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NED

todd121's picture
todd121
Posts: 1425
Joined: Dec 2012
Jan 16, 2018 - 5:15 pm

Wanted to share my good news. I had NED yesterday for my scans. It's been 3 years since my adrenal tumor.

I thought ya'll might be interested in my doc's prognosis. When I had the metastasis to my adrenal 3 years ago, doctor said I had a 66% chance of it coming back somewhere. I got another opinion and the other oncologist said somewhere between 50-66% chance.

My doc hasn't been willing to give me a percentage the past few years, but yesterday I pushed him a little and he said the risk is more like 10-20% now. I'm quite happy with that. It's similar to my risk after my nephrectomy (which was stage 3 grade 3) 5 years ago.

Now I have to get back on my food plan and exercise plan which I fell off of over the holidays. Gained 2/3 of the weight I lost last year back. I want to get back where I was. I felt a lot better at the lower weight.

Peace,

Todd
Steve.Adam's picture
Steve.Adam
Posts: 460
 Joined: Oct 2016
Jan 16, 2018 - 6:57 pm

Three years NED sounds pretty good to me. Long may it continue.

I also have some weight to lose (again).

Steve.
Wehavenotimeatall
Posts: 479
 Joined: Aug 2017
Jan 16, 2018 - 5:57 pm

a) That is brilliant news... so happy for you...the relief must be great

 

 b) that is a massive change in the %...I pray.. it will continue..

 

c) are you scheduled for Life scans.

 

Annie
todd121's picture
todd121
Posts: 1425
 Joined: Dec 2012
Jan 17, 2018 - 7:52 pm

Thanks! What are Life scans?

My doc says he has no plans to ever stop this. I'm less thrilled about that. I'd like to move to 4 months now, but he doesn't agree. I moved this one on my own. Eventually, I'd like to go to 6 months at least. It's a 1-2 hour drive each way to see them and I have to go twice to do this, so it means missing 2 days of work every 3 months.

Todd
Wehavenotimeatall
Posts: 479
 Joined: Aug 2017
Jan 17, 2018 - 9:50 pm

That’s what I meant... scans for life

oh dear that is a burden but  it must take some of the fear away( in a funny reverse way)

you have a good guy on your case

Annie

 
sandy23
Posts: 137
 Joined: Jan 2017
Jan 16, 2018 - 6:09 pm

That's awesome!!  Thanks for sharing the wonderful news!!
stevez
Posts: 51
 Joined: Dec 2017
Jan 16, 2018 - 6:57 pm

Great news!  I too am getting back to my pre-holiday, pre-surgery weight.  I've gained 10 pounds and don't like it at all.  Happy to hear your news Todd.
Hd67xlch's picture
Hd67xlch
Posts: 143
 Joined: Apr 2016
Jan 16, 2018 - 6:59 pm

congratulations, hope you get many more NEDs.
AnnissaP's picture
AnnissaP
Posts: 623
 Joined: Sep 2017
Jan 16, 2018 - 7:02 pm

Whew!! Congratulations and great news. Keep on keepin on!!
foxhd's picture
foxhd
Posts: 3183
 Joined: Oct 2011
Jan 16, 2018 - 7:29 pm

I think by now you know that I expect a long future for you. No doubts whatsoever. I wish i could place a bet. It has always been a sure thing.
daisybud's picture
daisybud
Posts: 460
 Joined: Jan 2016
Jan 16, 2018 - 7:55 pm

Great news!
Tapman63's picture
Tapman63
Posts: 136
 Joined: Dec 2017
Jan 16, 2018 - 9:09 pm

Congratulations!
Retcenturion's picture
Retcenturion
Posts: 240
 Joined: Mar 2017
Jan 16, 2018 - 9:25 pm

Congratulations on the good news.
ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
 Joined: Apr 2017
Jan 16, 2018 - 10:02 pm

Congrats on the three-year NED!
Jobie123's picture
Jobie123
Posts: 32
 Joined: Dec 2017
Jan 17, 2018 - 3:42 am

This is amazing news ! So nice to here some good news !

i had my results on my chest scan on Monday and they have said they are sure it’s not a met from the lung and some inflammation from somewhere , so I’m being forwarded to see a lung specialist ! All part of the rollercoaster I guess !!!
Canadian Sandy's picture
Canadian Sandy
Posts: 508
 Joined: Jul 2016
Jan 17, 2018 - 4:19 am

Great news! Congratulations.
BoondockSaint's picture
BoondockSaint
Posts: 241
 Joined: Mar 2017
Jan 17, 2018 - 10:41 am

Awesome news my friend!! Best thing I've read all morning.
Krissyd73's picture
Krissyd73
Posts: 9
 Joined: Dec 2017
Jan 17, 2018 - 10:51 am

Wonderful news!!! 
klj15's picture
klj15
Posts: 38
 Joined: Jun 2017
Jan 17, 2018 - 10:52 am

Congratulations!
foroughsh's picture
foroughsh
Posts: 775
 Joined: Oct 2014
Jan 17, 2018 - 11:12 am

Wonderful news Todd

 
MelBlessed's picture
MelBlessed
Posts: 71
 Joined: Aug 2017
Jan 17, 2018 - 11:39 am

Great News! Ugh the after holidays weight gain, always a problem here.  Good luck!
Cybball
Posts: 111
 Joined: Nov 2017
Jan 17, 2018 - 1:12 pm

