My mom was diagnosed, looking for some support...

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simone22
simone22 Member Posts: 4
edited January 2018 in Breast Cancer #1

Hello all of you lovely warriors!

My name is Simone and I'm so excited to find this great forum! I'd love to connect with anyone who went through this bad part of life and hopefully, share some experience.

I am 22y old and my mom was diagnosed with cancer that has pretty much spread throughout her entire body.

Have you ever had one of those bad dreams where it feels like you are trying to wake yourself up? Sure you did. That's how I feel right now. Like I'm drowning. All of this feels surreal, I'm still pretty much in shock I guess. But at the same time I've never been so scared in my entire life.

They started chemo right away and she has already lost her thick long locks of hair. Ugh.
But, the hope remains, I think. As long as she's alive, we're gonna fight this thing to the end.

I'm exploring natural solutions, testing them with my mom and we've already found some pretty interesting stuff, so fingers crossed. I'll share my findings and updates here, and hopefully someone will benefit from my findings.

If anyone here feels compelled to talk to me, please do. I'd love to chat with you.

Take care and never, ever lose hope!

Yours truly :)

Comments

  • Beepositive
    Beepositive Member Posts: 259 Member
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    simone22

    Hello Simone22 , I know your mom is very grateful you are there with her for support ..I know you may feel you cant do anything ..but the love and support is Wonderful..a lot of people do not have family around or support of family ...

    I will keep her and you in my Prayers with everything!  never give up..keep fighting!!

    GOD BLESS

    Beepositive  Smile

  • Apaugh
    Apaugh Member Posts: 850 Member
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    Simone

    I am sorry you are dealing with this.  I am sorry your mama is suffering.  Life just is not fair many times.  Beepositive is so right.  Take this time to love love love your mother.  She needs it.  Even the tiniest of things are helpful to her.  I am a Breast Cancer victim but prior to mine, I went through 15 years of cancer with my mom.  Over that time period she had 5 different types.  At times (many) I felt so helpless, wanting to "fix it" .  You cant.  but what you can do is be there for her.  Help her through all the trials and tribulations.  I spent many a night in a hospital chair by her bed, surgeries, back and forth to doc appointments.  It is good to be the other person when talking to the doc because the patient has a hard time sometimes hearing what the doc says.  and two sets of ears are better than one.  Sometimes your the advocate.  Sometimes your the leaning post and even the punching bag at times of frustration.  Its all ok.  My mom would sometime try to get me to be mad at her.  She figured if I was mad I would not miss her if she would pass.  I just let her do it and loved her out of her depression the best I could.    We had many long talks, tears and laughter.  I never regret a day of the time I spent with mom.  You only get one real mom.  Dont think of the time she has left as dread, think of this time as opportunity to really enjoy her.  When my mom had good days, we went on what I called little field trips to places close and easy for her to get around in.  Even if that meant the first two isles of Menards.  She also loved going out to dinner and for the last five years of her life, she ate her dessert first.  I let her and enjoyed watching her enjoy it.     But also know this dear child,  take time for yourself and be kind to yourself.  Get that mani/pedi, buy that new dress, go out on a date now and then.  Your mother wants to know you are going to be ok.  It is important to us moms to know are kids are going to be ok. 

    Prayers and hugs going up to you both,

    Hugs,

    Annie

  • Beepositive
    Beepositive Member Posts: 259 Member
    edited January 2018 #4
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    you are sooooo right Annie, we worry more about our kids than ourselves being ok..the what if ..how will she do...will kids be ok...you want them to be able to do for themselves..i agree with you for children , family members..take time and take care of yourself as Annie say is so true ..we want our family to be Alright..I told my Dad a few years ago..:dont worry about us, we will be fine" he needed to hear that!

    PRAYERS AND HUGS TO ALL!!

    BEEPOSITIVE

  • ruthannsl
    ruthannsl Member Posts: 2
    edited January 2018 #5
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    Breast cancer diagnosis

    Hi Simone22 

    I am a 23 year breast cancer survivor. I am glad you are looking at some natural ways for your Mom to fight this battle. I was 42 when I had my first diagnosis. Some of the things your Mom should do is make sure she is drinking filtered water . I drink Spring Water but I cannot get it in glass bottles anymore and I am wary of plastic. She needs to drink green tea and eat lots of cruciferous vegetables. It is very important to keep her faith and trust in the Lord throughout the journey. He is faithful. Im glad you are there for your Mom and can be her advocate. I truly believe that God has given us some natural things which can help in our battle. Tumeric and flax seed and flax oil and eating organic. I have never done conventional treatment methods, even though this year I was told I was stage IV and could not be cured. I do extensive research. I hope all women who are diagnosed will question their options. I am a firm believer that breast cancer can be spread through core needle biopsy. I urge all women who have a lump get an excisional biopsy where the entire tumor is removed. Also, Pet/Ct scans are not always accurate as the proper protocol is often not followed. There are many things that are not good in the medical arena. I pray you will stay strong and be there and I pray your Mom will be healed. I am praying for you. 

     

  • ronald123
    ronald123 Member Posts: 2
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    Breast cancer tends to spontaneously regress...

    Your oncologist won't inform you about the following PubMed articles, so you better educate yourself:

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3320224/ (PubMed 3320224 Disappearing breast cancer)

    "Therefore, for every 100 nonpalpable cancers found through mammography alone, 54 would presumably have gone away (174 / 324 × 100 = 54%)."

    https://www.ncbi.nlm.nih.gov/pubmed/21996169 (PMID 21996169 Natural history of breast cancers detected in the Swedish mammography screening programme: a cohort study)

    "Because the cumulative incidence among controls did not reach that of the screened group, we believe that many invasive breast cancers detected by repeated mammography screening do not persist to be detected by screening at the end of 6 years, suggesting that the natural course of many of the screen-detected invasive breast cancers is to spontaneously regress."

    Wish you and your mother all the best!

    Ronald

  • purple1234
    purple1234 Member Posts: 1
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    Simone,

    Simone,

     

    I feel some of your pain. My mom too was recently diagnosed with breast cancer. Started off as a small spot on her mamogram that they wanted her tog et an ultrasound on, but her OBGYN thought it was probably nothing. Well, it was something...she has 2 cancer spots in one breast. They're both small but the cells are grade 3 and she has the triple negative receptors. So the original plan was lumpectomy, followed by chemo and radiation. Her lmyph nodes came back clear after the first surgery but the margins of the one spot didn't, so she had a second surgery recently to take out more tissue. We just heardback this week they still didn't get it all. So she meets with the surgeon tomorrow to decide between another lumpectomy or mastectomy. It's just so hard seeing her in emotional and physical pain. Some days I feel like I've accepted this is where we're at, and other times it seems surreal. I wish I could take this all away for her and for others.