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Laparoscopic partial kidney nephrectomy on t1b

Mighty Frog
Mighty Frog Member Posts: 152

Hi! Dear All, 

I was diagnosis last year (2016) by ultrasound during my yearly annual medical check up. They found a mass of size 3.5cm. I thought it was not serious matter, just cysts or kidney stone. 

Recently, i just taken a CT scan (finally), revealed the tumor had growth to 4.6cm and confirmed is RCC. After i joined here, i finally know how stupidity and serious my situation which i took my life for granted. 

My urology have arranged me 20/7/2017 for laparoscopic partial kidney nepthrectomy (LPN). Sound very scary. I hope it is the best decision and option compared to others treatment available. Now i very concern on the following:

1. How is was the recover after the LPN? Heard it will be VERY pain during 1-2 days and fully recovery after 1 year...?

2. Is any there treament i need afer my LPN (As my doctor did said there is no further treatment after removed)

3. Will after surgery i will be progression to CKD?

4. Do i have to change my eating lifestyle?

5. The most asked question, will be recurrent ?

 

Thank you! 

 

Comments

  • icemantoo
    icemantoo Member Posts: 3,357 **
    edited July 2017 #2
    Welcome to the club

    Mighty F.

    Welcome to the club which no one in their right mind would volunteer to join. Here are some answers to your questions.

     

    1.Not fun. Hopefully you will be back to a xlow normal in about  5 weeks.

    2. Hopeefully not.

    3. Club members in general have lower CKD numbers than the general public. Uour doctors will monitor this.

    $. Eat healthier.

    7. Unlikely but there is always a small chance so you will receive follow up scans.

     

    May you have an uneventful surgery.

     

     

    Icemantoo

  • stub1969
    stub1969 Member Posts: 933 **
    Welcome, Mighty Frog

    Sorry you you are joining the "club".  I had a partial in August 2016 for a removal of a mass a little over 5 cm at the greatest dimension.  If you click on my "name" you can read about my journey.  In the meantime, let me address your questions:

    1.  The surgery isn't as bad as your imagination makes it out to be.  Sure it's not fun, but this is part of the journey.  You'll be fine.

    2.  Furture treatment....I'm sure your doctor has looked closely at your CT scan.  If there is no spread then the only treatment is ongoing scans.  You'll get more information about your tumor in your pathology report.

    3.  Probably not--My kidney function is as good as it was prior to my partial.

    4.  I guess it depends on how you're eating now.  I suggest a lower sodium diet.

    5.  My doctor told me that it was 95% chance of NOT coming back.  I'll take those odds.

    Take care and keep us updated.  Continue to ask questions and we'll do our best to answer them.  

    Good luck and God bless.

    Stub 

  • Forger
    Forger Member Posts: 20
    edited July 2017 #4
    Not To Be Debbie Downer...

    5. The most asked question, will be recurrent ?

    I was told the same about surgery being the end of it, now, 7 years later I'm re-DX'd with RCC with mets in the lymph nodes in the R adrenal area. 

    STAY ON TOP OF FOLLOW UP EXAMS!!! 

    That was my mistake, "Awww, pffft, it's gone and I feel fine!!" until a CT during a ER visit for pancreatitis showed a mass on my R adrenal gland.

    Make sure you discuss follow ups with the Doc.

  • Mighty Frog
    Mighty Frog Member Posts: 152
    Thank you

    Thank you! icemantoo, stub 1969 and Forger, after my this surgery will definitely keep checking and monitoring. Well, if everything goes well, it is like given a Second chance in life... only this this time, have to work harder to redemy back all the health mistakes which had made in the past. U all correct, i have to take a 360 degree change on my diet and lifestyle.... 

    And once again thank you for your support! 

    Will keep you all update on my situation. 

  • Bay Area Guy
    Bay Area Guy Member Posts: 521 **
    No surgery is fun, but in the

    No surgery is fun, but in the hierarchy of surgeries, the robotic assisted partial isn't as bad.  Everyone's experience is different, but compared to some open abdominal surgeries I've had to endure, the recovery from the kideny surgery went easier.  The risk of recurrence will depend, in part, on the type of RCC that's diagnosed.  Mine was chromophobe, and the surgeon told me it rarely spreads and rarely recurs, on top of growing very slowly.  But I'll have scans and x-rays every six months (just had my second six month scan yesterday, so today I'm waiting for the results).  Your ongoing monitoring will likely be the same.  In terms of kidney function, my creatinine before the operation was 1.1.  They measured it again yesterday before the scan (as it was done with contrast) and it was 1.1.

    Best wishes for a totally boring, unremarkable surgery and recovery.

