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Question about Symptoms

HorseLvr's picture
HorseLvr
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ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

Bleeding after menopause is a symptom of cancer. I urge you to go through with the appointments and let him get the biopsy...I know it is scary but it could save your life....

I didn't have any of the discharge issues you mention just a lot of bleeding (I was pre-menopause) but my oncologist said that any bleeding after menopause is a sign there is something wrong.

For me it took a few weeks to get the results of the biopsies...

Please see your doctor!

ConnieSW's picture
ConnieSW
Posts: 1442
Joined: Jun 2012

First of all, there are  no such thing as TMI or taboo subjects  on this board. We are a pretty frank lot. 

My only symptom was a tannish, watery discharge with a distinctive odor ( I'm a nurse and I recalled having a patient with uterine cancer many years ago who had an odor. I couldn't remember if it was the same, but I thought of her immediately so I think my brain knew). 

 

Considering your physical limitations I think your doctor's  plan is a good one. The biopsy isn't easy and if you can't get through it, you'll have to go the other route anyway and be even more apprehensive. He's got things in his bag of tricks to help you once he knows your history. 

Biopsy results take about a week but after the ultrasound  my gyn told me to expect the cancer diagnosis. 

You can do this and we are here for moral support. 

Soup52's picture
Soup52
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I had similar symptoms, first with the watery discharge and increased urination, so I first thought urinary tract infection.checked out no, then to urologist. Some other test scheduled and then light bleeding sent me to gynecologist. She did an vaginal scan which showed thickening. She tried biopsy but fervid qhouldmt open so I had a d and c. I was asleep for it and it wasn’t bad. I toourge you to have further evaluation. 

MAbound
Posts: 863
Joined: Jun 2016

Sometimes you have to do what you have to do in spite of your fears and phobias and other physical issues. You've been having these very concerning symptoms for years now and have been told you are high risk for endometrial cancer. This is no time to think you can get away with putting off or evading getting diagnosed for what's causing your symptoms. You really need to get to the bottom of this. I get that panic attacks are no joke, so you when talk to your doctor ask him about some anti-anxiety meds. You really can't talk or bargain your way out of doing this; there is no hiding from cancer and there's a better chance of a cure the earlier it's caught.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2585
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HorseLvr, the ladies here have given great advice.  Please let us know how it goes, even if it turns out to be nothing.  

Donna Faye's picture
Donna Faye
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Good advice from ladies who know the drill. Cowgirl Up and don't be afraid. The fear is greater than the actual!  

HorseLvr's picture
HorseLvr
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z

MAbound
Posts: 863
Joined: Jun 2016

Horselvr, it really sounds like you have a strong need to be in control here, but you may be getting in the way of your own best interests and setting yourself up for another scary, painful experience that won't give you the answers you need. I had a normal ultrasound just a week before being sent for a biopsy and it found a grade 3 endometrial cancer. So much for a normal ultrasound!

Your history is presenting with some issues that makes getting a good biopsy sample more difficult than normal and you really want your doctor to be able to get a good one given the fact that cancer is strongly suspected. Post menopausal bleeding, even intermittent, is nothing to take a wait-and-see or trial-and-error approach with.

An ultrasound will not be as difinitive as a biopsy is, so please don't use it as a bargaining tool trying to avoid what is scaring you. Make sure your doctor knows about your past issues so that he has a plan to help you cope and make sure he discusses that plan with you ahead of time so you can have some confidence that you won't suffer like that again. Go ahead and get a second opinion about your options for getting this done, but get it done soon. A lot of us would suggest getting that 2nd opinion from a gynecological oncologist because they are the experts our gynecologists turn to in these kind of circumstances. I'm sure your concerned specialist would have no problem with referring you to one.

I'm sorry that I'm giving you a hard time about this, but I so recognize how you are trying to get out of doing something that scares you like I tried to get out of radiation therapy back when I was in frontline treatment. It was others on this board giving me information, support, and blunt talk that got me to do what I needed to do and I am so grateful for that. I hope you can conquer your fear to do what really can't be avoided. 

CheeseQueen57's picture
CheeseQueen57
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Just want you to know that an endometrial biopsy hurts like hell and they rarely get enough tissue to accurately diagnose anything. A D&C is pretty painless and you are out and is pretty definitive. I think an endometrial biopsy is a painful waste of time st this point. 

