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Waiting game can't eat

Mwikoff46
Posts: 40
Joined: Nov 2017

Good morning ....I am real new and will be getting my colonoscopy hopefully asap next week. Was in ER this weekend stomache bloating blood in stool and have a weired throbbing in or near rectum. I can't eat or drink due to the anxiety that what's ahead. Headaches and not wanting to get out of bed is over taking me . with history in my family I know the news will not be promising . my question is the feeling of not wanting or can't eat is this the depression taking over me or should I be even more alarmed. I have sat up for most of night can't sleep reading this God sent forum.

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

I went into the ER after saying goodbyes in case I didn't survive and spent about 16 hours there doing examinations, blood tests, scans and a colonoscopy (I was lucky the GI guy was there and had time to do me). Everyone was sure that it was cancer though but the confirmation came a few days later. I dropped about 13 pounds in the next two weeks because of anxiety and I'm pretty sure that everyone here has had that anxiety multiple times. There's the anxiety waiting for the diagnosis and staging, the anxiety before chemo and/or radiation, the anxiety before surgery and the anxiety before adjuvant chemotherapy. There are others as well - waiting for scans and bloodwork to confirm that it hasn't spread.

And I can say that you shouldn't be anxious but we can't help it. What might help is if you did something to take your mind off it (still hard, I know), like going out, visiting or chatting with friends, working out if that's your thing. Do know that there are treatments for the various kinds of cancers and the various stages and they can be quite effective. Many of us are going through various stages of treatment right now and we'll be around to chat with you IF you have cancer. That's not a given right now.

Mwikoff46
Posts: 40
Joined: Nov 2017

I wish they had someone in ER to just do it and lets get diagnosis and started I can't take the discomfort and waiting . I am calling Monday to see if they can get me in asap. I have lower back pain and that feeling I don't want to eat the fullness...I seen blood in stool yesterday ..didn't eat all day after and today had small bowel movement which looked like had bright yellow ..the stool was brown but yellow like when I wiped. 

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

The wait on colonoscopies seems to be dependent on how busy the doctor is and the queue for them at the hospital. ERs aren't really set up to do them and there is a one-day prep that you're supposed to do before the colonoscopy. Basically you don't eat anything and you take a bunch of laxatives to clear your digestive system out so that they can see up your digestive system without stuff in it. You might be able to get on a waiting list for cancellations or choose a different hospital that can take you sooner. I understand the distress as I could feel my tumor growing (in terms of the pain that it caused).

Mwikoff46
Posts: 40
Joined: Nov 2017

What was your pain? Where and location 

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

There was no pain. I actually felt great. Just a toilet full of blood.

Mwikoff46
Posts: 40
Joined: Nov 2017

I wish they had someone in ER to just do it and lets get diagnosis and started I can't take the discomfort and waiting . I am calling Monday to see if they can get me in asap. I have lower back pain and that feeling I don't want to eat the fullness...I seen blood in stool yesterday ..didn't eat all day after and today had small bowel movement which looked like had bright yellow ..the stool was brown but yellow like when I wiped. 

beaumontdave's picture
beaumontdave
Posts: 1063
Joined: Aug 2013

The yellow seems peculiar, right before diagnosis I was having streaky blood and what seemed like clear scabby tissue in some stools, but yellow sounds like fat or bile to me. Maybe if anyone had a similar incident, they'll comment on it here..................................................Dave

Mwikoff46
Posts: 40
Joined: Nov 2017

Yeah I'm not sure now that I'm to nervous I can't eat I had one bite of egg 2 bites of oatmeal and coffee and watermelon oh and water and now had some loose bowels ...didn't see visual any blood but worried it was loose

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

Glad you found the forum.  It should bring you some peace to know so many of us are fighting this fight, and have been in similar situations as you are now.

Try to sleep and just take one day at a time.  You are in my prayers.

--Beth

Mwikoff46
Posts: 40
Joined: Nov 2017

Thank you Beth . it has been su h a comfort finding this site ..some post make me nervous and lots give me hope.  Now my thoughts go to finding great doctors that it seems you all have and of worry about financial part....I know this is selfish but I always worry as a single person never being able to date going through this . everyone seems to have husbands and wives helping and pulling them.through.....thank you again. ...now in a few hours I have to go to work and put on a happy face knowing the stuff I may be facing soon...

Annabelle41415's picture
Annabelle41415
Posts: 6531
Joined: Feb 2009

After finding blood in my stools it was a nightmare of racing thoughts in my head.  It's going to be a whirlwind of emotions until you can discover what it is that is wrong.  Once you get to know what is wrong then the dust seems to settle and you get scared, angry, then determined.  Not eating is a very common symptom to people that are distressed, but it can also cause a reverse action to make people eat more.  ER is not recommended for a colonoscopy, but you should get with your doctor to get you in as soon as possible.  I'm curious as to how long you have had these symptoms.  If it's something just new it could be possible it's just hemrhoids that are causing the bleeding.  Talk to your doctor and get him/her to get you a scope ASAP.  Wishing you the best.