  • donna_lee
    donna_lee Member Posts: 1,018
    edited July 2017 #7
    To avoid a repeat or otherwise long

    explanation, click on my user name and read my bio.

    Yes, I've had Lap surgery-to have my tubes tied and later as exploratory diagnostic for female problems.  Take it easy and you'll be up and about in a "reasonable" amount of time.

    Yes, mine recurred, as they say.  But it had already mets'd by the time it was found.  And it had probably already invaded the nodes that grew later.

    and Yes, food and beverage is something to be aware of.  I had been on high blood pressure meds and cholesterol meds for several years prior to dx; but I had a really stu... Dr. who never investigated why the BP was going up. Everything is better than normal and it's 11 years post surgery.  No soda's, 1 alcoholic beverage a year, no extra salt but plenty of flavor with seasonings, and a variety of foods.

    I have a blood test prior to a CT, and they won't administer the dye if my eGFR is not in a specific range. That's because the one kidney needs to filter and pass all the radioactive dye to get it out of the body. So far the test has never had to be postponed,

    To learn what all the different tests mean on your CBC - Complete Blood Count, or CMP - Complete Metabolic Panel, go to the ACS site or google Blood Test Resutlts.  Beware of sites that try to advertise to you-as in a magic supplement to lower blood pressure, etc.

    So...get your ducks in a row and have your house ready to return home.  Let the crew do their jobs and focus on recovering.

    Good Luck and hugs,

    donna_lee

  • Bay Area Guy
    Bay Area Guy Member Posts: 521 **
    edited July 2017 #8
    1. How is was the recover

    1. How is was the recover after the LPN? Heard it will be VERY pain during 1-2 days and fully recovery after 1 year...?

    My recovery from a robotic assisted LPN was not very bad.  I was pretty much pain-free the morning after my surgery, absent the pulling sensation from the stuff they used to seal the incisions.  I was back at the gym pretty much full force for cardio in about six weeks, and back to lifting weights about a month after that.  But everyone is different.

    2. Is any there treament i need afer my LPN (As my doctor did said there is no further treatment after removed)

    I just had my second six month scans completed.....x-ray and CT.  You'll likely have the same schedule unless something unforseen arises during surgery.  But given your scans, that seems unlikely.

    3. Will after surgery i will be progression to CKD?

    That should not be the case.  Before the surgery, my creatinine was 1.1.  Before my CT scan yesterday, the test for creatinine (since they used contrast material in the scan) was 1.1  No change despite having a smaller kidney.

    4. Do i have to change my eating lifestyle?

    I wasn't given any specific instructions, but eating a healthy, balanced diet never killed anyone.  I periodically have a glass of wine or a beer and once in a great while, I'll have a steak, when I feel like I just need to get some extra iron in my body.  But mostly, I stick with lean meats and a lot of seafood.

    5. The most asked question, will be recurrent ?

    Your doctor can give you all the statistics.  In large part, it depends on the particular type of RCC that's diagnosed.  In my case, it was chromophobe RCC, a variety that affects only about 5% of RCC patients.  Fortunately, it's slow growing, rarely spreads and rarely recurs.

    Here's hoping you have the most boring surgery and speedy, uneventful recovery imaginable.

  • medic1971
    medic1971 Member Posts: 205
    Hi Frog

    My urology have arranged me 20/7/2017 for laparoscopic partial kidney nepthrectomy (LPN). Sound very scary. I hope it is the best decision and option compared to others treatment available. Now i very concern on the following:

    1. How is was the recover after the LPN? Heard it will be VERY pain during 1-2 days and fully recovery after 1 year...? Not too bad.  I mean it was no cake walk but it wasn’t that bad.  I was on pain meds for about 3 or 4 days around the clock and then only at night for the next week or two.  The gas pain hurt the most to be honest with you.  Getting in and out of bed was a pain in the butt.  I was off work for six weeks before returning to my full-time office job and it was about 10 weeks before I returned to my part-time job as an ER nurse.  Working in the ER can be very physical at times and I didn’t have any issues. 

    2. Is any there treament i need afer my LPN (As my doctor did said there is no further treatment after removed)  Follow-up scans.

    3. Will after surgery i will be progression to CKD? I had two tumors removed and lost only about 5% of my kidney and saw no change to my kidney function

    4. Do i have to change my eating lifestyle? You should eat healthy, but this is true for everyone not just cancer patients.

    5. The most asked question, will be recurrent ?  Unlikely, maybe about 5 to 10% chance.  A lot will have to do with pathology.  Keep this in mind, until they get that tissue under a microscope no one can tell you for certain that this is in fact cancer. 

    Hang in there!

