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Kidney Cancer Newbie

Jobie123's picture
Jobie123
Posts: 32
Joined: Dec 2017

Hi ,

just had a radical nephrectomy for a 9 cm tumour ,

T3 NO MO, struggling at the minute as they are monitoring a lung nodule and I’m oanicking it’s rcc! Anyone give me any advice on lung nodules?

thanks in advance jo 

just need a friend right now 

Steve.Adam's picture
Steve.Adam
Posts: 457
Joined: Oct 2016

I don't know anything about lung nodules, but I welcome you to the forum.

Please tell us a bit more about yourself. You might consider adding some information to your profile.

How did you find out about your tumour? How long ago was your surgery?

Steve.

Jobie123's picture
Jobie123
Posts: 32
Joined: Dec 2017

Hi I’m 44 years old and have a 12 year old daughter !

i started bleeding towards the end of the summer and went to the doctors where they gave me antibiotics as they suspected s UTI ! Luckily I went back and saw somebody else who forwarded me for a cystoscopy ( which was clear ) then the ct scan where the tumour was found . Rcc 9 cm ! I had a radical nephrectomy early October and was in surgery just short of 4 hours where they took some lymph nodes too !
Fast forward and I am recovering physically quite well but mentally finding it tough x

AnnissaP's picture
AnnissaP
Posts: 617
Joined: Sep 2017

Hi. Yes, mentally it can be very challenging. They tell us it is cancer, do the surgery then usher us off into the world again. It is not that easy. It is awful, but we learn great lessons. I hope you get some good replies on here!!!

Jobie123's picture
Jobie123
Posts: 32
Joined: Dec 2017

Agh thankyou for your lovely reply x means s lot !  Just wondered how u got on after tour op , pathology report etc ?? Hope you are doing well xxx

AnnissaP's picture
AnnissaP
Posts: 617
Joined: Sep 2017

The pathology report was like a slap in the face. It is diff when they actually look you in the face and say 100% it was cancer. Then I felt guilty bc dr said I probably had it for about 6 or 7 yrs. I felt horrible because my dad had cancer and died 4 yrs ago. That means we had it at the same time and didn't know. I lived and he didn't. Quite an awful feeling. I went to work lastnight for my 1st real shift. By the time I got home I was in pain and could not walk upright. Mentally it was bad. I came home and cried. Hey you have cancer. Let's remove your organ. Ok you are all good. Go back to normal life now. Ummmm no. Life will never be the same. It has been 7.5 wks and it is all just hitting me now. A lot of amazing lessons learned, but let me be real. This is very difficult. I hope you are ok.

en8236
Posts: 28
Joined: Dec 2017

I was diagnosed with a 5 cm Chromophobe RCC T1N0M0 back in 2011. At that time they found subcentimeter perifissural lung nodule... I have had one that was not there after 3 years, one stayed the same for last 3/4 years. All of them were favored for benignity so far.

Right now I am following a 2 yearly scan. However, right now, I am dealing with a one from 2015. In 2015 the scan was done in Texas, when they favored benignity for a 6mm nodule. 2 years later in 2017 in a different state I had my next scan, and they found a 8x3mm one, again favored for benignity. My pulmonologist wanted to have both the scan compared. I had it done, and the radiologist confirmed that the size is same, may be some difference in technique, and no followup is needed. However my pulmonologist still wanted a 3 month scan and indicated further scan if needed.

I wanted to have a second opinion, since there is a clear difference in suggestion. The second pulmonologist compared the images and agreed with the radiologist. Now I am in a position of super confusion.

I am telling the story to highlight few things, 1. Lung nodules are not always bad but confusing, at times even the doctors are confused, 2. You will feel frustrated in the process, because something new might come up, which may be nothing but still you can’t take it lightly even after 7 years. 3. At the end of the day, this is our reality and we have to deal with it. I am 35, have a wonderful wife and a 6 year old son, just not ready to think there is no hope.

Anyways, I hope, your nodule will be fine, you have a smooth path ahead.

 

Darron's picture
Darron
Posts: 303
Joined: Jun 2013

Jobie

Read my history, I don't post much anymore, but your situation sounds very much like mine. I had a 17 cm tumor removed, adrenal mass and lung nodules Back in 2012. Nivolumab and Sutent trial have kept me cancer free coming up on 4 years now. If they see growth in the nodule, I highly recommend active quickly with TKI's and or immunotherapy.

Best of luc, keep an eye on it

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