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How quick is surgery after discovery of rcc ?

Calicocat101
Posts: 9
Joined: Oct 2017

Hello.  I honestly never thought I would be asking questions about cancer, esp. In the kidney but I guess you never know the path you will find yourself on.

Sept 4th I asked for an X-ray of my left ribs as I had sharp pain there for several years, nothing wrong with the ribs but they found a 5cm mass on the upper lobe of my right kidney on September 28th. CT scan showed that the cancer was only there but they are concerned about adrenal and renal vein involvement.  I will be receiving a full kidney removal hopefully sometime soon.  My question is, how long did any of you wait between discovery of the cancer and surgery?  The doctor said surgery is not something you wait very long to do.  However, I cannot seem to get the clinic to call me back with a surgical date (I've left numerous messages, thinking of camping out in their waiting room).  I do have an MRI scheduled for this Friday as the doctor will be going in robotically and wants the best possible images.

I'm 49 and otherwise in excellent health.i did have to start beta blockers as my blood pressure shot up with each Doctor visit.

 

thank you for any help/advice you can give. I appreciate it.

Optimisticgirl's picture
Optimisticgirl
Posts: 82
Joined: Aug 2017

My husband had his surgery 3 1/2 weeks after diagnosis.  Dr. said there was no hurry as most tumors grow slowly, it just depended on the scheduling of the Davinci robot to do the surgery.

Calicocat101
Posts: 9
Joined: Oct 2017

thank you so much to everyone who responded.  This really helps to at least get an idea of what to expect.  It's hard enough to have this crazy thing in my body let alone wondering when it will come out and wondering if there will be any further effects from it.

jason.2835
Posts: 337
Joined: Nov 2014

Calicocat101,

Really depends on a lot of factors, but my experience with myself (about 1 month) and talking with others seems to be about 1 to 1.5 months wait.  Some surgeons are in very high demand and booked up for many weeks, plus depending on the risk factor of the cancer (ie large tumor) they can put some patients before others for emergency situations.  So it can seem like a long wait, but if you are going to a hospital in high demand, I would expect to wait anywhere between 1 to 2 months, depending on how high risk they deem your case.  In my case, I had an MRI ordered before even speaking with the surgeon, so he was already had everything he needed.  But it's pretty normal that they want to wait until the imaging is done before giving you a hard date.  To quote the late, great Tom Petty, "the Waiting is the hardest part."

- Jay

DreamOnDeb
Posts: 112
Joined: May 2017

My husband was diagnosed in May, and his surgery was in August (3 months).

jas75
Posts: 11
Joined: May 2017

My experience concurs with the timeframe of 1-2 months between diagnosis and surgery. The initial CT scan that first revealed the kidney tumor was in mid October last year, then the detailed abdominal scan with IV contrast at the end of October, with the nephrectomy taking place on the first of December. The tumor was no larger in the pathology report after removal compared to the abdominal scan, and the surgeon was not concerned about it growing during the waiting period. 

November was certainly a month full of anticipation and anxiety, so I can sympathize with what you are going through. It's still frustrating to have no clear root cause of the RCC, given that I'm a lifelong nonsmoker in good shape physically in my early 40s. Maybe check your doctor's patient portal if they have one, since there was a tentative calendar entry for my surgery date before I was notified officially. Hopefully you will get some more answers soon.

stub1969's picture
stub1969
Posts: 864
Joined: Jul 2016

I felt pretty lucky in how my pre surgery went.  I was diagnosed in our small rural hosptal on a Thursday and told that the urologist would be contacting me in a week or two.  I didn't wait around and made an electronic appointment request to Mayo (Rochester, MN) on a Saturday.  They contacted me on Monday morning and scheduled an appointment with the surgeon for the next week.  I was on the table a week and a half later.  

Unless it is an emergency, I think you'll find it takes an average of a month or two from diagnosis to table.

Stub

icemantoo's picture
icemantoo
Posts: 3279
Joined: Jan 2010

A lot depends on the Surgeon's golf scheduke , just kidding. Those done relatively quickly tend to be larger and you do not want to takr cutd to be in that line. At 5.5 cm it is not large, but it is not small either. Do what you have to do to get it over with. I waited almost 3 months.

 

 

Icemanntoo

love_of_my_life
Posts: 77
Joined: Jul 2012

My wife had surgery 6 weeks after first discovery.  She wanted a biopsy first for confirmation which extended things out a bit.

