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Lymphocytes in the bone marrow starting cytoxan and rituxin

Lauraisabel
Posts: 43
Joined: Jun 2017

i was wondering if anyone out here he’s had just cytoxan and rituxin...with 1000 mg of prednisone (the steroids are only for 5 days)

it looks like I will have to do this for 5 times...with 3 weeks in between....

Any feedback will be appreciated !!! They said I have enormous amounts of lymphocytes in bonemarrow and it’s not allowing red cells to get oxygen therefore have anemia....if I don’t do this regiment...I would need tranfusions...

po18guy
Posts: 968
Joined: Nov 2011

I am sorry, but more information is needed to make a meaningful reply. Have you been diagnosed with lymphoma? If lymphoma, which type is it? If lymphoma, it would appear that it has begun growing in your marrow - not all that unusual, actually. The drugs you mention sound like a new or experimental regimen.

Lauraisabel
Posts: 43
Joined: Jun 2017

Hi .I was dx with marginai low grade b lymphoma in 2001 and they took out my spleen...been on w/w until this June where my blood work was very up and down...they found that I have hemolitic anemia...and when they did a bmb they saw that I have too many lymphocytes and they are crowding y red blood cells.....so started rituxin in July...but it really did nothing with anemia...now they are adding cytoxan and 100 mg prednisone....they are saying that 6 rounds should do it.....

PBL
Posts: 171
Joined: Jul 2016

LauraIsabel,

That is reminiscent of R-CHOP, leaving out the Doxorubicin and Vincristine... Just guessing here, but could you maybe have some other health issues apart from lymphoma, such as reduced heart or kidney function, or a neurological condition?

Just to clarify my meaning: I was initially to have six R-CHOP, three weeks apart, but ended up having only one, followed by five 'R-CHP', due to significant neuropathy after the first infusion.

If you are confused or in doubt as to why your doctors have decided to do anything, I would suggest you ask them; you have a right to understand your illness and treatment - plus, that's much better than putting your life in their hands while doubting their judgment.

PBL

Evarista
Posts: 242
Joined: May 2017

Is this a word that you've heard your doctor say?  Sorry, but I've yet to figure out how to see older posts by a particular individual on this forum, so not clear what your original dx & trx is/was?

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3156
Joined: May 2012

Evarista,

Tracing any given individual's posts here is time consuming and tedious. There are not software features here to list an individual for their writings....you would have to scroll manually through all of the threads, and hope to get lucky (if they did not start the thread or were not the last person to write there, you in effect will never find what hey have said in the past.  You CAN see when a member last logged on, but many people come to the site and scan for new information without logging on (I myself often do this).

Individuals can assist on their own.

One way (Suggestion 1 [S1]) is to be detailed in your "About Me" section.  Listing only when you joined (which happens automatically) is close to useless.   I think some people fear this yields personally identifiable data, but it won't: Just DO NOT give last name, address, telephone number, or email.  At Prostate, I once saw a guy scan and paste his own biopsy result, without obscuring his full nale and soocial security number (WAYY BAD).  I personally will not even name my doctors or the hospital I have used.  Some people do name doctors, if they are seeing a leading specialist fighting a rare type of cancer. This is useful, even life-saving information. The same for a secialized insititution: If your clinic is the best in the world for some rare cancer, say so.  But otherwise, more caution is better than less in our current world, but in general hackers are not interested in knowing who is sick with cancer; there is no money to had in such an undertaking.  People do need to fill out their About Me sections.

Another technique [S2] that is popular at the Prostate Board is to write a post that summarized all of your treatments to date, along with diagnositc test results, staging, etc.  This can be edited-updated periodically. Then, the writer can cut and paste that summary later, when they have new questions.  Po has done this more than once. In general, this is something only necessary when treatments have run for years and drugs employed have varied a lot, and cases of multiple relapse. (Po you may have read has had over 18 different chemotherapy drugs, which I suspect may be a world record of some sort; this is worth saying, since it gives others great hope.)

Using your OWN THREADS [S3] is also extremely helpful. Comments just minimally relevant to someone else's long thread are likely going to be buried there forever, unavailable to someone else interested in your case.  One of the few things the Search feature here will do is look for keywords in a Topic title.

And any page that runs over around two pages probably needs to be ended [S4] and a new one on the same topic begun.  Extremely long threads seldom remain focused and few who might be otherwise interested are unlikely to be willing to wade through them.

These are just my observations as a long-time member here who has looked for a lot of stuff over the years. Obviously, none are "requirements."  I went to grad school in history, and know that information that cannot be located might as well not exist.

But in general, the software here leaves much to be desired.  Many writers at Prostate have made suggestions to the Staff for specific changes over the years, but none have been acted upon that I can recall. I hope this will assist some with their files,

max

Lauraisabel
Posts: 43
Joined: Jun 2017

Hi .I was dx with marginai low grade b lymphoma in 2001 and they took out my spleen...been on w/w until this June where my blood work was very up and down...they found that I have hemolitic anemia...and when they did a bmb they saw that I have too many lymphocytes and they are crowding y red blood cells.....so started rituxin in July...but it really did nothing with anemia...now they are adding cytoxan and 100 mg prednisone....they are saying that 6 rounds should do it.....

Lauraisabel
Posts: 43
Joined: Jun 2017

Hi .I was dx with marginai low grade b lymphoma in 2001 and they took out my spleen...been on w/w until this June where my blood work was very up and down...they found that I have hemolitic anemia...and when they did a bmb they saw that I have too many lymphocytes and they are crowding y red blood cells.....so started rituxin in July...but it really did nothing with anemia...now they are adding cytoxan and 100 mg prednisone....they are saying that 6 rounds should do it.....

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