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Another good report

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Did a colonoscopy yesterday. First one where they used a drug where I remained awake. I was awear of what was being done but simply didn’t care. 

The sedation was interesting to note, but especially noteworthy is that the colonoscopy was all clear. 

And the surgeon said my next colonoscopy can be in five years. That would be November 2022. Wow!

To go from Stage VI to NED and then staying NED since December of 2014. I definently have good cause to celebrate Thanksgiving!

And one of the things I am most thankfull about is you all in this forum. 

Thank You for caring and sharing. Your encouragement. Your worries and struggles. Your positive thoughts and prayers. Your Love!

May your Thanksgiving be overflowing with Love and hope.

Sincerely,

Phil

 

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Glad to hear it but you need to stick around for the new folks with Stage 4 that are terrified.

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Mike, I wish I had more time!  But I will try to drop in on this forum more!

Hoping for goodness and Blessings for you today! 

Trubrit's picture
Trubrit
Posts: 5292
Joined: Jan 2013

Phil, this is WONDERFUL news!  And what a joyus week to recieve it. 

Here, a frirnd to help you celebrate.

Tru

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Sue. Wishing you much Love and beautiful peaceful nature on this feast of thanksgiving

danker
Posts: 1262
Joined: Apr 2012

Phil, may you be NED forevermore!!

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

Congratulations, Phil! Definitely something to be thankful on this Thansgiving. 

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Lily Flower. May beautiful flowers, occasional nurturing showers and lots of sunny warm days be given to you! Blessings to you on this feast of Thanksgiving.

darcher's picture
darcher
Posts: 286
Joined: Jun 2017

That's great news.  One which we all hope for.   Set the trend! 

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Darcher. May the trend be set and many more NED reports to follow. Bless you brother!

Ruthmomto4's picture
Ruthmomto4
Posts: 674
Joined: May 2013

congratulations Phil!!!

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Ruth. Sending you Love and Best Wishes!

Love the picture. Are these yours?

Mwikoff46
Posts: 40
Joined: Nov 2017

Congratulations to you and your family...may you have a blessed Thanksgiving

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Mwikoff. May you be showered in Blessings that bring you much Joy!

Cinnamon Jones
Posts: 21
Joined: Feb 2017

Great news.  Congratulations

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Cinnamon! Wishing you much Light and Love!

Bellen
Posts: 281
Joined: Aug 2016

Phil - First of all - I am so happy that you have such good news to share.  What a great feeling!   I noticed in your write-up that you had folfiri - did you have it up to Dec. 2014?  I have had 27 avastin + folfiri, and am on a 2 1/2 mo "much needed" break.  Going back on same chemo when I resume.  Have multiple liver lesions - no surgery.  CT scans have shown shrinkage in tumours, but still says multiple.  

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Bellon,

Thank you!

I posted to a blog throughout my chemo and surgeries. I also maintained a chart which summarized my chemo, surgeries, and CEA tests. My Blog is found at http://pscamihorn.me. My chart can be found on my blog or via the following link (https://public.tableau.com/views/CEA/Dashboard1?:embed=y&:display_count=yes&:showTabs=y&:showVizHome=no#5).

I rece  FOLFIRI and Oxciliplatin from 06-2012 through 11-2012. When another recurrence was found I had a surgery followed by Folfiri and Erbitux. The addition of Erbitux proved very effective in my case. Erbitux is usually only considered if KRAS mutation tests positive (Usually 50% of colon cancer cases). In my case I did test positive for this mutation and the Erbitux really kicked the cancer hard.

After the tumors shrunk I had surgery followed by four more months of Fofiri and Erbitux. Unfortunately I had Mets in colon and then later in liver. These Mets were surgically removed only to be followed by more mets in liver a few months later. 

At that point the surgeon was not willing to operate because of all the recurrences. However my onc wanted to hit me with intense chemo and therefore gave me six months of folfixiri and bev (avastin). This was intense for me but it did prove effective and the surgeon reconsidered and agreed to a third liver resection on 12/5/2014. He removed 40% of my liver and removed the gallbladder in that surgery. My onc decided that we should try one year of Erbitux alone as a cleanup therapy. After that year we have only been doing CEA tests and CT scans and this colonoscopy most recently. So far I have been NED since the 12/5/2014 surgery.