NoTimeForCancer's picture
NoTimeForCancer
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I know you are right about the pain, CQ!  I was originally scheduled for the endometrial biopsy...ha!  The dr quit and said, "I'm not going to even charge for this" and sent to schedule the D&C.  I am glad she did.  The D&C gets the entire lining and that biopsy might have missed the poylp that was the cancer.  (I love my doctor)  

In the end, I know everyone has to do what is best for them.  HorseLve, I think you see a lot of women here who have found a place to share their experiences and they are truly seasoned professionals.

MAbound
Posts: 863
Joined: Jun 2016

I had no pain with my biopsy, but it was the first invasive procedure my uterus ever had outside of childbirth. I've heard that biopsies can be painful if you've had them previously.

CQ may have a very good point about the D & C, though. According to Cancer.net, People who have abnormal vaginal bleeding before the test (biopsy) may still need a dilation & curettage, even if no abnormal cells are found during the biopsy. Given how this is all so traumatic for you, you may want to revisit having a D & C so you only have to endure the one procedure. 

 

HorseLvr's picture
HorseLvr
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Editgrl's picture
Editgrl
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It's possible a biopsy would feel like a cramp.  Mine did.  However, other women have had much more painful experiences.  Quite honestly, in your situation, I think I would opt for the D&C.  As others have said, it is not unusual for a biopsy to miss the spot where the cancer is, while the D&C is pretty definitive and with all of your symptoms, definitive is what you need.

Please work with your doctor to come up with a plan that can address your anxieties and fears.  I am so sorry that anesthesia is such a trigger for you. You really do need to have these procedures done.  They may put your mind at ease. And if it does turn out to be cancer, then you and your doctors can come up with a plan to treat it.  

HorseLvr's picture
HorseLvr
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ConnieSW's picture
ConnieSW
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My gyn looked me in the eye at my initial visit and told me, " You do not have cancer."  Lucky for me my body shed cells that were picked up on my Pap smear or I would have gone my way and been later diagnosed at a more advanced stage than 1a. It is  nearly 6 years later and without that lucky fluke I might not be here now. 

If you do have cancer and choose to have it treated, you will have to face anesthesia.  Let your doctor help you through your fears and do the best diagnostic workup he can. 

 

We once had a well liked member on here  who kept postponing treatment and picking and choosing which recommended procedures she would accept.   She died. This is serious business. 

HorseLvr's picture
HorseLvr
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barnyardgal
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I understand being scared. I wasn't scared of the biopsy, but that hurt. I was a little nervous about the hysterectomy as I had never had surgery before, but it wasn't bad at all. After having a reaction to my first chemo drug, I am a little scared of trying again, but I have to. As a friend of mine, and a two time cancer survivor likes to say it's better than pushing up daisies and having your husband have to mow over you. She always makes me laugh, but she's right. None of this is fun or easy, and it's often scary, but sometimes we just have to do it or face worse consequences. 

I hope it's not cancer, and all goes well!

HorseLvr's picture
HorseLvr
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HorseLvr's picture
HorseLvr
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Jeannie123
Posts: 18
Joined: Nov 2017

This is my first post I just joined so am not sure if I am in the right area to post?

I was just diagnosed with vaginal cuff reacurrance.  I had uterus cancer in 2009.  I am so confused the doctor who did the biopsy recommended radiation and brachytherapy so I went to Stanford for a second opinion hoping I could get surgery, that did not happen. I know they do surgery but wondered if anyone out there has had surgery or radiation and what their opinions are? It has now been 3 months of doctors appts and I am no closer to a decision?  I do have lymphafrom my surgery. Any input would be greatly appreciated. 

 

Thanks.

TeddyandBears_Mom's picture
TeddyandBears_Mom
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Jeannie123, Welcome to our board and so sorry you have to be here! My understanding is that radiation is the first line of defense on a vaginal cuff recurrence.  I'm assuming you did not have radiation initially?  I had the internal radiation (brachytherapy) as part of my front line treatment. It really wasn't a difficult treatment for me. There is a thread titled 'Let's talk about radiation' that you may find helpful. I hope you get the answers you need to make a decision. Please come back and let us know how you are doing and ask us anything. someone will most likely have answers to your questions.

Love and Hugs,

Cindi

Jeannie123
Posts: 18
Joined: Nov 2017

 Thanks for your response I added two comments and did not see yours?  I already had radiation on my breast.

they want me to have 25 radiation and 3 brachytherapy but someone in my cancer group is steering me towards surgery because I already have lymphadema in my upper legs?  Do you have any problems with lymphadema? No radiation initially. 

