Colon Cancer and metastasize to Lungs

I’m a Stage 4 Colon Cancer that has metastisized on my Lungs. my doctor found it this month. I had a cough for a month and they put me on antibiotics for a week to suppress the  infection. Last time they checked the size of an old nodule on my left lung increased and I had 3 new ones 1.6mm the most. I am scheduled for check up next month and will have to go through another CT scan, then decide from there if I will go through Lung Biopsy. Has anyone been on a similar situation? I need advice Of all kinds. Can anyone also suggest a diet? What did they do to deal with it.

«13

Comments

  • Woodytele
    Woodytele Member Posts: 163
    Yup

    have the same thing as you, also in my liver.  The chemo may shrink what you have in the lungs, the CT scans will let you know if the chemo is able to diminish them. 

  • impactzone
    impactzone Member Posts: 539 Member
    So sory about that. I had 4

    So sory about that. I had 4 thoracotamies  taking mets out over 3 years. I am currently clear and t really hasn't changed quality of life. You can check my history and see that it is now year 11. If you can get to a larger hospital, check with thoracic surgeon if it is possible.

    All my best.

    Chip 

  • abita
    abita Member Posts: 1,115 Member
    edited December 2017 #4

    So sory about that. I had 4

    So sory about that. I had 4 thoracotamies  taking mets out over 3 years. I am currently clear and t really hasn't changed quality of life. You can check my history and see that it is now year 11. If you can get to a larger hospital, check with thoracic surgeon if it is possible.

    All my best.

    Chip 

    Did the Mets keep coming back

    Did the Mets keep coming back or were they all there at first but they couldn't take them all at the same time? Curious because your 11 years gives me hope. I will have surgery to remove the 3 liver Mets, then finish the last 8 rounds of my 12 round chemo and was hopeful the mop up chemo will mean no reoccurence. I already had my colon surgery. 4th infusion is first week of Jan then see if liver lesions shrunk enough to remove. I am also very anxious 

  • impactzone
    impactzone Member Posts: 539 Member
    abita said:

    Did the Mets keep coming back

    Did the Mets keep coming back or were they all there at first but they couldn't take them all at the same time? Curious because your 11 years gives me hope. I will have surgery to remove the 3 liver Mets, then finish the last 8 rounds of my 12 round chemo and was hopeful the mop up chemo will mean no reoccurence. I already had my colon surgery. 4th infusion is first week of Jan then see if liver lesions shrunk enough to remove. I am also very anxious 

    They came back.  My onc

    They came back.  My onc explained them as essentially dandelion seeds that were too small when imaged but grew and then were visible. The surgery ( Stanford)  was not really that bad to come back from. Liver surgery was tougher for me but i still always kept teaching and coaching throughout the years. As they came back, they were removed. 2 wedge resections and 2 open. There is hope....There are more long term survivors than on here. i only occassionaly comment but there are others here. I still ski and surf so even with the areas and lobes removed, I still am doing well. 

    All my best

    Chip

  • abita
    abita Member Posts: 1,115 Member

    They came back.  My onc

    They came back.  My onc explained them as essentially dandelion seeds that were too small when imaged but grew and then were visible. The surgery ( Stanford)  was not really that bad to come back from. Liver surgery was tougher for me but i still always kept teaching and coaching throughout the years. As they came back, they were removed. 2 wedge resections and 2 open. There is hope....There are more long term survivors than on here. i only occassionaly comment but there are others here. I still ski and surf so even with the areas and lobes removed, I still am doing well. 

    All my best

    Chip

    Thank you for the words of

    Thank you for the words of encourgement. 

  • Annabelle41415
    Annabelle41415 Member Posts: 6,715 Member
    Sorry

    I'm not able to give you any suggestions, but am very sorry to hear of your situation.   Wishing you the best.

    Kim

  • teresalynn
    teresalynn Member Posts: 3
    colon cancer metastasised to lungs

    my colon cancer metastasised to my lungs about 1 year ago.  i receieved two types of chemo th last being lonsurf pill.  it  made me crazy.  Will doanoher scan net week.  Last scans tell him that the spots are too small to bio or take out,  If they are still there i am going to stop chemo of any type and rest a while.  I have been on some kin of chemo for 5 years.  I am so tired of all the reactions they make me have.   Target Chemo was the worst.  I have wild type non-mutated.

