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Colon Cancer and metastasize to Lungs

Rica10
Posts: 12
Joined: Dec 2017

I’m a Stage 4 Colon Cancer that has metastisized on my Lungs. my doctor found it this month. I had a cough for a month and they put me on antibiotics for a week to suppress the  infection. Last time they checked the size of an old nodule on my left lung increased and I had 3 new ones 1.6mm the most. I am scheduled for check up next month and will have to go through another CT scan, then decide from there if I will go through Lung Biopsy. Has anyone been on a similar situation? I need advice Of all kinds. Can anyone also suggest a diet? What did they do to deal with it.

Woodytele
Posts: 163
Joined: Apr 2017

have the same thing as you, also in my liver.  The chemo may shrink what you have in the lungs, the CT scans will let you know if the chemo is able to diminish them. 

PADAVE1's picture
PADAVE1
Posts: 10
Joined: Jan 2018

Hi there - I'm new to the board - saw your bio and seem like we might be in a similar situation - I have a few mets in lungs and 1 on liver. on FOLFIRI + Avastin now - Im at MSKC -  What chemo / treattment are you on now?  TY - Dave

Trubrit's picture
Trubrit
Posts: 4907
Joined: Jan 2013

You will find many a person here, fighting the fight and sharing that fight with others. Thats what makes is berable, sharing, giving, worrying together. I hope you find what you need here on the forum.

Tru

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Hey Dave, you win the best dressed picture award on the board. Nice to have you here though sorry for why you're here.

cthemphill
Posts: 1
Joined: Jan 2018

Well, I am new to your site and in the same boat. Colon, liver lung.   With surgeries just in my lungs now. But have done many things. I practice alternative medicine bc I believe that you have to keep your body strong while on these toxic drugs. I try to analyze this is simple terms. I believe keeping the mind strong is very powerful: I meditate, thank my body for working with me, and take many herbs to support each organ.  I don't use the negative words to fight cancer, I tell the cancer I love it bc it is part of my body but it is time for you to go back to the universe since the earth can handle it long term. This may sound weird but it works for me. I am now on a iimmuno target drug and off chemo and stable with tx every two weeks. I like to alter my treatment bc I think cancer cells have their own way of hiding. I mix up my herbs, I'll delay tx by a day or two, I'll do  green drinks, then lay off, I practice gersons therapy,-modified, dr.rife, drink filtered water and vitamins and cannabinoid oils and barely eat beef, no dairy, and high carb foods. I'm not advocating that you do any of this. I'm telling my story. I find what's really upsetting is that if I find a clinical trial pertinent to me, you have to be part of that hospital to access that clinical trial which is difficult if it's across the country. Also, for example, now I am trying to get Vitamin C intravenous and according to the information I have read it must be in high doses which you cannot get  in the US unless someone knows differently, please let me know.  

 

James_B
Posts: 14
Joined: Feb 2018

You sound like a DIY Doctor !?!?! :) 

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

Sounds like you are doing well taking your health into your own hands. Yes, you should be able to find a place that offers intravenous Vitamin C. There are several near me in SE Michigan. I did it as frequently as 2x a week. 100g takes about 2 to 3 hours. Enjoyable experience. I am now doing mistletoe injections and they've greatly improved my quality of life. But unfortunately my cancer is still growing and spreading on my liver. I am going to try chemo now.

Rica10
Posts: 12
Joined: Dec 2017

Best of luck to you Woody. We got this!

impactzone's picture
impactzone
Posts: 532
Joined: Aug 2006

So sory about that. I had 4 thoracotamies  taking mets out over 3 years. I am currently clear and t really hasn't changed quality of life. You can check my history and see that it is now year 11. If you can get to a larger hospital, check with thoracic surgeon if it is possible.

All my best.

Chip 

abita's picture
abita
Posts: 658
Joined: Dec 2017

Did the Mets keep coming back or were they all there at first but they couldn't take them all at the same time? Curious because your 11 years gives me hope. I will have surgery to remove the 3 liver Mets, then finish the last 8 rounds of my 12 round chemo and was hopeful the mop up chemo will mean no reoccurence. I already had my colon surgery. 4th infusion is first week of Jan then see if liver lesions shrunk enough to remove. I am also very anxious 

impactzone's picture
impactzone
Posts: 532
Joined: Aug 2006

They came back.  My onc explained them as essentially dandelion seeds that were too small when imaged but grew and then were visible. The surgery ( Stanford)  was not really that bad to come back from. Liver surgery was tougher for me but i still always kept teaching and coaching throughout the years. As they came back, they were removed. 2 wedge resections and 2 open. There is hope....There are more long term survivors than on here. i only occassionaly comment but there are others here. I still ski and surf so even with the areas and lobes removed, I still am doing well. 

