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CSN is getting an upgrade. All of your posts will still be here, but the website will have a new look, new features and be mobile-friendly. To prepare for the changes, the site will be down briefly at the end November. We’ll continue to provide updates as we get closer.    


Ed Brabant
Posts: 61
Joined: Apr 2013

Monday going for the first scan after 4 clinical trial infusions. 2 months worth. Anyone who was involved with the Opvido trial see results after 4 infusions?

Manufred's picture
Posts: 241
Joined: May 2017

Don't expect too much.  My own early results were stable - no growth but no diminishment.  Got a lot better after that.  Best wishes.

Ed Brabant
Posts: 61
Joined: Apr 2013

I was shocked yesterdy when I got the results from my first scan. Stable. With one exception. The largest in my right lung shrank 60%. I almost fell off the chair!

Abunai's picture
Posts: 173
Joined: Oct 2016

That's great, Ed!

What treatment are you on?

Ed Brabant
Posts: 61
Joined: Apr 2013

Varilumab/Nivolumab trial at Mass General Boston

Abunai's picture
Posts: 173
Joined: Oct 2016

I'm a few months into a trial that also pairs Nivolumab with another drug. I'd love to see some similar results in the near future.

You have my best wishes.

Ree_Maryland's picture
Posts: 161
Joined: May 2014

Awesome news ,keep it up.

Jan4you's picture
Posts: 1327
Joined: Oct 2013

Onward soldier! YAY you're on your way!

hugs, Jan

Dutch1's picture
Posts: 152
Joined: Mar 2014

Falling off a chair never felt so good, right?

Glad you are seeing results.



APny's picture
Posts: 1998
Joined: Mar 2014

Wonderful news! So happy for you.

daisybud's picture
Posts: 521
Joined: Jan 2016

Happy for you


Allochka's picture
Posts: 974
Joined: Nov 2014

Isn't that wonderful? Hurrah!!!!

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