Thanks, jean 

hopeful56's picture
hopeful56
Posts: 73
Joined: Jul 2017

I am staged 1a with microcscopic cancer.  If I had the biopsy done in the office more than likely would not have been picked up.  Talk to you doctor about your fears of anesthesia.  There is a lot they can give you.  During the hysterscopy procedure, the surgeon was able to see on the wall the spot that did not look right.  That is where the cells were. I then had to have a hysterectomy. 

It is your choice, but you have to weigh what will be the best procedure to find, if any, evidence of cancer or to rule it out. 

Good luck with your decision.

Sandra

HorseLvr's picture
HorseLvr
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MeinMississippi
Posts: 39
Joined: Aug 2017

I'm a big girl too, and I also suffer from sleep apnea. I had ultrasounds that did not show anything wrong, but ultimately I did have cancer. Maybe you could ask the doctor to give you an anti-anxiety pill before your procedure. I'm not a medical professional, but I most definitely think you need that D&C. If you have just the biopsy and you have a bad experience I feel like that would bring your anxieties to an even higher level. 

Before my D&C I talked to the nurse anesthetist who happened to be a friend of mine. He said when you go under general anesthesia it's a lot easier for them to control your airway and breathing. I have horrible obstructive  sleep apnea and have never experienced a problem with them getting my airway  Also, the Propofol will not erase your memory. At least that's my experience. I've had 13 surgeries. The propofol just helps put you under. I remember everything before I was put to sleep and after I woke up. Please get that D&C. You'll make us all feel better!!  You can do this!!  

HorseLvr's picture
HorseLvr
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MeinMississippi
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I'm so glad your doctor is going to sit down with you and address your concerns. When I talked to my gynecologic oncologist before my hysterectomy I wrote down all my questions and she answered them beautifully. It eased my mind so much. I think with your mobility issues you need to be able to be relaxed and I feel like they can control that through IV medication. Again, I'm no medical professional, I just know what I experienced. The medical team will also know how to address your diabetes and sleep apnea. The pre op bed should be easy to get on to so that should be helpful. Also, not to freak you out, but definitely get the doctor to address your vulvar issues because that could be a serious health issue as well. Please let me and all of us know how it goes. I go Thursday to have my bladder mass removed, and I'm very nervous, so I'm right there with knowing how you feel. However, we can do this. There are so many sweet ladies on this board that have been through so much more than I, and they give me the inspiration to keep going. We're all going through this together. I will keep you in my prayers and I pray that your anxieties will be calmed. 

HorseLvr's picture
HorseLvr
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MeinMississippi
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Be careful with estrogen. Being bigger women as we are, uterine cancer can be caused by an overproduction of estrogen. Estrogen is stored in fat cells.  My mother developed breast cancer due to being prescribed large amounts of estrogen (she was not overweight). I would wait and find out more about what you have going on and see what your doc says if you're given the all clear. You even have to kind of be careful with natural forms of estrogen as well. But like I said, your doc can give you better advice. 

HorseLvr's picture
HorseLvr
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NoTimeForCancer's picture
NoTimeForCancer
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To add to MeinMississippi's comment, as someone who had UPSC I was told specifically I could have nothing with hormones as it feeds this particular cancer.  I think that is why one of the warnings seen on tv with the ads states, "have had uterine cancer".  

HorseLvr's picture
HorseLvr
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TeddyandBears_Mom's picture
TeddyandBears_Mom
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Try vitamin E suppositories. They are inexpensive and really help. I get mine on Amazon. Also, drink a lot of water.

Love and Hugs,

Cindi

HorseLvr's picture
HorseLvr
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ConnieSW's picture
ConnieSW
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the two of you linked up. This board is a wonderful place and I'll always be grateful to Linda P. for getting it started. 

HorseLvr's picture
HorseLvr
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MeinMississippi
Posts: 39
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Me too!  It seems so therapeutic to learn about what other people are going through and letting them know they have support. It definitely takes my mind off the anxieties I have about things. This board is a blessing to so many!!  

HorseLvr's picture
HorseLvr
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MeinMississippi
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Thanks for letting us know what happened. It does sound like you have a good doctor. I'm glad you were able to get on the exam table fairly easily. Now you have to give us the update after your ultrasound. I wish you the best my friend!!

TeddyandBears_Mom's picture
TeddyandBears_Mom
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Good update HorseLvr. It sounds like you found a great doctor. That is priceless! Please come back and let us know how the US goes.

