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So upset
 |
Jan 02, 2018 - 2:21 am
So looking for people to give me more positive stories ! My kidney cancer was T3a NO MO and I had a radical nephrectomy, just had a chest X-ray on a 4mm lung nodule to check for growth ! I had a private message yesterday from a lady saying basically with your pathology report you’ll be lucky if you get 2 years remission ! I’m not sure statistically if this is true but would love some positive stories x |
Joined: Oct 2016
Hi again Jo
My story is very positive, but it is a Stage 1 story so maybe not what you want to hear.
But you must understand that everyone here is afraid of recurrance, even lucky Stage 1s like me. For that reason we tend to be cautious in our optimism. Cautious optimism is not pessimism.
Everyone's story is different. Their future is not your future. You are living your own life and meeting your own destiny.
We can only do our best with the situation we find ourselves in.
That's all anyone can do.
Steve.
Joined: Dec 2017
Hi thanks for the reply means
Hi thanks for the reply means a lot x
Joined: Mar 2017
in my opinion
She never should have said that. No one can tell you that.
Joined: Dec 2017
Thanks it’s really upset me
Thanks it’s really upset me xx
Joined: Aug 2017
Oh dear
who was this person
What qualifications have they got to tell you this
annie
Joined: Dec 2017
It was a lady on a mcmillan
It was a lady on a mcmillan forum ! I know my size and staging make it aggresive etc but to get a private message like that flawed me
Joined: Apr 2015
That is not true. There are
That is not true. There are several people with stage 3a with no recurrence. The chances are greater than stage 1, but it all depends on the location, type, etc, your body. Noone should ever say that and they are wrong.
Joined: Dec 2017
Thanks for that !! I’m only
Thanks for that !! I’m only just getting my head around it all and still getting over the radical nephrectomy its so nice to have some nice replies !!
Joined: Sep 2016
Hi Jobie, that is just
Hi Jobie, that is just horrible. The prognosis is not easy to determine as we are all different. Definitely not only by the T stage, which is why sometimes even the specialist doesn't want to tell you the percentage. Since it is based on the statisitcs with patients that are not having the same specifics. Perhaps you can paste the message from the other member here (without the username) and some with similar situation can comment on it.
Wish you a healthy and happy New Year.
P.S. please fill out your "My CSN Space" so we can see more of your experience and we can commet accordingly.
Joined: Dec 2017
Thanks how do I fill in my
Thanks how do I fill in my CSN , sorry so new to this !!
Joined: Sep 2016
There is link on top of the
There is link on top of the page right under the logo section
"Click here to create or update your member "About Me" page"
Joined: Dec 2013
Appalling
who ever felt compelled to send you a private message with a dismal (and unqualified) take on your cancer should be outed. Suspect that it is a hoax and a very sick person.
don’t blame you for being upset but please know that it is unlikely that it’s someone from this forum.
Sarah
Joined: Oct 2011
Jobie,
I guess that person hasn't heard about me and a ton of other survivors who view living with cancer as a treatable chronic disease. Maybe she has a miserable life. Maybe she has a chronic disease. Maybe she feels better about herself sending negative vibes. Misery loves company you know. Hang around here. Success loves company too.
Joined: Dec 2017
Thanks for all the lovely
Thanks for all the lovely messages feel so much better to be speaking to such lovely people x
Joined: Sep 2017
Hi Jobie. Try not to even
Hi Jobie. Try not to even entertain that thought or message. The do not know your body and they def are not qualified to say even one word. Welcome!!!!!!!
Joined: Feb 2015
Welcome Jobie!
Beware of negative vibes! Stick around. You will find strong, caring, fun and positive people. Wishing you a very good 2018
Joined: Oct 2017
Same psthology
My Dr was very positive about the results-clear margins-no lymphnodes-after a radical nephrectomy- grade 2 and he wants to see me in 6 months-I trust him I hope he's being cautious enough
Joined: Sep 2008
You will be fine
I just want to throw my two cents of info in here -I am in Total and Complete agreement with all the other members who told you not to event think about that "persons" comments.You just had a radical nephrectomy and the surgeons reportd clear margins and no lymph node involvement, etc. All of that sounds super positive to me in terms of prognosis. No one has a crystal ball about what could potentially happen. I asked a top kidney cancer specialist for a prognosis, and he said "I dont give them-whenver I do I am always wrong"-so how some massage tech could even come up with that is ridiculous in itself and very unprofessional in all ways. Some advice here-keep on moving forward. Follow your doctors advice for future check up and all will be fine. Start the new year wih all good thought and a clean slate! Enjoy every minute.
Joined: Dec 2017
Thanks everyone I feel so
Thanks everyone I feel so much better after all these reads ! A happy and healthy 2018 to you all
Joined: Dec 2017
Oh my gosh Jobie, shame on
Oh my gosh Jobie, shame on them!!!! I am so sorry they did that. Everyone is unique and what one may have.... one may not. I am pretty new to the group and have found everyone to be so kind and positive. Welcome!!!
Joined: Mar 2014
Personally, I would block
Personally, I would block that woman. Listen to your doctors, not self-appointed seers of the future. I'm so mad just reading that; what an idiot she must be.
Joined: Dec 2017
Hi APny thanks for your reply
Hi APny thanks for your reply I’ve just read your profil and picked up about lung nodules have you had any growths on them since the scan ?
Joined: Mar 2014
Jobie, I just had it CT
Jobie, I just had it CT scanned in November so next follow up is in October, 2018. Hopefully there'll be no growth. Keeping fingers crossed that it's just "normal" nodules like many people get.
Joined: Oct 2014
Jobie, I hope this nodule is
Jobie, I hope this nodule is benign as many other non cancer survivors hav
I personally know someone who was diagnosed as rcc stage four patient 16-17 years ago. He has his ups and downs but he is alive. No one can say such cruel things as that lady said.
Stay positive
Forough