All my best

Chip

abita's picture
abita
Posts: 658
Joined: Dec 2017

Thank you for the words of encourgement. 

Annabelle41415's picture
Annabelle41415
Posts: 6249
Joined: Feb 2009

Always good to see your posts and thanks for sharing your information.  You have been a part of this board of many years and you give many of them hope.  Glad you are doing well.

Kim

Rica10
Posts: 12
Joined: Dec 2017

Thank you Chip. It is not easy to live day by day more so with the side effects this cancer brought. On the other hand 11 years is amazing! Congratulations. I am under a larger hospital. Thats the good thing about my place majority of the cancer Treatment are Hospitals and is an Institution. I am scheduled tomorrow for VATS for Biopsy and this is my first time to have one in this hospital. Wish me luck. 

Best Regards,

Rica

James_B
Posts: 14
Joined: Feb 2018

Good Luck Rica10 

Annabelle41415's picture
Annabelle41415
Posts: 6249
Joined: Feb 2009

I'm not able to give you any suggestions, but am very sorry to hear of your situation.   Wishing you the best.

Kim

Rica10
Posts: 12
Joined: Dec 2017

Thank you Annabelle. It is more than enough.

Best regards,

Rica

teresalynn's picture
teresalynn
Posts: 3
Joined: Aug 2013

my colon cancer metastasised to my lungs about 1 year ago.  i receieved two types of chemo th last being lonsurf pill.  it  made me crazy.  Will doanoher scan net week.  Last scans tell him that the spots are too small to bio or take out,  If they are still there i am going to stop chemo of any type and rest a while.  I have been on some kin of chemo for 5 years.  I am so tired of all the reactions they make me have.   Target Chemo was the worst.  I have wild type non-mutated.

Rica10
Posts: 12
Joined: Dec 2017

I’m sorry to hear that Teresa Lynn. We have gone this far. Keep on fighting. Yes, I really do hate these side effects well. Taking a rest is a good idea. Just listen to what your body tells you. It’s okay to rest, just don’t give up.  My oncologist will switch me to a new treatment after my Biopsy tomorrow and it could take a while. I am getting anxious about the time frame, it feels long and there was some growth over the past month. Im wild type mutated. KRAS. Its awesome that there are so many options nowadays for treatment, talk to your doctor about it. Hold on and keep your head up.

Best Regards,

Rica

teresalynn's picture
teresalynn
Posts: 3
Joined: Aug 2013

 I have had colon cancer for five years with only 8 months remission,  when it metastasised to my lunngs.  My onoconlist say they are too small to bio or take out.  I have been on some type of chemo excecept the 8 mos.  The last one was Lonsurf pill,  it made me crazy so I stopped on my fifth round.  They will do scan next week, if they are still there I may stop any treatment at all.  You get to a point where you say no more, just keep a watch on their rate of growth, about to give up.

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

I have mets in my left lung as well. I had three to start with and then developed the fourth while on an oral chemo last summer. The chemo I was on after that did reduce the size of three but not the biggest one. I am not a candidate for surgery so chemo is my only option. The original three were radiated last year and it slowed them down but that's all. If the ct scan hadn't shown them I wouldn't know they're there, they're not bothersome in any way. I'll be back on the chemo again in a month or two and hopefully will be able to finish the treatments this time. 

I hate the fact that they're there. I thought I'd beaten the colon cancer until they showed up.

Jan

Rica10
Posts: 12
Joined: Dec 2017

You are Amazing Jan and so strong. As long as we’re alive, cancer has no power. Keep fighting your battles. I genuinely believe in Miracles. 

It ain’t about how hard you hit. It’s about how hard you can get hit and keep moving forward. How much you can take and keep moving forward. 

swimmer22
Posts: 60
Joined: Oct 2011

 

Hello-- I was diagnosed in December 2010 out of the gate at Stage IV as a result of 3 small mets to my lung.  Here to let you know, I've been out of all treatment since April 2012! So don't be discouraged. 

I first had a VATS resection of the three nodules followed by 6 treatments of Folflox. Then onto chemo radiation for 28 days for the rectal cancer tumor. I had a complete response to the chemo radiation and followed with a LAR that included an ostomy. Next was 12 Folfiri treatments, ostomy reversal and back to normal (new normal) life. I return occasionally to the boards and saw this post and hope that I can offer you hope. Keep fighting.

 

Rica10
Posts: 12
Joined: Dec 2017

Thank you for sharing your story swimmer22. so are you fully out from treatment? may i ask how are you after it all. Side effects, your quality of living etc? Thanks!