I have permanent neurapathy from the oxciliplatin in my feet. And I have some scarring from Erbitux rash. I also feel a lot more arthritis and have more sinus issues than past but I don’t really know if that is related to chemo or just getting older.

One other IMPORTANT point. Around my last surgery my onc tested me for vitamin D deficiency. He started me on 1000 units of Vitimin D3. And reported that 90% of his colon cancer patients tested deficient. He also reported that recent data links vitimin D deficiency with multiple different cancers. 

Hope this info helps!

Love and Light to you on this Thanksgiving!

Phil

 

 

airborne72's picture
airborne72
Posts: 279
Joined: Sep 2012

Revel in your fortune, and continue to remain an example to other stage IV forum members.  May their hope be strengthened by such news.  It can happen!

Jim

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Jim! May many blessings be given to you!

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

Phil, I am one of those current Stage IVs and I thank you for your encouragement.  I have been so fearful of the full on chemo but I have decided today to go for it. Port and all.  You and others are proof it can work and we can conquer the beast.

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

BRHMichigan, thank you for your note. And may Love and Light find you and bring you Joy, Healing, and Wonderful!

I’ve been told by others on this forum... NEVER give up hope! And we fight because that is what we do!

Please check on that Vitimin D3. Michigan especially deprives us from enough sun light. And my onc siting the data linking this to cancer should not be taken lightly. He is a data guru and follows all the latest research. 

UMHS (now known as Michigan Medicin) is an awesome team of care providers.

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

I have been supplementing Vitamin D for awhile now.  I'll continue Vitamin C IV therapy too, ozone saunas and some other natural supps.  Whatever it takes.  I am going to St. John Providence for treatment. Wanted to get 2nd opinion at UM but don't want to lose any more time at this point.

Annabelle41415's picture
Annabelle41415
Posts: 6612
Joined: Feb 2009

That is more than awesome news since you were diagnosed with Stage 4.  It's such a wonderful feeling to have all that back as "clean and squeaky".  So glad for you and you can have a very great Happy Thanksgiving now.  You have a lot to be thankful for.

Kim

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Kim and great big virtual hug! May Strength, Joy, Healing, and Love envelop you during this feast of thanksgiving!

NewHere's picture
NewHere
Posts: 1235
Joined: Feb 2015

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

I love this :-)

Thank you for the smile! And may countless Blessings flow to you beginning with this joyous celebration of Thanksgiving!

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

 I hope survival becomes one of your habits. All the best for the future, Ron.

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Thank you Ron for being a role model of survival! May you find much Love and Joy during this celebration of Thanksgiving!

lhduffer
Posts: 86
Joined: Oct 2015

That is wonderful news.  Truly something to be very thankful for!  May the NED continue forever more!  Have a blessed Thanksgiving!

pritam24
Posts: 1
Joined: Dec 2017

Hi everybody my name is Pritam my father who is 61 years old was diagnosed for Buccal Mucosa Cancer ( cancer which appears on Cheeks inner side) we are already done with is surgery few months back and after that surgery it was found that the Level 5 node had showed the presence of Cancer cell but it is now taken out of his body .He has under goen 4 Chemo therepy and 11 cycles of radiation and one concurrent chemo ( chemo given between radiation therepy ) as of now he cant eat properly as the neck part is having ulsers that is caused due to chemo , we are going to stop the radiation in middle that is after his 11 cycles of radiation.( doctor has suggested for 34 cycle) 

Radiation was advised to us as a precautionary measur so that the cancer should not reaccure as of now considering is inabality to eat anything m thinking that rather than detoratiing his health any further i should stop the radiation because i cant see my father in pain .

Please if their is anyone who has stoped his radiation in middle do let me know . 

Trubrit's picture
Trubrit
Posts: 5292
Joined: Jan 2013

I a so sorry to read of your father's diagnosis. It is a shock to the patient and to loved one, as they face the battle together. 

This is the Colorectal Cancer forum, and you may find more help on the Head and Neck Cancer forum. Here is the link https://csn.cancer.org/forum/164

I wish your father the best, as he moves forward with treatment, hoping that he can tolerate, especially the radiation. 

Tru

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