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Uncle NED is visiting but hasn't moved in yet...

Posts: 79
Joined: Jun 2016

An update on my son-in-law John who was diagnosed last summer with stage IV, grade 4 sarcomatoid RCC.  The latest scans came back a week or so ago and there are NO visible tumors anywhere and the one on his aorta that was zapped with SBRT a few months ago is totally non-existant now (only scar tissue from the radiation burn in the lung is there).  He continues on Opdivo every two weeks which seems to be working well for now which still causes him extreme fatigue.  He is 43 yo and has two children, 3 and nearly 2.  We feel very blessed at this time.

I understand that you really can't cry NED until 3 sucessive scans show no evidence of disease...but really...so far so good!


BoondockSaint's picture
Posts: 242
Joined: Mar 2017

Great news, great news indeed!!

JerzyGrrl's picture
Posts: 761
Joined: Jun 2016


Wasn't aware of Three's-the-Charm, but you DO realize that Uncle NED is a busy guy who's always on the road, right? So "moving in" just means using an address for residency, legal, and tax purposes (He'll visit, too, wherever one lives).

Happy dancing...!

daisybud's picture
Posts: 512
Joined: Jan 2016

Wonderful news. So very happy for your family!!!

APny's picture
Posts: 1998
Joined: Mar 2014

Very good news! So happy for you and your family.

Posts: 489
Joined: Aug 2017


Angiebby75's picture
Posts: 209
Joined: Aug 2017

That is wonderful news

stub1969's picture
Posts: 917
Joined: Jul 2016

You took the words right out of my mouth--Wonderful News!!. 


hardo718's picture
Posts: 853
Joined: Jan 2016

Celebration worthy!  I wasn't aware of the 3 times rule with NED.  As far as I'm concerned, everytime there's good news, it's evident NED is present.

God Bless,


foroughsh's picture
Posts: 779
Joined: Oct 2014

Great news, very happy for him and your family

Posts: 22
Joined: Jan 2017

What wonderful news. Reading your post has made my day!  Thank you for updating. 

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