Love and Hugs,

Cindi

leeangelau
Posts: 13
Joined: Nov 2017

So glad you are now getting some answers. Sometimes it just seems like getting past the first step is the hardest. Now everything you need to do will hopefully fall in sync and you will feel comfortable dealing with.I saw you commented on my post, thank you. I havent gotten around to answering yet. It's been a hectic few days. I cant believe as I look at the date that its the 1st Decemeber already. Wow right? There goes 2017 in a heartbeat. 
When are you having the Trans Vaginal Ultrasound? At least now you can get that over and done with and move on to whatever stage you need to. 
I will keep checking in to see how you go xInnocent

 

HorseLvr's picture
HorseLvr
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HorseLvr's picture
HorseLvr
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Amatullah
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I was so terrified at the idea of getting a hysterectomy  and ended up being really surprised that it wasn't a big deal.  I was on my own and didn't need anyone to help me.  I was so relieved.  I always swore I wouldn't get chemo and yet I got chemo and radiation and that hasn't been the nightmare I thought it would be either.  I have lupus, fibromyalgia and graves disease and I felt pretty angry at first that I got to add cancer to the list.  Then I decided that living was way more important than feeling ripped off.  I hope you reconsider and get your health taken care of.  Not knowing is a stressful way to live.  But it is your choice and only you know what is most important to you.  Our prayers and thoughts are with you HorseLovr.

HorseLvr's picture
HorseLvr
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If anyone knows how to delete your profile, please let me know. I thought I had seen that option a while ago, but cannot find it anymore.

MAbound
Posts: 863
Joined: Jun 2016

It breaks my heart to read your words, but ultimately it's your right to choose the path you want to take. I'm so sorry we couldn't find a way to help you overcome your extreme fear. I feel like such a failure and dread what the future holds for you, but ultimately it's in your hands. I won't forget you and will always be praying that you find some peace and comfort as time goes on.

ckdgedmom's picture
ckdgedmom
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As MAbound said I hope you will find some peace and get some relief from the ailments you have...no one wants to be uncomfortable or in pain...

please don't let fear compromise your health....find a doctor you trust and feel safe with....most of us here have looked death in the eye with our cancer and I'm pretty sure all the ladies who are surviving would agree that we wouldn't wish this disease on anyone. IF you do have cancer please know that although the treatments can be rough that it is so worth it to live...and living with the consequences can be far worse than some nausea for a few days or aching body for a week. I know I was surprised by how much easier it was compared to how much I feared it would be. And to me my life is worth a bit of struggle for.

I totally understand if you want to leave this forum (sorry I don't know how to delete an account) but I pray you will talk more with your doctor (or find another) before you decide not to find some answers to your bleeding and issues...

 

HorseLvr's picture
HorseLvr
Posts: 102
Joined: Nov 2017

I just need to forget about all this, as my mind is now playing tricks on me. My gyn really grilled me last time on discharge, kept asking if it was pink. It wasn't. Now, the last couple days, I've been getting a very, very light pink discharge. Psychosomatic, I'm sure. So, I  need to stop everything, put it out of my mind and just get back to a normal existence. I still have not been able to figure out how to delete my profile.

MAbound
Posts: 863
Joined: Jun 2016

I've been kind of kicking myself for not thinking of and suggesting this earlier. About 25 years ago, the mother of my son's best friend started having these panic attacks that made her feel like she was having heart attacks. They were very scary, debilitating, and would strike out of the blue. It was interfering with her ability to care for her three young sons. It turned out that panic attacks are often caused by a chemical imbalance in the brain for which there are medications to easily treat them. Going to a psychiatrist who is an MD(not a psychologist) got her attacks quickly diagnosed and treated and she said it was like a miracle for her. I'm wondering if that might be something for you to look into for yourself. Your fear of sedation/anesthesia seems to be clinically out of proportion to what's reasonable or rational and poses a real threat to your life and well-being. We can all feel your fear and anxiety that's torn between a potential cancer diagnosis and the prospect of what you'd have to do to get through diagnosis and treatment. You're coping now by deciding to retreat, but I doubt rhat your fears are going to go away by doing that. Please check out this other possibility. Living with such fear is not really living, is it?

HorseLvr's picture
HorseLvr
Posts: 102
Joined: Nov 2017

Thanks for the suggestion, but it's not a panick attack. I had one of those coming out of anesthesia the last time I had surgery, and it was totally different. I do not want anything about a psych on my medical record. However, I have asked a psychologist that posts on a debate board I have been a member of for a number of years if I can ask for some advice and he said yes. 

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