  • Mighty Frog
    Mighty Frog Member Posts: 152
    Follow Up & Check Up after Surgical (CT Scan vs MRI)

    Thank you for information Bay Area Guy and medic1971, atleast now i have some pictures how it is going to be.

    Another of my concern the use of CT scan during the followup. Heard that CT scan can cause cancer. Can we opt for MRIs scan? As we are periodically need check up. If MRI can get the job done.... I likely will opt for MRI

     

    Counting down to 20/7/2017......

     

  • daisybud
    daisybud Member Posts: 521
    I tried for mri

    But only succeeded once so far.  My insurance denied them since the one year mri follow up.  Now it's ultrasound with chest xray  or ct at yearly followups 

    Kim

  • Bay Area Guy
    Bay Area Guy Member Posts: 521 **

    Follow Up & Check Up after Surgical (CT Scan vs MRI)

    Thank you for information Bay Area Guy and medic1971, atleast now i have some pictures how it is going to be.

    Another of my concern the use of CT scan during the followup. Heard that CT scan can cause cancer. Can we opt for MRIs scan? As we are periodically need check up. If MRI can get the job done.... I likely will opt for MRI

     

    Counting down to 20/7/2017......

     

    I've been told various things

    I've been told various things by various doctors regarding how effective an MRI is at detecting RCC.  The urologic oncologist I use at Stanford didn't mention that mode, only mentioning CT and ultrasound.  Of course, that may have had something to do with me telling him I'm quite claustrophic, so if I were to have an MRI, it would have to be an open MRI.

    I'm going in on Tuesday for an appointment with my surgeon.  I already have the results of the chest x-ray and CT scan that have been done (all clear), and I'm going to ask if I can have ultrasounds going forward, just to minimize the exposure to radiation.

  • JerzyGrrl
    JerzyGrrl Member Posts: 760
    edited July 2017 #13

    Follow Up & Check Up after Surgical (CT Scan vs MRI)

    Thank you for information Bay Area Guy and medic1971, atleast now i have some pictures how it is going to be.

    Another of my concern the use of CT scan during the followup. Heard that CT scan can cause cancer. Can we opt for MRIs scan? As we are periodically need check up. If MRI can get the job done.... I likely will opt for MRI

     

    Counting down to 20/7/2017......

     

    Going for the CT?

    If you're going for follow ups, it's generally because you were already found to HAVE cancer, no "mights" about it. Why the CTs then? They'rekeeping a close eye on anything that might appear. If something is ID'd as a result of your having a CT, it'll be small and more easily treatable. 

    I'm personally voting for regularly scheduled CT scans, accompanied by a chest x-ray. I've done my best to eliminate the rest of the known or reasonably-suspected cancer-causing items (that I have control over) from my life, so I'm willing to make the trade-off. 

  • Mighty Frog
    Mighty Frog Member Posts: 152
    Finally the day has come...Going in 2day...

    Hi! Dear all!

    Today noon, I will going in for LPN surgical. Will keep u posted on my situation.  

  • stub1969
    stub1969 Member Posts: 933 **
    You'll do great!

    Keep us updated.

    Stub

  • Jan4you
    Jan4you Member Posts: 1,327
    One of the most painful

    One of the most painful things is something no one tells you about=the GAS the surgeon uses to pump up your abdomen, why? So he can see! It gets trapped and takes awhile to get out of the body. One place it tends to be trapped is in the shoulder. YES, it is painful, but if you know its a harmless gas and move around, esp your arm you'll get it out and be fine. Many mistake this pain from the actual surgery procedure. 

    USE ICE packs over incisions, to reduce swelling=less pain=less pain meds. 

    I have had 2 laprocropic/robotic surgeries and found both MUCH easier, less painful than two bigger, open (larger incision) surgeries (for other things).

    AND I used a lumbar wrap to support those healing, painful muscles/insides. Helps a lot for getting up from chair or bed. Yes, I wore it to bed. 

    I was done with pain pills in less than 5 days, using ice and this support wrap.

    Think about that and see if it can be helpful for you as well.

    You WILL get through this and sounds like by the size of your tumor, cancer will most likely be gone with surgery. Think about THAT! Not too folks with many other types of cancer have such reassurances as most of us do.

    Good luck! Let us know how you are doing. 

    Healing hugs, 

    Jan

     

  • lobbyist0724
    lobbyist0724 Member Posts: 471
    You are in good hands and it

    You are in good hands and it is time to just plan ahead on the recovery phase!

  • Mighty Frog
    Mighty Frog Member Posts: 152
    Thank You Everyone!

    HI! 

    Time really flies. Is already 1 week already from my surgery. Things are getting better each day, but still a long way to full recovery....

    Thank you very much for all your support and information.