  • teresalynn
    teresalynn Member Posts: 3
    same thing with me

     I have had colon cancer for five years with only 8 months remission,  when it metastasised to my lunngs.  My onoconlist say they are too small to bio or take out.  I have been on some type of chemo excecept the 8 mos.  The last one was Lonsurf pill,  it made me crazy so I stopped on my fifth round.  They will do scan next week, if they are still there I may stop any treatment at all.  You get to a point where you say no more, just keep a watch on their rate of growth, about to give up.

  • PADAVE1
    PADAVE1 Member Posts: 10
    Woodytele said:

    Yup

    have the same thing as you, also in my liver.  The chemo may shrink what you have in the lungs, the CT scans will let you know if the chemo is able to diminish them. 

    Howdee

    Hi there - I'm new to the board - saw your bio and seem like we might be in a similar situation - I have a few mets in lungs and 1 on liver. on FOLFIRI + Avastin now - Im at MSKC -  What chemo / treattment are you on now?  TY - Dave

  • JanJan63
    JanJan63 Member Posts: 2,478
    I have mets in my left lung

    I have mets in my left lung as well. I had three to start with and then developed the fourth while on an oral chemo last summer. The chemo I was on after that did reduce the size of three but not the biggest one. I am not a candidate for surgery so chemo is my only option. The original three were radiated last year and it slowed them down but that's all. If the ct scan hadn't shown them I wouldn't know they're there, they're not bothersome in any way. I'll be back on the chemo again in a month or two and hopefully will be able to finish the treatments this time. 

    I hate the fact that they're there. I thought I'd beaten the colon cancer until they showed up.

    Jan

  • swimmer22
    swimmer22 Member Posts: 60
    edited January 2018 #12
    Longterm Survivor Here

     

    Hello-- I was diagnosed in December 2010 out of the gate at Stage IV as a result of 3 small mets to my lung.  Here to let you know, I've been out of all treatment since April 2012! So don't be discouraged. 

    I first had a VATS resection of the three nodules followed by 6 treatments of Folflox. Then onto chemo radiation for 28 days for the rectal cancer tumor. I had a complete response to the chemo radiation and followed with a LAR that included an ostomy. Next was 12 Folfiri treatments, ostomy reversal and back to normal (new normal) life. I return occasionally to the boards and saw this post and hope that I can offer you hope. Keep fighting.

     

  • Trubrit
    Trubrit Member Posts: 5,626 Member
    PADAVE1 said:

    Howdee

    Hi there - I'm new to the board - saw your bio and seem like we might be in a similar situation - I have a few mets in lungs and 1 on liver. on FOLFIRI + Avastin now - Im at MSKC -  What chemo / treattment are you on now?  TY - Dave

    Welcome to the forum, PADAVE1

    You will find many a person here, fighting the fight and sharing that fight with others. Thats what makes is berable, sharing, giving, worrying together. I hope you find what you need here on the forum.

    Tru

  • cthemphill
    cthemphill Member Posts: 1
    Woodytele said:

    Yup

    have the same thing as you, also in my liver.  The chemo may shrink what you have in the lungs, the CT scans will let you know if the chemo is able to diminish them. 

    Well, I am new to your site

    Well, I am new to your site and in the same boat. Colon, liver lung.   With surgeries just in my lungs now. But have done many things. I practice alternative medicine bc I believe that you have to keep your body strong while on these toxic drugs. I try to analyze this is simple terms. I believe keeping the mind strong is very powerful: I meditate, thank my body for working with me, and take many herbs to support each organ.  I don't use the negative words to fight cancer, I tell the cancer I love it bc it is part of my body but it is time for you to go back to the universe since the earth can handle it long term. This may sound weird but it works for me. I am now on a iimmuno target drug and off chemo and stable with tx every two weeks. I like to alter my treatment bc I think cancer cells have their own way of hiding. I mix up my herbs, I'll delay tx by a day or two, I'll do  green drinks, then lay off, I practice gersons therapy,-modified, dr.rife, drink filtered water and vitamins and cannabinoid oils and barely eat beef, no dairy, and high carb foods. I'm not advocating that you do any of this. I'm telling my story. I find what's really upsetting is that if I find a clinical trial pertinent to me, you have to be part of that hospital to access that clinical trial which is difficult if it's across the country. Also, for example, now I am trying to get Vitamin C intravenous and according to the information I have read it must be in high doses which you cannot get  in the US unless someone knows differently, please let me know.  

     

  • tanstaafl
    tanstaafl Member Posts: 1,299 Member
    looking around

    Another lung surgery available internationally is Rolle's laser lung surgery with some serious advantages, like up to 100 mets removable.  Rolle and Ladas are now retired, but there are others that need to be searched out.

