CSN Login
Members Online: 1

You are here

CSN Home › Discussion boards › Cancer specific › Kidney Cancer

NED

todd121's picture
todd121
Posts: 1449
Joined: Dec 2012
Jan 16, 2018 - 5:15 pm

Wanted to share my good news. I had NED yesterday for my scans. It's been 3 years since my adrenal tumor.

I thought ya'll might be interested in my doc's prognosis. When I had the metastasis to my adrenal 3 years ago, doctor said I had a 66% chance of it coming back somewhere. I got another opinion and the other oncologist said somewhere between 50-66% chance.

My doc hasn't been willing to give me a percentage the past few years, but yesterday I pushed him a little and he said the risk is more like 10-20% now. I'm quite happy with that. It's similar to my risk after my nephrectomy (which was stage 3 grade 3) 5 years ago.

Now I have to get back on my food plan and exercise plan which I fell off of over the holidays. Gained 2/3 of the weight I lost last year back. I want to get back where I was. I felt a lot better at the lower weight.

Peace,

Todd
Steve.Adam's picture
Steve.Adam
Posts: 463
 Joined: Oct 2016
Jan 16, 2018 - 6:57 pm

Three years NED sounds pretty good to me. Long may it continue.

I also have some weight to lose (again).

Steve.
Wehavenotimeatall
Posts: 489
 Joined: Aug 2017
Jan 16, 2018 - 5:57 pm

a) That is brilliant news... so happy for you...the relief must be great

 

 b) that is a massive change in the %...I pray.. it will continue..

 

c) are you scheduled for Life scans.

 

Annie
todd121's picture
todd121
Posts: 1449
 Joined: Dec 2012
Jan 17, 2018 - 7:52 pm

Thanks! What are Life scans?

My doc says he has no plans to ever stop this. I'm less thrilled about that. I'd like to move to 4 months now, but he doesn't agree. I moved this one on my own. Eventually, I'd like to go to 6 months at least. It's a 1-2 hour drive each way to see them and I have to go twice to do this, so it means missing 2 days of work every 3 months.

Todd
Wehavenotimeatall
Posts: 489
 Joined: Aug 2017
Jan 17, 2018 - 9:50 pm

That’s what I meant... scans for life

oh dear that is a burden but  it must take some of the fear away( in a funny reverse way)

you have a good guy on your case

Annie

 
sandy23
Posts: 143
 Joined: Jan 2017
Jan 16, 2018 - 6:09 pm

That's awesome!!  Thanks for sharing the wonderful news!!
stevez
Posts: 51
 Joined: Dec 2017
Jan 16, 2018 - 6:57 pm

Great news!  I too am getting back to my pre-holiday, pre-surgery weight.  I've gained 10 pounds and don't like it at all.  Happy to hear your news Todd.
Hd67xlch's picture
Hd67xlch
Posts: 152
 Joined: Apr 2016
Jan 16, 2018 - 6:59 pm

congratulations, hope you get many more NEDs.
AnnissaP's picture
AnnissaP
Posts: 632
 Joined: Sep 2017
Jan 16, 2018 - 7:02 pm

Whew!! Congratulations and great news. Keep on keepin on!!
foxhd's picture
foxhd
Posts: 3183
 Joined: Oct 2011
Jan 16, 2018 - 7:29 pm

I think by now you know that I expect a long future for you. No doubts whatsoever. I wish i could place a bet. It has always been a sure thing.
daisybud's picture
daisybud
Posts: 513
 Joined: Jan 2016
Jan 16, 2018 - 7:55 pm

Great news!
Tapman63's picture
Tapman63
Posts: 137
 Joined: Dec 2017
Jan 16, 2018 - 9:09 pm

Congratulations!
Retcenturion's picture
Retcenturion
Posts: 240
 Joined: Mar 2017
Jan 16, 2018 - 9:25 pm

Congratulations on the good news.
ImNotDeadYet's picture
ImNotDeadYet
Posts: 244
 Joined: Apr 2017
Jan 16, 2018 - 10:02 pm

Congrats on the three-year NED!
Jobie123's picture
Jobie123
Posts: 32
 Joined: Dec 2017
Jan 17, 2018 - 3:42 am

This is amazing news ! So nice to here some good news !

i had my results on my chest scan on Monday and they have said they are sure it’s not a met from the lung and some inflammation from somewhere , so I’m being forwarded to see a lung specialist ! All part of the rollercoaster I guess !!!
Canadian Sandy's picture
Canadian Sandy
Posts: 721
 Joined: Jul 2016
Jan 17, 2018 - 4:19 am

Great news! Congratulations.
BoondockSaint's picture
BoondockSaint
Posts: 242
 Joined: Mar 2017
Jan 17, 2018 - 10:41 am

Awesome news my friend!! Best thing I've read all morning.
Krissyd73's picture
Krissyd73
Posts: 9
 Joined: Dec 2017
Jan 17, 2018 - 10:51 am

Wonderful news!!! 
klj15's picture
klj15
Posts: 38
 Joined: Jun 2017
Jan 17, 2018 - 10:52 am

Congratulations!
foroughsh's picture
foroughsh
Posts: 779
 Joined: Oct 2014
Jan 17, 2018 - 11:12 am

Wonderful news Todd

 
MelBlessed's picture
MelBlessed
Posts: 71
 Joined: Aug 2017
Jan 17, 2018 - 11:39 am

