on my chest scan on Monday and they have said they are sure it’s not a met from the lung and some inflammation from somewhere , so I’m being forwarded to see a lung specialist ! All part of the rollercoaster I guess !!!

  • Canadian Sandy
    Canadian Sandy Member Posts: 784 Member
    edited January 2018 #14
    Great news! Congratulation.

    Great news! Congratulations.

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    #15
    Awesome news my friend!! Best

    Awesome news my friend!! Best thing I've read all morning.

  • Krissyd73
    Krissyd73 Member Posts: 9
    edited January 2018 #16
    Wonderful news!!! 

    Wonderful news!!! 

  • klj15
    klj15 Member Posts: 38
    #17
    Congratulations!

    Congratulations!

  • foroughsh
    foroughsh Member Posts: 779
    #18
    Wonderful news Todd
     

    Wonderful news Todd

     

  • MelBlessed
    MelBlessed Member Posts: 71 Member
    #19
    Congratulations

    Great News! Ugh the after holidays weight gain, always a problem here.  Good luck!

  • Cybball
    Cybball Member Posts: 111
    #20
    Well done!  Super excited for

    Well done!  Super excited for your news.  That has to feel great hearing that.

  • Angie1496
    Angie1496 Member Posts: 154
    #21
    WOnderful news!  I hope to

    WOnderful news!  I hope to hear NED in March as well.!

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