Well done!  Super excited for your news.  That has to feel great hearing that.
Angie1496's picture
Angie1496
Posts: 154
 Joined: Sep 2017
Jan 17, 2018 - 2:48 pm

WOnderful news!  I hope to hear NED in March as well.!
Allochka's picture
Allochka
Posts: 869
 Joined: Nov 2014
Jan 17, 2018 - 4:39 pm

Congratulations! Your granddaughter needs her grandad, and you'll be healthy and around for her for a long-long time! :-)
donna_lee's picture
donna_lee
Posts: 900
 Joined: Feb 2009
Jan 17, 2018 - 6:32 pm

So glad to hear the news.  It's what keeps us all with our fingers crossed for the rest of the gang.  May all news be good news in 2018.  And that's a motion we all can vote pro on.

Hugs to you,

donna_lee
Max57's picture
Max57
Posts: 158
 Joined: Mar 2015
Jan 17, 2018 - 6:53 pm

Great news! May all be blessed with NED
Rockspin
Posts: 77
 Joined: Aug 2017
Jan 17, 2018 - 7:48 pm

Congratulations! Great news!
todd121's picture
todd121
Posts: 1425
 Joined: Dec 2012
Jan 17, 2018 - 7:56 pm

Appreciate all the notes. We all need all the good news we can get. I always look forward to hearing it here.

Hugs,

Todd
stub1969's picture
stub1969
Posts: 796
 Joined: Jul 2016
Jan 17, 2018 - 9:58 pm

The kind of news we like to hear.  Congratulations, Todd.  May you have many years of NED.

Stub
marosa's picture
marosa
Posts: 332
 Joined: Feb 2015
Jan 17, 2018 - 11:55 pm

Very happy to hear the good news and to hear from you!  Now get to work in lossing those extra pounds!

 Donna_Lee, love your new pic!Kiss

 
Pandabear1011
Posts: 123
 Joined: Jun 2014
Jan 18, 2018 - 8:24 am

Awesome news, Todd!! And, that lower recurrence % has to make you feel good..:)  Wishing you the best ...~Panda~
adman's picture
adman
Posts: 338
 Joined: Jul 2012
Jan 18, 2018 - 9:04 am

such great news; Continued great news and health.

God Bless! 
lobbyist0724's picture
lobbyist0724
Posts: 387
 Joined: Sep 2016
Jan 18, 2018 - 11:17 am

Gongrats, we all know it won't get to 0%, but hope the doctor will give you a lower number everytime you meet him!
rhominator's picture
rhominator
Posts: 232
 Joined: Nov 2015
Jan 18, 2018 - 12:35 pm

Congrats, Todd!  :-)

I get my quarterly scan in 10 days. I hope mine is as good a yours.
repaid
Posts: 17
 Joined: Dec 2017
Jan 18, 2018 - 1:14 pm

Great news. Very happy for you. My next scans are on the 26th.
siloman
Posts: 9
 Joined: Jan 2018
Jan 19, 2018 - 7:05 pm

i just had my nephrectomy on dec 20th.....i have lost 14 pounds over the holidays...unfortunatly not the way i wanted too....glad to hear your good news......hope my first scan is as good in march.....best of luck to you  

hardo718's picture
hardo718
Posts: 853
 Joined: Jan 2016
Jan 21, 2018 - 10:10 am

Donna~
Skagway Jack's picture
Skagway Jack
Posts: 221
 Joined: Oct 2013
Jan 23, 2018 - 7:00 pm

Great news Todd!  Ya gotta like them odds!

 
Jojo61's picture
Jojo61
Posts: 1310
 Joined: Oct 2013
Jan 23, 2018 - 8:01 pm

Way to go Todd! That is awesome news!

Big hugs

Jojo
Hoss79's picture
Hoss79
Posts: 78
 Joined: Nov 2017
Jan 23, 2018 - 11:22 pm

Awesome news!!
angec's picture
angec
Posts: 923
 Joined: Mar 2012
Jan 24, 2018 - 12:36 am

Awesome news Todd! you made my night! keep it up!

Ange
Mighty Frog's picture
Mighty Frog
Posts: 138
 Joined: Jul 2017
Jan 24, 2018 - 1:55 am

Glad to hear that! Yes... being lighter is Great! Keep it up! Man.... U can do it!
Karen8873
Posts: 35
 Joined: Dec 2017
Feb 20, 2018 - 10:10 pm

Thats wonderful news ! 
CRashster's picture
CRashster
Posts: 230
 Joined: Mar 2017
Feb 21, 2018 - 11:43 am

NED is always good.
DreamOnDeb
Posts: 112
 Joined: May 2017
Feb 21, 2018 - 3:18 pm

Congratulations, Todd!!!
adman's picture
adman
Posts: 338
 Joined: Jul 2012
Feb 21, 2018 - 4:01 pm

congrats; awesome news. Three letters I never grow tired of seeing in that order :)

God Bless! 
Trucker1's picture
Trucker1
Posts: 82
 Joined: Sep 2017
Feb 21, 2018 - 9:00 pm

SWEET!!
klj15's picture
klj15
Posts: 38
 Joined: Jun 2017
Feb 22, 2018 - 3:23 pm

Comgrats! That's great news!
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