    We were able to control small lung nodules with nonstandard immunochemo and off-label adjuncts, along with larger metstases elsewhere.                          #1200

  • Rica10
    Rica10 Member Posts: 12
    Woodytele said:

    Yup

    have the same thing as you, also in my liver.  The chemo may shrink what you have in the lungs, the CT scans will let you know if the chemo is able to diminish them. 

    Best of luck to you Woody. We

    Best of luck to you Woody. We got this!

  • Rica10
    Rica10 Member Posts: 12

    So sory about that. I had 4

    So sory about that. I had 4 thoracotamies  taking mets out over 3 years. I am currently clear and t really hasn't changed quality of life. You can check my history and see that it is now year 11. If you can get to a larger hospital, check with thoracic surgeon if it is possible.

    All my best.

    Chip 

    Thanks

    Thank you Chip. It is not easy to live day by day more so with the side effects this cancer brought. On the other hand 11 years is amazing! Congratulations. I am under a larger hospital. Thats the good thing about my place majority of the cancer Treatment are Hospitals and is an Institution. I am scheduled tomorrow for VATS for Biopsy and this is my first time to have one in this hospital. Wish me luck. 

    Best Regards,

    Rica

  • Rica10
    Rica10 Member Posts: 12
    edited January 2018 #18

    Sorry

    I'm not able to give you any suggestions, but am very sorry to hear of your situation.   Wishing you the best.

    Kim

    Thank you Annabelle. It is

    Thank you Annabelle. It is more than enough.

    Best regards,

    Rica

  • Rica10
    Rica10 Member Posts: 12

    colon cancer metastasised to lungs

    my colon cancer metastasised to my lungs about 1 year ago.  i receieved two types of chemo th last being lonsurf pill.  it  made me crazy.  Will doanoher scan net week.  Last scans tell him that the spots are too small to bio or take out,  If they are still there i am going to stop chemo of any type and rest a while.  I have been on some kin of chemo for 5 years.  I am so tired of all the reactions they make me have.   Target Chemo was the worst.  I have wild type non-mutated.

    I’m sorry to hear that Teresa

    I’m sorry to hear that Teresa Lynn. We have gone this far. Keep on fighting. Yes, I really do hate these side effects well. Taking a rest is a good idea. Just listen to what your body tells you. It’s okay to rest, just don’t give up.  My oncologist will switch me to a new treatment after my Biopsy tomorrow and it could take a while. I am getting anxious about the time frame, it feels long and there was some growth over the past month. Im wild type mutated. KRAS. Its awesome that there are so many options nowadays for treatment, talk to your doctor about it. Hold on and keep your head up.

    Best Regards,

    Rica

  • Rica10
    Rica10 Member Posts: 12
    JanJan63 said:

    I have mets in my left lung

    I have mets in my left lung as well. I had three to start with and then developed the fourth while on an oral chemo last summer. The chemo I was on after that did reduce the size of three but not the biggest one. I am not a candidate for surgery so chemo is my only option. The original three were radiated last year and it slowed them down but that's all. If the ct scan hadn't shown them I wouldn't know they're there, they're not bothersome in any way. I'll be back on the chemo again in a month or two and hopefully will be able to finish the treatments this time. 

    I hate the fact that they're there. I thought I'd beaten the colon cancer until they showed up.

    Jan

    Hope

    You are Amazing Jan and so strong. As long as we’re alive, cancer has no power. Keep fighting your battles. I genuinely believe in Miracles. 

    It ain’t about how hard you hit. It’s about how hard you can get hit and keep moving forward. How much you can take and keep moving forward. 

  • Rica10
    Rica10 Member Posts: 12
    swimmer22 said:

    Longterm Survivor Here

     

    Hello-- I was diagnosed in December 2010 out of the gate at Stage IV as a result of 3 small mets to my lung.  Here to let you know, I've been out of all treatment since April 2012! So don't be discouraged. 

    I first had a VATS resection of the three nodules followed by 6 treatments of Folflox. Then onto chemo radiation for 28 days for the rectal cancer tumor. I had a complete response to the chemo radiation and followed with a LAR that included an ostomy. Next was 12 Folfiri treatments, ostomy reversal and back to normal (new normal) life. I return occasionally to the boards and saw this post and hope that I can offer you hope. Keep fighting.

     

    Thank you for sharing your

    Thank you for sharing your story swimmer22. so are you fully out from treatment? may i ask how are you after it all. Side effects, your quality of living etc? Thanks!