CSN Login
Members Online: 10

You are here

12th and final treatment of Folfox 5FU completed today

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

Just wanted to share with those that feel like their treatments will never end or the end seems so far away. 6 months ago, that is how I felt, but today I have completed my 12th and final treatment of Folfox 5FU. My oncologist and I had great communication throughout the entire process. We reduced the Oxy for #s 10 & 11, and we decided not to administer the Oxy for #12, as the slight neuropathy feelings werre still tingling on Wednesday (the day I was hooked up). I haved stated all along, that I do no want to have life long neuropathy, and I believe we succeeded, however, time will tell.

Throughout the process, my hair thinned a bit, but fortunately I had pretty thick hair to start. I did experience severe reactions to cold for at leat 6 to 8 days from the day of hook-up to the port. The neuropathy didn't become a concern until #7 treatment.

Overall, I feel very positive that the cancer was cut out, along with 25 lymph nodes (6 were cancerous). Sooooo, the Folfox was just make sure that if there were any undetectable cancer cells left after surgery, the chemo would get them. That is how I am looking at the situation, so in March I will have follow up testing to hopefully hear the words "your clean".

I have found this site and discussion board to be of great help and support and I want to say thank you to all!

 

Barry

Lily Flower's picture
Lily Flower
Posts: 248
Joined: Jul 2017

Congratulations Barry! I'm half way into 8 treatments (6 months). That's exactly how I feel about the treatments never going to end. I just can't wait till I complete all mine. 

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

Hang in there Lily, you are closer to the end than the beginning. You really need to watch the effects of the Oxy from this point on more closely. I did not have the Oxy for the last treatment, and I'm glad that I made that deision.

Good luck!

Lily Flower's picture
Lily Flower
Posts: 248
Joined: Jul 2017

Thanks Barry. I too told my oncologist from the start that I don't want to end up with permanent neuropathy. 

aoccc2015
Posts: 37
Joined: Sep 2017

Yeah i did the exact same as you to start and did the full 12 at first..the numbness still is sticking around a year later but I really don't notice it unless i press fingers and it is a small price to pay. I worked in a freezer so yeah it was fun lol but ill do it again if I have to. I hope it is all gone for you, watch the ab area if you see anything don't let them push it off as scar tissue or anything else.

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

I'm seeing the surgeon that operated on me this coming wednesday. I have a stitch that must have let loose shortly after surgery, but when I do anything that involves abdominal muscles I feel a burn. So they have to re-stitch it, so the muscle does not continue to tear and burn.

Small price to pay.

NewHere's picture
NewHere
Posts: 1072
Joined: Feb 2015

That final de-hookup is a great feeling.  

Trubrit's picture
Trubrit
Posts: 4781
Joined: Jan 2013

A great step in the right directoin. This deserves our speical little man. 

Continue feeling positive abou the outcome. It will take you a long, long way. 

Keep up the good work. 

Tru

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

Thanks Tru!

Annabelle41415's picture
Annabelle41415
Posts: 6150
Joined: Feb 2009

It's a great feeling to have the end of that part of the process.  Congratulations and enjoy not having to make that a part of your daily life.  You will be able to enjoy the holidays without it.  Wishing you the best going forward and clean scans ahead.

Kim

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

From your mouth, to God's ear!

Slow-runner
Posts: 51
Joined: Oct 2017

Congrats! Enjoy your freedom, Stay well.

ReeRee2's picture
ReeRee2
Posts: 39
Joined: Oct 2017

i am on treatment 2 and really dreaded going to get hooked up. Thank you for posting

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

Don't worry ReeRee, you'll get through it. If you live in a cold climaste, as I do, make sure to stay warm during the winter months.

Good luck an stay positive!

Makord
Posts: 35
Joined: Oct 2017

Bravo!!! Keep it up!!! Happy for you!

Cindy225's picture
Cindy225
Posts: 172
Joined: Feb 2017

Awesome feeling!  

