My First Treatment Yesterday

Options
Clon
Clon Member Posts: 20

Ok, I had my first of 35 radiation treatments and first of 7 weekly cisplatin treatments for SCC unknown primary.  The radiation went well and the mask was tolerable, so far.  When I finished the Cisplatin I felt good.  I started getting nauseous last night about five hours after I got home.  I took my compazine as prescribed.  I slept fair for a few hours and then woke up with incredible heartburn around 2:20 AM.  I took a zantac and that seemed to help.  This morning I went for my daily dose of radiation, feeling a little queasy.  By the time I got home I was full fledged nauseous again.  I have been alternating my zofran and compazine every four hours as prescribed and have been throwing up most fo the day.  This is miserable. 

My Question, has anyone had similar experiences with the Cisplatin.  Should I expect to be this sick after every treatment, or is this just the first day or two after chemo. Will my body adjust over time where the sick feeling is not as intense.  I am just imagining how bad the side effects from the radiation are going to be if the chemo side effects stay this strong the entire time.  

I am also open to any advise any one has to offer.

«1

Comments

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    Options
    welcome to the beginning

    Clon,

    Welcome to the H&N forum, sorry that you are in for the duration.

    Many, many H&N members get nauseated.  You learn to pre-emptive and if that doesn’t work you speak with your team (nurses and doctor) about another med (there are many).  For many, you do adapt to a degree and learn to try every tick in the book.

    I do recommend drinking lots of  water and swallowing often.

    Now, hurry up and get better so you can enjoy this ride.

    Matt

  • stevenpepe
    stevenpepe Member Posts: 234
    Options
    I had 6 weeks of Cisplatin

    I had 6 weeks of Cisplatin with 35 rads. Never got nauseous. I assume they are supplementing the chemo with anti nausea meds? Drink lots of water. I didn't experience effects from rads until around the 4th week. Take a daily dose of constipation powder. Miralax worked well for me.

  • lightpulse
    lightpulse Member Posts: 13
    Options
    Cisplatin

    Clon,

    I don't know what kind of kemo I was given, whether it was Cisplatin or something else but nausea or vomiting was never an issue with me. I was given 2 medications for nausea, Ondasetron HCL and Prochlorperazine Maleate. I was told to take the latter in an emergency. Perhaps your oncologist might consider these two medications.

    Tak...

  • Engelsa
    Engelsa Member Posts: 50
    Options
    Anti nausea drugs via IV

    Is your transfusion unit providing anti nausea drugs via IV paired with fluids prior to chemo? This helps the patient considerably. Many times additional fluids are given after the chemo as well.  By all means speak to your oncologist  about this. There are many options to stop the nausea.

    S

  • Sprint Car Dude
    Sprint Car Dude Member Posts: 181
    Options
    Cisplastin

    I had the same basic therapys. I was sick for about 3 days following the chemo day. Then it gradually cleared up by the next round of chemo. Drink as much water as you can then drink another gallon. It will help with constipation down the road. I also got hiccup on the second day after chemo almost to the hour. Hey, we are all different and hopefully its just a one and done for you.

  • Kapital
    Kapital Member Posts: 52 Member
    Options
    Nausea

    My husband was instructed to take two Zofran pills, one hour before his arrival, for his chem appointments. He then was given a full liter of IV fluid, along with a dose of IV Decadron, before they started the chemo infusion. After the chemo he was told to take the Zofran pills, every twelve hours, for 3 days, after chemo. He also was given a perscription for Compazine, in the event of any breakthrough nausea. Of course, hydration is super important. In order to feel well you have to be well hyddrated. This routine worked well for my husband, but everyone is different. You should talk to your doctors about your nausea. Wishing you well.

  • Joel4
    Joel4 Member Posts: 263 Member
    Options
    Heartburn

    Clon,

    Not sure if you suffer from reflux or not, but mine got worse during treatment, and the one time I threw up was due to bad reflux at night.  During treatment I went from one Omperozal  to two and that did the trick for me.