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Had appt with urologist on Sept. 21st. Just saw the oncologist/surgeon two days ago and surgery will be Nov.7th. Too long of a wait if you ask me. Once they tell you there is a solid mass your life changes....then you wait. At least if you get a surgery date you know something will be done about it!! Good luck. I too am a non-smoker, non-drinker and avid exerciser.

Calicocat101
Posts: 9
Joined: Oct 2017

thank you for responding.  I feel like I'm in a really weird dream and can't seem to wake up.  It's such an odd feeling, especially knowing it has been there for several years.  Good luck to you too!

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Omg me too! I see the images and hear the doctors but do not connect it with being me. I feel like my feet are not on the ground. Maybe it is a coping mechanism??? I am waiting for reality to settle in :-( By the way, I am 38 and in great health as well.....

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

during the busy holiday period 

At the time  the waiting was horrendous but behind  it all appointments and tests were being carried out and then getting the right surgery slot was very important    

plus they will want you in the best condition for the surgery

however yesterday is not soon enough so I pray you get a date soon

i have not had the pathology report yet but Surgeon did not think there was any change between my CT scan and the tumour he saw

I pray it is quick

Annie

 

 

Hd67xlch's picture
Hd67xlch
Posts: 148
Joined: Apr 2016

I had my ct scans on a Friday morning and was just  told the diagnosis, and then I was waiting at the scheduling counter and was told it was going to be a month out before they could do mine, but the nurse called the DR over and told him his Monday 7am surgery patient had just cancelled. I looked at my wife and said lets do it, best thing I ever did, got it over with and didnt have to sit around and worry about it.

BoondockSaint's picture
BoondockSaint
Posts: 242
Joined: Mar 2017

It was exactly one month to the day for my wifes surgery. Pretty timely I thought. We wanted that sucker out ASAP!!!!

APny's picture
APny
Posts: 1987
Joined: Mar 2014

I was diagnosed beginning of January and surgery was March 17th. So a bit over two months. It was supposed to be in February but I got a horrible chest cold and they didn't want to risk anesthesia with the cough and congestion I had.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

the health care world. Even when there are rules and safety measures in place, everything can be an exception. Standard medical practices vary everywhere. My suggestion is to learn as much as you can as fast as you can. Be confident about how your cancer will be addressed. Good things happen when you and your doctor can sit and both be on the same page when you talk. Be sure of options and when to choose them.

BTW, I had to be admitted to hosp for uncontrolled pain. Had my radical neph 2-3 days later. No waiting what so ever. Everyone agrees that the wait is excruciating.

Rob57's picture
Rob57
Posts: 25
Joined: Aug 2016

I was diagnosed on a Thursday, saw a uroligist on the next Tuesday and had my left kdney removed the following Tuesday. My tumor was 5.5 cm x 7.1 cm and encased in the kidney. Doctor said that he could have done a partial, but recommended removal of the whole kidney. That was in May, 2012.

Calicocat101
Posts: 9
Joined: Oct 2017

wow, so you are past the 5 year mark. Congratulations.  Thank you for taking the time to let me know

Bay Area Guy's picture
Bay Area Guy
Posts: 449
Joined: Jun 2016

My lesion was discovered in December, 2013 and I had surgery in June, 2016, so 2-1/2 years.  Mine was quite small at discoery, something like 1.5 or 1.6cm.  The urologic oncologist I had said the standard of care for lesions that size was to monitor.  When an ultrasound determined that it had grown to 1.7cm in April, 2106, the decision was made to take it out and that happened two months later, mainly because that was the first opening the surgeon had.

medic1971's picture
medic1971
Posts: 198
Joined: Sep 2015

My length was a bit longer.  I had already seen a urologist here in my home town and even had surgery scheduled, but my gut told me I need to go to MD Anderson.  I meet with the folks at MD Anderson and they discovered a second mass on my right kidney that on my original films... No one here ever mentioned a second tumor.  Oct 23rd 2015 I had two tumors removed from my right kidney.  One was 2.2cm and the other was only 0.8cm.  I kept more than 95% of my kidney.  I've had no issues since.

Angie1496's picture
Angie1496
Posts: 154
Joined: Sep 2017

Hi!  Welcome to the club no one wants to be in! I had a 4.5cm mass on the upper lobe of my right kidney. RCC diagnosed 8/4/2017 removal 9/6/2017. Original surgery date was 10/25 but a cancellation bumped it up. I was very thankful because the wait was horrible. I had a partial losing about 10% of my kidney. i hope you get a date soon. My doc scheduled mine the same day I saw him for consultation after I was referred by my urologist. 