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

Another lung surgery available internationally is Rolle's laser lung surgery with some serious advantages, like up to 100 mets removable.  Rolle and Ladas are now retired, but there are others that need to be searched out.

We were able to control small lung nodules with nonstandard immunochemo and off-label adjuncts, along with larger metstases elsewhere.                          #1200

Rica10
Posts: 12
Joined: Dec 2017

Hi Tanstaafl, does Dr. Rolled and Dr. Ladas have any successors? Is there a counter version here in America? 

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

There are successors and other clinics in Germany.  Canada has at least one Rolle capable surgeon, last I heard.  Don't know about UK (post Ladas). India ?  I don't think the laser has been approved by the FDA in the US but that might not be current information either.   Maybe Kirschbaum's clinic leads somewhere.

These searches are intensive enough you will need to pursue leads and details, then hopefully share and update these boards. If you report back, you may co-generate more shared options in a ping-pong manner.  

BGNor's picture
BGNor
Posts: 28
Joined: Feb 2018

Hi

I looked up your suggestion about the Rolle laser and I found that the clinic in Germany is still doing surgery with the same method. A new surgeon has taken over after Dr.Rolle.

Clinic: http://www.fachkrankenhaus-coswig.de/zentren/laserzentrum/laser-centre.html

Regards, BG

6Schnauzers
Posts: 4
Joined: Apr 2018

4 weeks ago he had surgery to remove the mass in his colon.  He is going to the oncologist next week. He has it in his lungs and liver.  Does anyone know the best hospitals in the USA for lung and liver cancer and the newest technologies available?? 

Pamcakes
Posts: 87
Joined: Jan 2018

I know how you feel as a wife and trying to grasp all of this. We choose MD Anderson bec we knew of friends of friends who've had success there. We reside in WV. So the cost every 2.5-3 months is costly. We continue to go because we are comfortable and feel they best meet DH needs( he is 38 & stage 4). Honestly find a good well know cancer center close to you and try them out. We have a local oncologis. Well we just fired the local oncologist and will be "interviewing" new ones local. as I ramble, my point is don't settle, far from home, close, wherever or how many on your care team. Develop a care team you and your husband are comfortable with. You pay for their service, if you are not comfortable and not receiving the care you want/ attention to needs, look elsewhere.  Be your husbands advocat. This is a very trying time and you have very little control, make sure your DH has a team that listens and cares as well as kicks cancers ***! Prayers! This is hard as a caregiver. I've not received much support emotionally from family etc. so keep in mind there are wives that understand and reach out. 

vtspa6
Posts: 172
Joined: Aug 2015

Husband still has them in all lobes but they are very tiny.  I think he has around 3 spots.  He just finished his 63rd folfori/with avastin treatment.  The chemo is still working and keeping it from growing or spreading. July 2015 is when all this started.

plsletitrain
Posts: 253
Joined: Jul 2017

Was that a typo or it was really 63? Man I'm stopping at 8 even.  Your husband is one tough nail!

azuza
Posts: 1
Joined: Mar 2018

My Mom has lung 5 mets in both lungs. She is in 2 days chemo: day 1-Gemzar/Irinotecan/5FU (all low dosage), day2-oxaliplatin (low dosage). On Friday she had CT scan and it seems that her nodules are stable or slightly increased by 1-2 mm, or is just a diff reading. So doc wants now to add Methotrexate. I was researching cyberknife, but not sure if it can be used on 5 nodules. they are pretty big now. 3 aroung 1cm, one is 2cm and one is 4cm. Did anyone have Methotrexate? appretiate any feedback. 

Dmac1957's picture
Dmac1957
Posts: 17
Joined: Mar 2018

Hello Friends

I am new to the board. I was pleased after reading the thread. It’s not the usual Debbie Downers and Whiners. I was diagnosed in 09/2014 and had surgery in 12/2014. The surgery removed the bottom 16” and Woke up with a colostomy bag. It was not for me and I had reversal in May 2015. I’ve accepted the constant need for Depends and with meds have developed some what of a routine. The 15 lymph nodes removed were all negative. Yet 9 months later a ctscan showed I had 6 mets in my lungs. 2 were 2cm x 3cm. I survived 12 rounds of the works. Avistantin, Oxyplatin and 5 FU. I lost 28 lbs in the process. Follow up scan showed 3 very small nodules remaining. After 8 months of a break, scan showed 6 nodule. Again, two were in the 2 x 3cm size. I have taken Irit (sp?) and  Xelota For 18 weeks. The treatments just tore my inners up and today my onco told me I was getting a 6 week break. Other then the need for the Depends I have no cough, shortness of breath, pain or anything. I have survived 3 1/2 years of this fight. Today, the onoc told me when I come back he would start me on a drug called Lonsurf. I went back to work. When I got to a computer I looked up info on the drug. I was shocked to read it could extend life for 7.1 months. My Dad passed in ‘11. He was a 16 year survivor of colon cancer. He had met show up after 8 yearsyears and they removed a lobe. And, it returned in another 8 years. He got pneumonia during treatments and we lost him. My question is. With no symptoms why am I 

Trubrit's picture
Trubrit
Posts: 4907
Joined: Jan 2013

Welcome to the forum. 