Great News! Ugh the after holidays weight gain, always a problem here.  Good luck!
Cybball
Posts: 111
 Joined: Nov 2017
Jan 17, 2018 - 1:12 pm

Well done!  Super excited for your news.  That has to feel great hearing that.
Angie1496's picture
Angie1496
Posts: 154
 Joined: Sep 2017
Jan 17, 2018 - 2:48 pm

WOnderful news!  I hope to hear NED in March as well.!
Allochka's picture
Allochka
Posts: 969
 Joined: Nov 2014
Jan 17, 2018 - 4:39 pm

Congratulations! Your granddaughter needs her grandad, and you'll be healthy and around for her for a long-long time! :-)
donna_lee's picture
donna_lee
Posts: 1015
 Joined: Feb 2009
Jan 17, 2018 - 6:32 pm

So glad to hear the news.  It's what keeps us all with our fingers crossed for the rest of the gang.  May all news be good news in 2018.  And that's a motion we all can vote pro on.

Hugs to you,

donna_lee
Max57's picture
Max57
Posts: 174
 Joined: Mar 2015
Jan 17, 2018 - 6:53 pm

Great news! May all be blessed with NED
Rockspin
Posts: 77
 Joined: Aug 2017
Jan 17, 2018 - 7:48 pm

Congratulations! Great news!
todd121's picture
todd121
Posts: 1449
 Joined: Dec 2012
Jan 17, 2018 - 7:56 pm

Appreciate all the notes. We all need all the good news we can get. I always look forward to hearing it here.

Hugs,

Todd
stub1969's picture
stub1969
Posts: 920
 Joined: Jul 2016
Jan 17, 2018 - 9:58 pm

The kind of news we like to hear.  Congratulations, Todd.  May you have many years of NED.

Stub
marosa's picture
marosa
Posts: 333
 Joined: Feb 2015
Jan 17, 2018 - 11:55 pm

Very happy to hear the good news and to hear from you!  Now get to work in lossing those extra pounds!

 Donna_Lee, love your new pic!Kiss

 
Pandabear1011
Posts: 123
 Joined: Jun 2014
Jan 18, 2018 - 8:24 am

Awesome news, Todd!! And, that lower recurrence % has to make you feel good..:)  Wishing you the best ...~Panda~
adman's picture
adman
Posts: 338
 Joined: Jul 2012
Jan 18, 2018 - 9:04 am

such great news; Continued great news and health.

God Bless! 
lobbyist0724's picture
lobbyist0724
Posts: 470
 Joined: Sep 2016
Jan 18, 2018 - 11:17 am

Gongrats, we all know it won't get to 0%, but hope the doctor will give you a lower number everytime you meet him!
rhominator's picture
rhominator
Posts: 233
 Joined: Nov 2015
Jan 18, 2018 - 12:35 pm

Congrats, Todd!  :-)

I get my quarterly scan in 10 days. I hope mine is as good a yours.
repaid
Posts: 17
 Joined: Dec 2017
Jan 18, 2018 - 1:14 pm

Great news. Very happy for you. My next scans are on the 26th.
siloman
Posts: 9
 Joined: Jan 2018
Jan 19, 2018 - 7:05 pm

i just had my nephrectomy on dec 20th.....i have lost 14 pounds over the holidays...unfortunatly not the way i wanted too....glad to hear your good news......hope my first scan is as good in march.....best of luck to you  

hardo718's picture
hardo718
Posts: 853
 Joined: Jan 2016
Jan 21, 2018 - 10:10 am

Donna~
Skagway Jack's picture
Skagway Jack
Posts: 224
 Joined: Oct 2013
Jan 23, 2018 - 7:00 pm

Great news Todd!  Ya gotta like them odds!

 
Jojo61's picture
Jojo61
Posts: 1310
 Joined: Oct 2013
Jan 23, 2018 - 8:01 pm

Way to go Todd! That is awesome news!

Big hugs

Jojo
Hoss79's picture
Hoss79
Posts: 78
 Joined: Nov 2017
Jan 23, 2018 - 11:22 pm

Awesome news!!
angec's picture
angec
Posts: 924
 Joined: Mar 2012
Jan 24, 2018 - 12:36 am

Awesome news Todd! you made my night! keep it up!

Ange
Mighty Frog's picture
Mighty Frog
Posts: 152
 Joined: Jul 2017
Jan 24, 2018 - 1:55 am

Glad to hear that! Yes... being lighter is Great! Keep it up! Man.... U can do it!
Karen8873
Posts: 35
 Joined: Dec 2017
Feb 20, 2018 - 10:10 pm

Thats wonderful news ! 
CRashster's picture
CRashster
Posts: 241
 Joined: Mar 2017
Feb 21, 2018 - 11:43 am

NED is always good.
DreamOnDeb
Posts: 112
 Joined: May 2017
Feb 21, 2018 - 3:18 pm

Congratulations, Todd!!!
adman's picture
adman
Posts: 338
 Joined: Jul 2012
Feb 21, 2018 - 4:01 pm

congrats; awesome news. Three letters I never grow tired of seeing in that order :)

God Bless! 
Trucker1's picture
Trucker1
Posts: 82
 Joined: Sep 2017
Feb 21, 2018 - 9:00 pm

SWEET!!
klj15's picture
klj15
Posts: 38
 Joined: Jun 2017
Feb 22, 2018 - 3:23 pm

Comgrats! That's great news!
Subscribe to Comments for "NED"

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2019 © Cancer Survivors Network