My first RP anniversary
While my first post RP anniversary is here (November 2,2016) I want to write about my experience and take hindsight to reflect my recover. Just to mention; 51 y/o man very healthy not on any medication, non smoker, non drinker, not overweight, regularly excercising, had some some LUTS with bladder neck obstruction which caused AUR. In June of 2016 elected to have TURP done to elevate my obstructing simptoms and on June 9, 2016 got news from my urologist about my post TURP pathology report which was shocker for my wife and I. I was incidentally diagnosed with prostate Ca Gleson 6. Biopsy in Auguse confirmed Ca but with higher Gleson 4+3 in 1 of 12 cores 10%. Had very hard time to make decision and primarily wanted toavoid surgery Because of SE. My wife who happened to be an RN working in urology department at teaching hospital wanted me so badly to go with surgery as best option for my age according to her experience with patients in her department and what she knew about their recovery and progres.
Somehow, decided to go with surgery and scheduled it for November 2, 2016.
Pathology report post op was downgraded to 3+4 with Ca present bilateralply and multi focal pT2c.
Surgical recovery was not so easy compared to many others experience but I made it thru. My catheter was removed on Nov10th.
Recovery of continence mostly happened in weeks 11 and 12 and by the end of 3 months I was 98-99% continent.
Now, 12 months post op I still have stress incontinece but about 99% dry. My first run without pad was Septimber 17. When active, I still leak more then I would feel comfortable but I will take it.
My post op PSA at 6 weeks, 5, 8 and 11 months was <0.1 or<0.01 depends on essey. Thanks to God for that.
Now, the worst part of my recover. I am still 100% impotent with total ED despite aggressive rehabilitation.
Still, no slightest sign from my penis, in deep coma. At 10 weeks started Cialis daily 10 mg with once a week full dose 20 mg which up to now did not produce any results. I tried Viagra which also did not produce result. On April 19; started TRIMIX with some success 7/10.
Since I had significant loss of lenght of 2+ inches which I did not recover a bit from that loss, my erections with TRIMIX are so pathetically small that my penis looks like when I was 10 yers old. It is not usable for sex unles I just stick it and that’s it. Any movement with trusting, it falls out which is frustrating for both of us. Tried sex three times without any succes.
Also, my orgasams are non existent regardless how much stimulation my wife and myself trying to bring me to the point of inevitable.
i am also using VED to recover loss of length but so far no success in that. Neither, I can achieve erecti with VED suitable for sex.
If I count now as 2 out of 3 ( cancer control and continence) as a successful, I am only 66.67% recovered which is not near normal recovery for patients my age with no other comorbid conditions.
How do I feel about it. Honestly, not so good. At 52 living sexless life with no good future unless I recover some of the length that RP robbed me of, I run out of options. On my last visit to urologist that I am doing my follow ups, he said that I just was unlucky one and that it happens more often then any urologist would ever tell prospective surgical candidate. He did not perform my RP.
I still hope for improvement to start one day which might come out from nowhere.
My Hamlet’s dilemma is to continme or not with penile rehabilitation. If it did not produce results for 12 months at least something that started moving from ground zero, is it just futile effort?
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