Kim

Mwikoff46
Posts: 40
Joined: Nov 2017

Honestly I thought I was constipated one day ..6 weeks ago and would poop some but still felt not all the way . so MOM gave me a clean out but I still have that full feeling . made appt with GI then the weekend before GI appt had horrible lower back pain and pelvic cramping ...that was 2 days then day of GI appt really just had that bloated lower pelvic feeling . went to gyn had US but all they seen was small complex cyst and said that would cause all the discomfort. Then next appt was GI and he just scheduled for colonoscopy . I have been looking at my BM probably last few weeks but only really noticed the blood this Saturday morning . stomache still uncomfortable and full feeling and my rectum feels like ...trying to describe...like a little pressure like it you are going to pass gas at times. Blood was in poop not when I wiped. Then of course at ER visit all they did was bloodwork and CT on abdominal pelvic area. Sent me home. Yesterday still couldn't eat nerves shot and had 2 BM which were a little clumpy loose but I didn't see the blood but then it wasn't solid like Saturdays. I'm worried because it doesn't seem anyone here had the bloating discomfort feeling like me. Iv never been in pain except the two night of horrible lower back pelvic cramping ..its just been that uncomfortable feeling . 

ginrwill
Posts: 12
Joined: Nov 2017

i mean it could literally be gas or constipation causing the full feeling. Roids could cause bleeding and feeling pressure too. When I went to the er in July I had an abscess that caused fever and low back pain but the ct showed a mass 

Mwikoff46
Posts: 40
Joined: Nov 2017

Ct did not show anythimg which has me worried it is the colon or rectum ..I mean it showed a ovarian cyst I knew about and they mumbled something about thinking of a wall . I still have that feeling of bloating and lower back aching here and there . I would love to say I'm happy CT was clear but then as I lay in hospital with time to.think then that means definitely colon related . I'm on NPO now so I'm thinking scoping some time today. . I read your post earlier and already said my prayers for you. Thank you for your concern and responding 

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

The CT can cover quite a large area and that's how they found the mass in my rectum. They did CT to rule out spread to the lungs and liver for me. Could you ask them what they did the CT of? Did it cover the colon and rectum?

Mwikoff46
Posts: 40
Joined: Nov 2017

When I asked about CT they were like didn't show anything but you know the colonoscopy is what is going to tell us....and with my nerves I just keep shaking my head like a bobble head. I did a loose BM and was waiting to hear from lab if blood is in it..I can't look anymore it makes me more crazy . I just keep praying of course no cancer but if it is I pray we caught it we fix it we live.

Ruthmomto4's picture
Ruthmomto4
Posts: 659
Joined: May 2013

did you get results from your tests? I hope all was well.

Mwikoff46
Posts: 40
Joined: Nov 2017

I did ..colonoscopy and endoscopy came back negative..thank God..but I still have the bloated stomach and discomfort and haven't really eaten with all the stress...its like the worrying never ends..thank you all for your prayers 

Annabelle41415's picture
Annabelle41415
Posts: 6531
Joined: Feb 2009

That is great news.  Hopefully you will follow up with GI doctor to find out what is causing your issues.  Hope you feel better soon.

Kim

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

So happy all those tests have come back negative.  You are blessed.  Now, let's pray they figure out what's going on!  Worrying is so hard on us all physically.  But I know it's hard to stop sometimes.  I hope you have support from family & friends.

darcher's picture
darcher
Posts: 257
Joined: Jun 2017

It could just be constipation. When I'm a nervous wreck as I'm sure you are I can get plugged up for days and feeling the same way.  Lower back back pain, that constant icky feeling, etc.  This was long before I got cancer and the two weren't related.  I still am constipated even though I've had the tumour removed but now I'm waiting on the next phase of follow up chemo so on and so forth so I have a lot to be nervous about.  BTW, a colonoscopy and or endoscopic are probably the two best ways to detect it.  I only wish they came back and told me the same thing as what you heard. Try this.  Get some Senna S and give it a go for a few days.  If that doesn't work then you can go with Castor oil. A word of caution.  With castor oil you better be within 30 seconds of a bathroom. 

Mwikoff46
Posts: 40
Joined: Nov 2017

That you all for your kind words ....I'm following up with GYN hoping its not that. But there is no way someone can feel so uncomfortable and different .. Best thing was I just was denied by my insurance company for my hospital stay ..quote ...rectal bleeding is not considered emergency...unbelievable.....

Trubrit's picture
Trubrit
Posts: 5193
Joined: Jan 2013

quote ...rectal bleeding is not considered emergency...unbelievable.....

Heaven knows, you've paid your premiums, now make them pay up. Insurance companies make me sick! 

I hope they get to the bottom (no pun intended) of your medical problem, soon. 

tru

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

I'd haul out their policy to see what is and what isn't covered and, if it's like the policy that I have, it isn't specifically mentioned. I can't see how rectal bleeding isn't covered (mine certainly was) in a medical sense as most would consider it a severe problem. Best wishes for a good resolution. I have spent a few hours myself on the phone dealing with health insurance coverage issues though I haven't had any problems with the cancer stuff so far.

Annabelle41415's picture
Annabelle41415
Posts: 6531
Joined: Feb 2009

Have you contacted your insurance again about paying for your hospital stay?  Just last year I went around and around about 9 months for paying for a surgery they considered "not covered".  But my doctor, me and another doctor all agreed it was necessary and then it took a year for them to realize this and pay for it. It took a lot of phone calls, begging and pleading and a lot of work on the doctor's end, but they ended up paying for it.  Get your doctor involved.  It can make a big difference.

Kim

Mwikoff46
Posts: 40
Joined: Nov 2017

Going to start calling and fighting .....I pay over 300 a month just for me in insurance and the one time I use it they deny it...I'm pretty sure if they Are a family member looked down and seen blood in their stool ..it was be medically necessary...lol

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