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

Pulled into Nazareth, I was feeling 'bout half past dead.

Finding out that you have a kidney tumor and that it can kill you is as scarey as it gets. Then to find out that it has to be removed is actually an easy thing to accept. Obviously the sooner the better. Then they say they'll do it in 3 months! YIKES!! The textbook stress producer that almost drives you insane. Believe me I sympathize.

But the wait itself can be a good thing. Many times a growing tumor, and/or mets can be best treated with a tki as an antiangiogenic. This makes removing a controllled tumor more favorable somewhere down the road.

 The same thing goes with starting opdivo. With multiple mets, they don't usually remove them all during surgery. But if your immune system can first eliminate multiple tumor sites, the surgeon can focus on the primary and larger tumors.

Both reasons for a delay of surgey is a great approach. It didn't use to be an option. It makes a lot of sense but almost everyone just wants it out.

pamstayner's picture
pamstayner
Posts: 111
Joined: Apr 2014

at the appointment when I was told it was 99.9% certain to be cancer, at a bit over 12 cm .. they wanted to begin pre surgery tests and to schedule the surgery.  It is a University hospital, so every resident and fellow and probably the janitors came in to look at the ultrasound, and they all go" WOW that's a big one"  like they all could hardly wait.  My husband was supposed to be in the truck with his fishing buddies leaving for Lake Shasta while we were in the office... and so, since he heard it was cancer, and that they were going to take it out, could they do it in 10 days when he got back from fishing.  And off he ran down the hallway to get into the truck.  That was fine with me, I spent the next 5 hours getting tests done, signing paperwork for everybody and their foundations to claim a hunk of the tumor for their research, came home, told my grown kids, and sat for 10 days.  Then they took it out. "Got it all" wam bam, thank you Mam.  I only knew I  had cancer for ten days ... felt like I had been side swiped by a city bus... BAAM  you have cancer, turns me sideways, then "we got it all, BAAM now I don't.  I was bewildered, numb, and dumb.  and stayed that way.  They took a chest x-ray 6 months later, and that was fine.  And scheduled another check up for a year later.  At the 14 month mark, I was back with the surgical team for removal of a brain tumor.  THEN as I was recovering, I found both this site, and Smart Patients.  NOW I am getting educated.. more every day.

Be viligent, get well informed, know the protocal for Kidney Cancer and staging, and you will be well involved in your health.

Hope my story gave you a bit of a laugh.  My husband does love his fishing, and after 51 years with this man, I handle him well.

Pam

pamstayner's picture
pamstayner
Posts: 111
Joined: Apr 2014

at the appointment when I was told it was 99.9% certain to be cancer, at a bit over 12 cm .. they wanted to begin pre surgery tests and to schedule the surgery.  It is a University hospital, so every resident and fellow and probably the janitors came in to look at the ultrasound, and they all go" WOW that's a big one"  like they all could hardly wait.  My husband was supposed to be in the truck with his fishing buddies leaving for Lake Shasta while we were in the office... and so, since he heard it was cancer, and that they were going to take it out, could they do it in 10 days when he got back from fishing.  And off he ran down the hallway to get into the truck.  That was fine with me, I spent the next 5 hours getting tests done, signing paperwork for everybody and their foundations to claim a hunk of the tumor for their research, came home, told my grown kids, and sat for 10 days.  Then they took it out. "Got it all" wam bam, thank you Mam.  I only knew I  had cancer for ten days ... felt like I had been side swiped by a city bus... BAAM  you have cancer, turns me sideways, then "we got it all, BAAM now I don't.  I was bewildered, numb, and dumb.  and stayed that way.  They took a chest x-ray 6 months later, and that was fine.  And scheduled another check up for a year later.  At the 14 month mark, I was back with the surgical team for removal of a brain tumor.  THEN as I was recovering, I found both this site, and Smart Patients.  NOW I am getting educated.. more every day.

Be viligent, get well informed, know the protocal for Kidney Cancer and staging, and you will be well involved in your health.

Hope my story gave you a bit of a laugh.  My husband does love his fishing, and after 51 years with this man, I handle him well.

Pam

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

But then I had lots of co-workers at the hospital that led me in the right direction.

Thank God for friends,

Donna~

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