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delayed symptoms from cyberknife treatment

dao1
Posts: 2
Joined: May 2013

during a consult my ucsf doc said within 5 years 50 per cent have sexual issues from cyberknife.later reading on my own i see that urinary issues also can occur after cyberknife up to 5 years past treatment,i am also concerned with possible rectal cancer connection.any comments particularly about the urinary difficulties than can arise 5 years post treatment.Also any thoughts about the necessity of tx at 65 with a 6.4 psa,3+3 gleason.I have read only 10 per cent die from cancer if they have lived that long already without treatment and are not symptomatic.I am worried that treatment could cause more suffering than no treatment.

Clevelandguy
Posts: 427
Joined: Jun 2015

Hi,

If you do your homework you will find all treaments have side effects and those side effects vary between individuals.  You have to make the decision which treament based on the location & agressivness of your cancer will prolong your life.  People on this forum have had radiation treatments in various forums, some with very little side effects, some with major.  The same goes for surgery, so unless you are willing to go AS there will be some side effects.  With AS the clock starts ticking with a who knows how long lifespan.  Could be the cancer that takes you or some other type of disease.  I am a firm believer in doing what I can to prolong my life but also not knowing what the future holds for me.  Heck, you could be cured from cancer and then get hit by a delivery truck, right! You just hope that you picked a good team of doctors with state of the art facilities to lessen the chance of side effects.  Keep studying and reading and you should come to the conclusion on which treament plan is best for you.

Dave 3+4

mstoriop
Posts: 34
Joined: Dec 2016

https://prostatecancerinfolink.net/2016/01/06/nine-year-outcomes-after-treatment-with-sbrt/

 

Here is one link and there are others to Dr Katz's 9 year study. This may help you with your urinary and bowel toxicity questions.  The results as far as grade level toxicities seem pretty linear from the 6 year study to this one so while it is just numbers and statsitics there seems to be a reasonably acceptable outcome for a very high percentage of SBRT patients.  Lots of information and help out there good luck with you decision.

hopeful and opt...
Posts: 2218
Joined: Apr 2009

After having proper diagnosis tests, you may qualify for for Active Surveillance, that is to monitor  the cancer while reserving medical intervention when some aggressive behavior is monitored.

In this way you can avoid Active Treatments such as Surgery or Radiation that can have significant side effects that will be a determent to your quality of life.

There are requirement that you need to meet to be enrolled in an active surveillance program. You mention that you have been diagnosed with a 3+3=6; how many cores taken, how many positive, what was the involvement of each core that was positive, that is how much of the core was cancerous. Any other info from the pathology report? What did the digital rectal exam reveal? Any other diagnostic tests? Is your prostate size indicated in your biopsy report(there is a correlation between PSA and prostate size that is important, (larger prostates secreet more PSA since there is pressure on the urethea)  Anyway get back to us.

Studies have shown that Gleason 6 cancers do not metatize, and are not a theat, however you need to see a specialist of Active Surveillance that can monitor your cancer. There is new technology that is available, tha is a 3 T MRI Guided Biopsy that first determines suspecious lesions with an MRI, ranks them and then fuses the results to a three dimensional biopsy machine. This procedure is not random as the 12 core biopsy that most men receive in the local doctors office.

Currently approximately 40-50% of men who are diagnosed with low aggressive cancer who qualify for active surveillance , follow a monitoring protocol. The rest over treat and many of these experience severe side effects.t

Here is a thread of a poster to this forum who recently posted, which contains valuable information for your to access.

https://csn.cancer.org/node/311048

Here is more informative information from subdenis, who posted this presentation. It is very worthwhile

https://csn.cancer.org/node/312019

I personally have been in an active surveillance protocol since March 2009. You may click my name to the left to read about what I have done, and some information about diagnostic tests.

A

 

Swingshiftworker
Posts: 1013
Joined: Mar 2010

Who at UCSF told you that CK can cause sexual problems for PCa patients 5 years after treatment?  I never heard that before.  Was it your PCP or someone who is actually involved in the CK program at UCSF?

I was treated at UCSF by Dr. Gottscchalk (the head of the CK program) and I have had no sexual problems 7 years post-treatment.  I have continued to have urinary issues that existed BEFORE my CK treatment and have remained the same (not improved or worsened) after treatment.

If you have not spoken w/him already, I recommend that you get a referral to speak w/Dr. Gottshalk about CK and its potential side effects.  I think he would be the most knoweldgable person at UCSF to consult w/on the topic.

 

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