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Stage IV with Met to Liver and Lungs next steps

Csuc02grad
Posts: 6
Joined: Nov 2017

Hey there CSN Family, 

My wife had to push her 3 treatment due to low counts. They will give her a shot 24 hours after this next treatment hoping that will allow her to continue the Chemo regimin. 

Currently, she is getting FULFOXIRI with Avastin, we elected to through everything at this. 

As for symptom management looking for any advice on upset stomach. We have some weed that we might try...thoughts? 

As for Cancer Centers we are going down to MD Anderson for a day of scans and treatment review plan, we are in Chicago. Any advice when meeting with MD Anderson? 

Also any other advice you can give would be helpful. 

Thanks CSN family. 

csuc02grad

Annabelle41415's picture
Annabelle41415
Posts: 6220
Joined: Feb 2009

Sorry for what your wife is going through.  I'm not able to help you but a lot of people on this board has been through MD Anderson and maybe they will chime in.  The shots can do wonders to help her get through treatment.  It's hard when you take treatment and then have to take another drug just so you can take treatment, but it does help.  I've been there and if it wasn't for the shot, they wouldn't have done another treatment.  Hope that whatever she is on and with the shots will give her some good results.

Kim

kyolcu
Posts: 112
Joined: Jun 2017

I have stage 4 colon cancer mets to liver and lungs and have been treated at MD Anderson for almost 2 years. It is a nice hospital and I believe it is a well-known hospital in the field. I am little lucky I live in Houston, no travel required. I had second opinion in different center as well, they did confirm same diagnosis as MD Anderson.

Csuc02grad
Posts: 6
Joined: Nov 2017

 Thanks for the insight. Do you feel confident in treatment plan?

 Do you mind telling me what you are getting?

 Did they give you any prognosis?

kyolcu
Posts: 112
Joined: Jun 2017

I had Avastin, Irinotecan and 5FU for almost 2 years, 22 months(total of 39 cycles of chemo). Because CEA started rising they changed it to Irinotecan and Cetuximab, I just got it last week. 

I am generally happy with care team they update me of prognosis. 

PADAVE1's picture
PADAVE1
Posts: 10
Joined: Jan 2018

Hi kyolcu - Curious - how did your CEA change for the initial ~2-years - did it fall - baseline and ultimately rise?  Did your "scans" act the same way?  TY - Dave

kyolcu
Posts: 112
Joined: Jun 2017

Sorry for late response, I just noticed your posting. I was initially diagnosed on 2-26-16, my CEA was 17000(seventeen thousand), and as of today it is 125. High CEA dropped very quickly after initial chemo regimen of Avastin, Irinotecan and 5FU.

OzarkGal's picture
OzarkGal
Posts: 41
Joined: Oct 2017

My doctor prescribed Zofran for nausea. I take it as needed.  Ginger like in ginger tea or ginger snap cookies may help too.  As for non-prescription drugs, I recommend talking that over with the oncologist.  This is very important because drugs are usually processed by the liver.  With tumors in the liver and processsing the chemodrugs, the liver can be in a weakened state.

Bellen
Posts: 281
Joined: Aug 2016

Having folfiri plus avastin.  Many times my stomach feels pretty awful after chemo. I know the irinotecan can do this.  Took ondansetron for 2 days, then I have metroclopromide for as needed med for nausea.  Also got fairly bad heartburn with the chemo.  Started taking 40 mg Pantolac and this helped.  I sucked on ginger chews when a bit nauseated and found that chewing peppermint gum helped with mild nausea, and drink ensure almost daily because weight was affected.  Wishing her well.

Woodytele
Posts: 163
Joined: Apr 2017

i live in MA, and can get medical marijuana.  This has been THE BEST thing I have done since getting a cancer diagnosis. Appetite, sleep and anxiety are all problems I have improved since smoking weed.  They have all kinds for different problems.  My biggest issue was sleep, now I sleep like a baby.  None of the prescribed pills (ambien) come close to nature’s marijuana.  If you don’t like to smoke, they have gummies, candy, all kinds of stuff.  Highly recommend it, and zero side effects, I wake up and go to work rested, no hangover. 

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

I was looking at CBD Oil in a local shop and tried to get some information on which to use. Unfortunately no one could really help.  (I have a recurrance and am doing everything I can, herbs, vitamins, exercise, etc. to see how long I can go before going back on chemo.)  Anyway, they did mention that the CBD will show up on blood tests in case I am working for the government or certain other places where they do such tests.  I am guessing there are exceptions or waivers in there somewhere based on the medicinal use.  

If needed, I will ask about the program (I am in NY) and probably will go the gummies and candy route myself :)  

Something that worked well for me when I was on chemo were ginger snaps.  Overall I did fairly well with nausea, but did not have a big appetite.  So would nibble on those throughout the day. It was usually the day of hook-up through disconnect where I was eating the least amount.  

 

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

It might be the ginger - though ginger in raw form is unpleasant. I went through a box of ginger snaps over the past three weeks. They were on sale at Whole Foods and I needed them for a trip.

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

Candies and the rest.  And ginger ale was a staple when growing up if I had an upset stomach.  I am using raw ginger in my herb mixture that I brew up.  I do nibble on a bit now and again.  It is strong for sure Laughing

Trubrit's picture
Trubrit
Posts: 4857
Joined: Jan 2013

I grate fresh ginger into my plain whole milk yogurt and add fruit. Tastes Heavenly! 

Should you change your name to OldHere?   Good to see you.

Tru

NewHere's picture
NewHere
Posts: 1108
Joined: Feb 2015

Maybe SemiNewHere? LOL.  LaughingKiss

Trubrit's picture
Trubrit
Posts: 4857
Joined: Jan 2013

And seeing I don't know how old you are, I can't call you old. 

Tru

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