I am glad you have found it a happy place. We do have a whine every now and again, but for the most part, we'er all about helping each other through the trials that we or our loved ones are going through. 

We're happy to help you through yours as well. 

First off, don't pay any attention to stats. If they get in your head, they will consciously or subconsciously rule you. Tell yourself that you are going to beat the odds, no matter what, and then, if you don't, well, so be it. 

May I suggest you copy and paste your post, or start a new one on the forum home page, here https://csn.cancer.org/forum/128

that way, other people answering you won't hijack this original thread. 

I am sorry about your dad. WE may all think 16 years survival is good, until we're at 15 years, then we all want more. We always want more time. 

I look forward to seeing your new thread on the forum home page. 

Tru

Dmac1957's picture
Dmac1957
Posts: 17
Joined: Mar 2018

Thank you, Tru

Will do

dcramsey's picture
dcramsey
Posts: 1
Joined: Mar 2018

Hi, my name is David Ramsey and I was diagnosed 12/01/2016 with Stage 3 N4 rectal cancer. I've been through radiation and chemo, surgery and chemo. I thought I was finished when the scan showed matastesis to my lungs. It's not a stretch to say I'm scared. I'm being treated at Duke Cancer Center in Durham, they have been wonderful but I'm wondering how many here sought a second opinion as to thier treatment options?

Trubrit's picture
Trubrit
Posts: 4907
Joined: Jan 2013

May I suggest you start your very own thread and that way folks will be able to answer your question. 

Here is the link to the forum home page https://csn.cancer.org/forum/128

Tru

6Schnauzers
Posts: 4
Joined: Apr 2018

We are in Atlanta Georgia.  We were told Winship Cancer Center in Atlanta is good and we want a second opinion on treatment and long range outcomes as well.  We are thinking about flying to MD Anderson to get a opinion also.  I would like to hear where other people have gone and what new technologies are out there for Mestastic Colon Cancer that has spreat to the liver and lungs.

Travelmom's picture
Travelmom
Posts: 14
Joined: Dec 2017

Good morning. It's been awhile since I've been on. I am normally the ultimate optimist but I'm feeling down today. I have a scan on Wed and I guess I'm just getting "scanziety". I also have been such a trooper through all this...if I may say so myself...lol...but now I am losing ALL my hair. I know it's nothing compared to what others have lost.. and I try to keep reminding myself of that. I was a beautiful, natural red head with long, thick hair. It was how people described me. I wanna cry everytime I look in the mirror. So I stopped looking. Anyway..on to head scarves and wigs. I really am sorry for complaining on here but you guys are all so gracious. Anyway...also not to high jack the subject....I too have mets to the lungs that shrank a wee bit after 4 rounds of Folfieri. I just finished round #8. My dr never mentioned surgery. When does that get considered? 

SometimesI just want to go to bed and not get up. But I have 3 wonderful children and a good husband. What would they do w/o me? Thanks for listening folks.

 

Kazenmax's picture
Kazenmax
Posts: 366
Joined: Feb 2016

Travelmom, I understand how you feel. It sucks to lose your ginger hair but I promise this will pass. I know your family sees you as beautiful with or without hair. 

I see you are a fellow Eagles fan. If so, then I know you are tough!  Hang in there.

K

Trubrit's picture
Trubrit
Posts: 4907
Joined: Jan 2013

You are allowed to be devestated about your hair. I remember thinking before mine fell out, that it would be no big deal; but it was. I was devestated every time I got out of the bath, and saw all of my hair in the tub. So allow yourself this time of sadness, but try your very best not to let it take over. 

Ask your Oncologist outright, why surgery hasn't been mentioned.  And if no surgery, why. 

Don't ever feel you need to apologise for your sorrows. That is why we are all here. To listen, to empathize and to bouy you up. 

Tru

 

Annabelle41415's picture
Annabelle41415
Posts: 6249
Joined: Feb 2009

Sometimes treatment affects others differently.  My hair never fell out but thinned out very much but no one could tell, but I've experienced other affects from different treatment.  I'm sorry that you are going through this and hoping that all will go well going forward.  This is a hard place to be in and sometimes you do just want to go an curl up and not go on, but like you said you have children, husband and LIFE.  Remember, you can only do what you can, but don't ever give up hope. 

Kim

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