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Jan 16, 2018 - 5:15 pm
Wanted to share my good news. I had NED yesterday for my scans. It's been 3 years since my adrenal tumor. I thought ya'll might be interested in my doc's prognosis. When I had the metastasis to my adrenal 3 years ago, doctor said I had a 66% chance of it coming back somewhere. I got another opinion and the other oncologist said somewhere between 50-66% chance. My doc hasn't been willing to give me a percentage the past few years, but yesterday I pushed him a little and he said the risk is more like 10-20% now. I'm quite happy with that. It's similar to my risk after my nephrectomy (which was stage 3 grade 3) 5 years ago. Now I have to get back on my food plan and exercise plan which I fell off of over the holidays. Gained 2/3 of the weight I lost last year back. I want to get back where I was. I felt a lot better at the lower weight. Peace, Todd |
Joined: Oct 2016
Three Years NED
Three years NED sounds pretty good to me. Long may it continue.
I also have some weight to lose (again).
Steve.
Joined: Aug 2017
Wow
a) That is brilliant news... so happy for you...the relief must be great
b) that is a massive change in the %...I pray.. it will continue..
c) are you scheduled for Life scans.
Annie
Joined: Dec 2012
Life scans?
Thanks! What are Life scans?
My doc says he has no plans to ever stop this. I'm less thrilled about that. I'd like to move to 4 months now, but he doesn't agree. I moved this one on my own. Eventually, I'd like to go to 6 months at least. It's a 1-2 hour drive each way to see them and I have to go twice to do this, so it means missing 2 days of work every 3 months.
Todd
Joined: Aug 2017
Sorry
That’s what I meant... scans for life
oh dear that is a burden but it must take some of the fear away( in a funny reverse way)
you have a good guy on your case
Annie
Joined: Jan 2017
That's awesome!! Thanks for
That's awesome!! Thanks for sharing the wonderful news!!
Joined: Dec 2017
Congratulations!
Great news! I too am getting back to my pre-holiday, pre-surgery weight. I've gained 10 pounds and don't like it at all. Happy to hear your news Todd.
Joined: Apr 2016
Great news.........
congratulations, hope you get many more NEDs.
Joined: Sep 2017
Whew!! Congratulations and
Whew!! Congratulations and great news. Keep on keepin on!!
Joined: Oct 2011
Todd,
I think by now you know that I expect a long future for you. No doubts whatsoever. I wish i could place a bet. It has always been a sure thing.
Joined: Jan 2016
Great news
Great news!
Joined: Dec 2017
Awesome News!
Congratulations!
Joined: Mar 2017
Congratulations
Congratulations on the good news.
Joined: Apr 2017
That's awesome!
Congrats on the three-year NED!
Joined: Dec 2017
This is amazing news ! So
This is amazing news ! So nice to here some good news !
i had my results on my chest scan on Monday and they have said they are sure it’s not a met from the lung and some inflammation from somewhere , so I’m being forwarded to see a lung specialist ! All part of the rollercoaster I guess !!!
Joined: Jul 2016
Great news! Congratulation.
Great news! Congratulations.
Joined: Mar 2017
Awesome news my friend!! Best
Awesome news my friend!! Best thing I've read all morning.
Joined: Dec 2017
Wonderful news!!!
Wonderful news!!!
Joined: Jun 2017
Congratulations!
Congratulations!
Joined: Oct 2014
Wonderful news Todd
Wonderful news Todd
Joined: Aug 2017
Congratulations
Great News! Ugh the after holidays weight gain, always a problem here. Good luck!
Joined: Nov 2017
Well done! Super excited for
Well done! Super excited for your news. That has to feel great hearing that.
Joined: Sep 2017
WOnderful news! I hope to
WOnderful news! I hope to hear NED in March as well.!
Joined: Nov 2014
Congratulations! Your
Congratulations! Your granddaughter needs her grandad, and you'll be healthy and around for her for a long-long time! :-)
Joined: Feb 2009
Let me add to the cheers!!
So glad to hear the news. It's what keeps us all with our fingers crossed for the rest of the gang. May all news be good news in 2018. And that's a motion we all can vote pro on.
Hugs to you,
donna_lee
Joined: Mar 2015
Congratulations
Great news! May all be blessed with NED
Joined: Aug 2017
Congratulations! Great news!
Congratulations! Great news!
Joined: Dec 2012
Thanks!
Appreciate all the notes. We all need all the good news we can get. I always look forward to hearing it here.
Hugs,
Todd
Joined: Jul 2016
Awesome
The kind of news we like to hear. Congratulations, Todd. May you have many years of NED.
Stub
Joined: Feb 2015
Great news Todd!
Very happy to hear the good news and to hear from you! Now get to work in lossing those extra pounds!
Donna_Lee, love your new pic!
Joined: Jun 2014
Awesome news, Todd!! And,
Awesome news, Todd!! And, that lower recurrence % has to make you feel good..:) Wishing you the best ...~Panda~
Joined: Jul 2012
Great News; continued good health!
such great news; Continued great news and health.
God Bless!
Joined: Sep 2016
Gongrats, we all know it won
Gongrats, we all know it won't get to 0%, but hope the doctor will give you a lower number everytime you meet him!
Joined: Nov 2015
Cool!
Congrats, Todd! :-)
I get my quarterly scan in 10 days. I hope mine is as good a yours.
Joined: Dec 2017
Great
Great news. Very happy for you. My next scans are on the 26th.
Joined: Jan 2018
good news
i just had my nephrectomy on dec 20th.....i have lost 14 pounds over the holidays...unfortunatly not the way i wanted too....glad to hear your good news......hope my first scan is as good in march.....best of luck to you
Joined: Jan 2016
God Bless!
Donna~
Joined: Oct 2013
Excellent
Great news Todd! Ya gotta like them odds!
Joined: Oct 2013
Way to go Todd! That is
Way to go Todd! That is awesome news!
Big hugs
Jojo
Joined: Nov 2017
Awesome news!!
Awesome news!!
Joined: Mar 2012
Awesome news Todd! you made
Awesome news Todd! you made my night! keep it up!
Ange
Joined: Jul 2017
Great News!
Glad to hear that! Yes... being lighter is Great! Keep it up! Man.... U can do it!
Joined: Dec 2017
Congrats!
Thats wonderful news !
Joined: Mar 2017
Congrats sir
NED is always good.
Joined: May 2017
Congratulations, Todd!!!
Congratulations, Todd!!!
Joined: Jul 2012
Great News...
congrats; awesome news. Three letters I never grow tired of seeing in that order :)
God Bless!
Joined: Sep 2017
NED!
SWEET!!
Joined: Jun 2017
Comgrats! That's great news!
Comgrats! That's great news!