    Otherwise, they expect you to be nauseous from time to time but actually throwing up is unusual.  All I can suggest is communicating that to your team and perhaps they will change something up with the meds.  Ativan is another good one for nausea though it is used to treat anxiety.

    Hope you get this under control and I'll be praying.

    Joel

  • MMDowns
    MMDowns Member Posts: 318
    Options
    I would definitely talk to

    I would definitely talk to the nurses and your oncology dr.  My husband and I found that the the oncologist nurse was the one to really talk to and the infusion nurses were amazing as well.  They know that the drugs will make you nauseated but they really try to keep one from vomiting if they can.  There are so many drugs to try.  I noticed others have asked if you received anti nausea drugs via IV before the actual chemo was administered. MY husband received 3 anti-nausea drugs before chemo each time.  I do hope you feel better and soon!  Keep in communication with your dr. and nurses.  Hang in there!

  • AnotherSurvivor
    AnotherSurvivor Member Posts: 383 Member
    edited May 2017 #10
    Options
    I had both anti-nausea pills

    I had both anti-nausea pills available, and it was included in my cocktail.  I started having reactions about 4 hours after chemo treatment, it became severe by week 4.  It took the form of fevers and chills.  I strongly endorse speaking to your infusion team nurses, in addition to your oncol.  Probably, you will find yourself needing daily hydration infusions by week 4, and your infusion nurses become your lifeline.   If you can afford it, I would look into purchasing a blood-pressure cuff, and definitely at least one digital thermometer.  Always have a thermometer available, it is a critical first indicator.  Costco has them both in abundance, I would imagine many other retail stores with pharmacies as well. Start monitoring your vitals at home, write all this in your treatment log notebook, along with all instructions, appointments, etc. with your med team.  Probably it is best if that is done by someone besides you, in my case it was my wife.  In a week or two you will be increasingly out of it, and your primary care-giver becomes your mental process.

  • Chicklette
    Chicklette Member Posts: 225
    Options
    Similar

    my husband will start treatments on the 8th and it sounds like you are on a very similar treatment plan.  He is also scc with unknown primary.  36 rads and weekly cisplatin (35 whatever the measurements are).  I'm hoping he doesn't get too nauseous.  We are both getting a bit nervous.  Good luck to you!

  • MMDowns
    MMDowns Member Posts: 318
    Options

    Similar

    my husband will start treatments on the 8th and it sounds like you are on a very similar treatment plan.  He is also scc with unknown primary.  36 rads and weekly cisplatin (35 whatever the measurements are).  I'm hoping he doesn't get too nauseous.  We are both getting a bit nervous.  Good luck to you!

    How are you?

    Missed "seeing" you on here!  How are you and your husband? Thinking of you guys!

  • Chicklette
    Chicklette Member Posts: 225
    Options
    MMDowns said:

    How are you?

    Missed "seeing" you on here!  How are you and your husband? Thinking of you guys!

    Thanks :)

    Hi There,

    We are holding our own.  :)  Life has been crazy ... we have one kid in baseball and one in driver's ed.  That takes up so much time.  Somehow I have to get my son out driving for 40 hours before he can take his test.  And just about when he is finished, my youngest son (the one playing baseball) will be old enough to start driving, too.  Aaaah!  LOL.  Work is crazy so it just adds to the craziness.  And all of this is on top of my husband starting his cancer treatments next week.   He is doing well for the most part, although I think reality is starting to hit him and he has been on a bit of a rollercoaster emotionally.  I think once we get into a routine he will feel better about the process emotionally.  He will be living with his daughter during the week because we are 70 miles from Boston and she lives much closer. 

    I have been thinking about you and your hubby as well.  How is the recovery coming with him?  Did he accept any of his job offers?