CyniD's picture
CyniD
Posts: 13
Joined: Sep 2017

So happy for you. May grace and peace follow you through the coming months. 

debugy2k's picture
debugy2k
Posts: 83
Joined: Oct 2017

Great news!! Congrats!!!

EissetB
Posts: 135
Joined: Apr 2017

Your journey and mine are just about the same. I also had just completed my 12th. The only different on ours was that I had 7 out of 15 lympnodes, the reactions and the reduced #s of Oxy was my biggest gift then. I'd experienced neuropathy on the tips of my fingers and toes. But now I am off the chemo I am feeling so much better, and starting to get my appetite back to normal. My oncologist told me I am NED since the day I got out from the operating room. And yes, my oncologist and surgeon were concern there might be some cc floated or escaped during surgery so chemo was the best thing to destroy them. I am so HAPPY for both us!! And of course to all who are NED and to those still going through the medication, have faith for you'll get well before you know it. God bless us all <3

Eisset

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

Couldn't have said it any better Eisset!

Lily Flower's picture
Lily Flower
Posts: 248
Joined: Jul 2017

EissetB... Congratulations to you as well! 

Barry, I just want to add what a great timing for you to have it completed right before the upcoming holidays. It will be so nice to enjoy the holidays without having any side effects from the chemo. Thanksgiving falls in my recovery week and I can actually enjoy the thanksgiving meal. The next day I'll be going for my 5th treatment. Black Friday indeed. Lol 

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

I can tell by your photo, that you are a strong woman with a positive attitude. Like you, I always choose to see the positive in life; why dwell on th negtive.

I hope that you do enjoy the holidays, life is always better on the off weeksWink

Lily Flower's picture
Lily Flower
Posts: 248
Joined: Jul 2017

I always believe apositive attitude is part of healing. Enjoy the holidays to you too! :)

Ruthmomto4's picture
Ruthmomto4
Posts: 624
Joined: May 2013

i am very happy for you!! The road does seem long ahead of us only on 4 of 12 this week. Enjoy the freedom!!

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Hey Barry,

I remember when you started here: low-key and just getting on with the stuff that has to be done. Great to see you continue making progress.

SophDan2's picture
SophDan2
Posts: 134
Joined: Jul 2017

Thank you so much Mike, your input was always appreciated. I feel like helping others who are just beginning with their treatments, is very important, as you and others were abig help to me.

beaumontdave's picture
beaumontdave
Posts: 976
Joined: Aug 2013

Always joke about it being time for a Vegas trip after the 12-rounder with chemo, the money they make on Oxaliplatin, they could sure comp you a trip. All I got was gloves with proper drug name on them. Anyway, enjoy the holidays, Barry, getting through all that is definitely cause for celebration.............................Dave

Bellen
Posts: 281
Joined: Aug 2016

Hello all - Just wondering if anyone who had folfox - did you have any mets with your CRC?  Once you finish(ed) your folfox treatments, will, or did you have any maintenance chemo or other?    I am under the understanding that I will be continuing with my folfiri chemo, and if the tumours mutate, I will try a different chemo - I have CRC with multiple, dispersed liver mets (told inoperable).  I have not had any colon surgery.  Right now, I am having a 2 1/2 mo break to recoup my system (I have had 27 folfiri chemo treatments + avastin) and then I believe I will be back with folfiri again. The larger tumours have shown shrinkage each scan and the number of tumours that are noted in the CT have been reduced, so it is recommended that I keep on the same chemo regimen.  Not sure how this chemo break will affect the liver or colon tumours, but I will have a CT scan before next chemo starts up.  Hopefully, they will not change too much.  I also wish I knew what I could do when I have this chemo break to help the tumours to maintain, although most of it will be to regain strength (immune and red blood cells), gain some weight, walk a bit, eat better, feel better, etc.  

Subscribe to Comments for "12th and final treatment of Folfox 5FU completed today"