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Peeing symptoms

hewhositsoncushions
Posts: 279
Joined: Mar 2017

Hi all

Pre-op on Monday so all progressing.

In the meantime...

Last two days have suffered serious "garden sprinkler knob" when peeing, usually when near empty or when waking or getting up from rest. Am also having some trouble kick starting the process sometimes. Ealier in the week I was fine. Only used to get this after sex.

Having the odd twinge down below too.

This week has been a massive break from routine as we are on holiday and walking up to ten miles a day and I am usually knackered by the end of the day.

So, questions... is this random / common for someone at my stage? Is it signs the bandit is progressing? Or is it (as I suspect) all in my head?

Cheers

C

RobLee's picture
RobLee
Posts: 259
Joined: Feb 2017

I had weak stream and difficulty starting for several years before the cancer diagnosis, but I understood that this was common for a man my age and probably due to BPH or prostate inflamation. Cancer was never mentioned to me until very late in the game.  I know there are lots of medications used to treat the symptoms you describe but at this stage in your story I'd say all that will be in the past after surgery.  You'll have a catheter for about ten days followed by several months of (hopefully) regaining continence. Once all that's healed many guys report a strong stream like they hadn't seen since theri twenties. Good luck... I hope all goes well with your surgery and recovery.

Grinder
Posts: 441
Joined: Mar 2017

Yeah, ditto on what he said^... sounds like BPH symptoms. VDG or Max will know better if this is symptomatic of metastasis. But if you are getting a robotic RP, then you should be glad because bph only gets worse the older you get, not to mention prostatitis attacks. So the RP will spare you a lot of catheters and Flomax. And yes, I pee now like than a twenty year old. I could win a distance contest now... If there was such a thing. I could work for the FD and put out fires. OK, that last one was hyperbole, but you get the idea. Just be aware of the temporary incontinence (3 to 6 mos.), temporary ED (1 to 2 years), and permanent "size reduction" of 1-2 inches. This all assumes you have an experienced surgeon capable of nerve sparing.

VascodaGama's picture
VascodaGama
Posts: 3030
Joined: Nov 2010

Surely such is not a sign for progression. Relax. Enjoy your holidays. Get ready for the D-day.

Best wishes for events next week.

VG 

hewhositsoncushions
Posts: 279
Joined: Mar 2017

Cheers Vasco

I think you can tell by now I am a worrier :)

Good news - pre-op tomorrow and op now booked for 22nd.

Just got to get through my fear of anaesthesia :)

C

VascodaGama's picture
VascodaGama
Posts: 3030
Joined: Nov 2010

Cushions,

Along my years of sequential treatments and survivorship, I've found that knowing in advance what to expect has given me that relaxed and comfortable peace of mind. I research so much that sometimes I feel that I have the upper hand over the bandit, to the extreme of seeing it as a marionette with strings in a play in which I am the puppeteer. Now turn to the right, now to the left.

I would like you to describe your experiences, fears, etc, along this preparedness period, and then the ending of the story. This is an experience that not many will have the opportunity to tell about to their children and grandchildren.
My radical in August of 2000 was open surgery. I got into the hospital three days in advance of the operation. I got used to the facilities and the staff, becoming very familiar as a member in a play. On the evening before D-day my surgeon come with the team in charge of the surgery (about 7 members), introducing them by name and profession. Late before bed time someone come to my bed to shave my body hair. I also had a special meal (?). In the morning of the D-day a nurse gave me sort of liquid food (no breakfast) and some tablets for relaxing. My wife was with me all along. About noon time I was dressed a gown, got an injection (?) and was laid on to a stretcher. I looked to my worried wife but was kind of drugged, her words sounded like "Lucy in the Sky with Diamonds". I felt I was in a play and told her she looked beautiful. Then two guys rolled me out of the room to the corridor, to an elevator down to the operating floor. At the theater's doors we crossed-looks, touched hands and exchanged smiles. I could see a large room with the machinery around and the theater zone all glassed. In front of me there were two anaesthetists in green suits that asked me if I knew them to which I answer "yes" but could not tell the names, my memory was still in the skies. Then they said "... we are going to insert an injection into your back please turn..." and I did it and felt sort of a cold drip running down my back and ..... that's it, no pain nothing just fall into a comfortable sleep in a matter of seconds.

Open surgery requires blood supply so that four weeks before surgery I gave two times (each 400cc) my own blood. The anaestesia was epidurial. I never felt pain before and after the surgery. The operation took 5.5 hours. I wake up in the recovery room with my wife's smile in front. Later a nurse come and washed me up all over including the particulars (at the goggling eyes of my wife). Then one doctor come to inspect and set massaging sac arround my leg calves. On the second day I was walking in the hospital corridors pushing along a wheeled tripod with attached medicine tubes and catheter's sac. I stayed in the hospital additional 10 borring days strolling at the outer gardens in the mid of a series of tests and exams. It was the norm of my surgeon that nobody would go home with the catheter attached.

I hope you too have an eventless surgery and fantastic outcomes.

Best

VGama

RobLee's picture
RobLee
Posts: 259
Joined: Feb 2017

I've had three surgeries in the past year related to my PCa, the most recent was less than one week ago. The first two left me with an indwelling catheter for 10-14 days. Only the second surgery, to implant the artificial sphincter, was an entirely unpleasant experience. I believe that the anesthesia was too deep for that one. On the other hand, I am glad that I did not wake up in the middle of the procedure ("intraoperative recall").

These recent three bring me to well over a dozen major surgeies in my lifetime. Needless to say, I survived them all. My major fear is that each one counts as yet another time that I dodged the bullet. There are statistics regarding one in every how many surgeries result in catastrophe. Like the cat who has already used eight of his nine lives, it does not mean that the next time will be the last. Maybe this cat has ten or twenty lives. Probably somewhere there is (or was) someone who did not survive his or her first surgery.

There are risks accociated with every form of medical intervention. It is never an easy decision, however there are usually only a few choices and most of them more certailny result in an unfavorable outcome than does the surgery. One must just go into it knowing that it is necessary to get past this and not fret about it.

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