  • MMDowns
    MMDowns Member Posts: 318
    Options

    Thanks :)

    Hi There,

    We are holding our own.  :)  Life has been crazy ... we have one kid in baseball and one in driver's ed.  That takes up so much time.  Somehow I have to get my son out driving for 40 hours before he can take his test.  And just about when he is finished, my youngest son (the one playing baseball) will be old enough to start driving, too.  Aaaah!  LOL.  Work is crazy so it just adds to the craziness.  And all of this is on top of my husband starting his cancer treatments next week.   He is doing well for the most part, although I think reality is starting to hit him and he has been on a bit of a rollercoaster emotionally.  I think once we get into a routine he will feel better about the process emotionally.  He will be living with his daughter during the week because we are 70 miles from Boston and she lives much closer. 

    I have been thinking about you and your hubby as well.  How is the recovery coming with him?  Did he accept any of his job offers?

    Crazy can be good

    You are busy!  But, I hope you find it a lovely distraction.  I welcomed crazy at certain points of the treatment because it made my life feel normal.  I remember my hubby going throught the same emotional roller coaster right around the same time.  He knew he had cancer and he knew all the inof about the treatments it was just that it hadn't started and that awful fear of the unknown was setting in.  In an odd way your husband will feel "better" when it begins because one; he starts to get rid of the nasty C and two; he will then know what to really expect.   It's so nice that he has a place to stay during the week and with someone that I am sure he is comfortable with and will take amazing care of him.

     

      My husband is doing pretty good.  The first week of treatment was a lot like the first week of chemo and rads.  We did not know what to expect.  It was rough.  The thick saliva was awful, the coughing and gagging was at it's worst, and he was just over it all.  But by that weekend he was better and now we are in the second week of recovery and there are better changes.  His voice sounds almost normal, the coughing is less and less, and is sleeping better.  Just need to get him to really get fluids in by mouth and to keep swallowing!  He took the job where he had to actually teach a class and we are elated! We have been blessed in more ways than expected and we are grateful!

     

       Keeping you all in my thoughts.  I am here for whatever. Lots of hugs!

     

  • Andy13460
    Andy13460 Member Posts: 115
    Options

    Hi I start my first treatment on 9th of May so I will be a week behind you all the way, 35 rads and Cisplatin on day 1, 22 & 43

    In Ireland they keep you in over night for the Cisplatin and pump you full of fluids and Zofran then Cisplatin followed by more fluids. I have been told to drink as much fluid as possible afterwards I will keep you posted on the symptoms roll on June , good luck with the treatment.

  • Chicklette
    Chicklette Member Posts: 225
    Options
    Andy13460 said:

    Hi I start my first treatment on 9th of May so I will be a week behind you all the way, 35 rads and Cisplatin on day 1, 22 & 43

    In Ireland they keep you in over night for the Cisplatin and pump you full of fluids and Zofran then Cisplatin followed by more fluids. I have been told to drink as much fluid as possible afterwards I will keep you posted on the symptoms roll on June , good luck with the treatment.

    Same schedule

    my husband is star on the 8th and has 36 rads.  If all goes as scheduled, you two will finish on the same day.

  • Clon
    Clon Member Posts: 20
    Options
    Doing Better Today

    Well, today is better than the last two days. The day after chemo I was sick as a dog and vomited a few times.  I was alternating my drugs as prescribed but it just wasn't helping.  Yesterday I woke up throwing up, and spent most of the morning dry heaving because I had noting left in my stomach.  The worse part was I still had to do rads.  This caused me a lot of stress, laying with that mask on worrying if I was going to throw up in it.  I called my doctor and she had me come straight into the office.  She pumped me with fluids, steriods and phenergan to help the nausea.  She yelled at me for waiting so long, but I explained I thought this was normal with chemo.

    Today I was a litle queasy in the mroning but rds went well.  I went to see my Dr. again and she is adjusting my pre-treatment meds with stronger steroids, better anti-nausea medicine and gave me a differnet medicine to take during the week.  I got more fluids today laced with pepcid and I feel so much better.  The wife even made me pancakes for dinner.

    I am glad to see I am not the only one who had issues with the nausea, and the best advice I can give to the ones starting next week, stay on top of your care with your doctor.  You can expect some nausea, but be smarter than I was and don't let it get out of hand.

    MMDowns, I am glad that your husband is healing fairly quickly, it gives me a lot of hope.  I am glad he got the job, that is very exciting.  

  • mskitty137
    mskitty137 Member Posts: 73
    Options
    Clon, ask about Akynzeo or

    Clon, ask about Akynzeo or Emend. They are anti nausea meds administered prior to your chemo. My husband did still have some nausea but only actually vomited a couple of times and that was when the mucous was really bad/thick. Good luck on the next round. 

  • MMDowns
    MMDowns Member Posts: 318
    Options
    Clon said:

    Doing Better Today

    Well, today is better than the last two days. The day after chemo I was sick as a dog and vomited a few times.  I was alternating my drugs as prescribed but it just wasn't helping.  Yesterday I woke up throwing up, and spent most of the morning dry heaving because I had noting left in my stomach.  The worse part was I still had to do rads.  This caused me a lot of stress, laying with that mask on worrying if I was going to throw up in it.  I called my doctor and she had me come straight into the office.  She pumped me with fluids, steriods and phenergan to help the nausea.  She yelled at me for waiting so long, but I explained I thought this was normal with chemo.

    Today I was a litle queasy in the mroning but rds went well.  I went to see my Dr. again and she is adjusting my pre-treatment meds with stronger steroids, better anti-nausea medicine and gave me a differnet medicine to take during the week.  I got more fluids today laced with pepcid and I feel so much better.  The wife even made me pancakes for dinner.

    I am glad to see I am not the only one who had issues with the nausea, and the best advice I can give to the ones starting next week, stay on top of your care with your doctor.  You can expect some nausea, but be smarter than I was and don't let it get out of hand.

    MMDowns, I am glad that your husband is healing fairly quickly, it gives me a lot of hope.  I am glad he got the job, that is very exciting.  

    Hope

    Clon,

      I am so glad to hear that you are feeling better!  Nausea and throwing up are awful feelings, just awful.  I hope this was a one time deal and the next chemos are smoother for you.  I remember meeting our nurse practioner and she said" Cisplatin is a pukey drug."  What a spot on description!

    Thank you for the kind words regarding my husband.  He is doing pretty good, still a bit of a roller coaster but it's slowing down.   

      You are doing a fantatic job and you'll get through this!  You are doing it!  Hang in there.  Take it day to day.  Lots of prayers for you.

  • phrannie51
    phrannie51 Member Posts: 4,716
    edited May 2017 #20
    Options
    Cisplatin might have made

    me feel nauseous, except I had Emend for 3 days following each chemo sessions....tho I didn't feel my personal best, nausea was kept at a minimum.  I also had Ativan (lorazipam) in my nausea schedule to help.  I posted the nausea schedule my Ocologist gave me in my "about me" here in CSN...his words "do not deviate from this schedule!!!" :)

    7 AM.....Zofran

    8 AM.....Emend (for the 2nd and 3rd days after day 1 chemo)

    10 AM.....Compazine.

    1 PM....Ativan

    4 PM....Zofran

    7 PM.....Compazine.

    Bedtime....Ativan

    Begin this schedule at the when you get home after your chemo....Continue on the complete schedule for 3 or more full days.

    If you feel nauseous on the 4th morning, coninue on the schedule for as many days as needed until you don't feel any more nausea.  At other times between cycles these medications can be used on an "as needed" basis.

    Radiation can make a person nauseous...but not usually the first time....you can use these meds ANYTIME you start feeling nausea rear it's head.

    p

  • T3rri
    T3rri Member Posts: 23
    Options
    Varubi

    My husband had varubi (2pills) every two weeks during Cisplatin chemo, worked great. The zofran was there for backup but he never needed. It is expensive but many insurance co do cover or the chemo center often has samples. Definitely drink a lot of water, take miralax on a daily basis. Many of the pain meds cause constipation in addition to the Cisplatin needing to be flushed

    from your system. Good luck, you can do this. Take each day and look to your recovery - my husband felt it was like a marathon - never think you'll make it to the end and then there you are at the finish line.