Released From Onc Care

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marbleotis
marbleotis Member Posts: 720 Member
in Colorectal Cancer #1

Guys,

Happy to say I had my post 5year appointment with my Onc today.  CEA is 0.8 and all scans are clear.  So I went from stage 3b signet cell colon cancer to NED, oficially.

My Onc shook my hand, gave me a big hug and said I am officially "cured", it was weird but I said I am not 100% comfortable with that, but I like NED.  He said ok - then your are NED and I can release you from my care.

I am of course over the moon happy  It was a long 5 years with fear, uncertanty and the cancer roller coaster of emotions.  I tried to count all the sleepless nights one night I had a sleepless night.  I lost count....

He advised me to keep doing what I am doing with my diet (organic/mediterranian) and exercise.  I do good with it but I can do better.

I send good wishes to all.  When I was first Dx'ed and while going through all my surgeries and treatments I was not so sure how I would do, I had some very dark days.  My advise is to keep pushing.  I was told my "signet cell" variation was rare and aggressive - and here I am today.

Love and best wishes to all!

Comments

  • RetiredNellie
    RetiredNellie Member Posts: 14
    #2
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    Congratulations!  I wish for

    Congratulations!  I wish for you a future life of NED.  I don't think the fear and concern will ever totally leave us but keep doing what you are doing as it is working!

  • ron50
    ron50 Member Posts: 1,723 Member
    edited April 2017 #3
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    Congratulations

       It is a great milestone to reach. I wish you a cancer free future. Keep up with regular scopes and don't give it the slightest chance to start a new one, Hugs Ron.

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #4
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    Congratulations!

    May you be NED forever more. 

    I found another little chap to help my Happy Dancing Man express my joy. 

    So here you go, running around emoticon  image

    TRU

     

  • lizard44
    lizard44 Member Posts: 409 Member
    #5
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    Wonderful!

    Great news!  So very happy for you.  I hope you stay NED forever, too!

  • traci43
    traci43 Member Posts: 773 Member
    #6
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    Wonderful news!

    Congratulations on hitting the magic 5 year mark.  May you never have to visit the oncologist again.  Traci

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    #7
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    Oh, I am SO happy for you!!!

    Oh, I am SO happy for you!!! Congratulations!! Hugs!! I pray that you will stay this way forever! Thank you so much for posting such wonderful news! It gives us all hope and positive feelings and we need that so badly. I am beyond delighted for you.

    Jan 

  • PamRav
    PamRav Member Posts: 348 Member
    #8
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    Congrats

    what janjan says!!  Posts like this give us all great hope.

    heres to your continued great health.

  • PamRav
    PamRav Member Posts: 348 Member
    edited April 2017 #9
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    Congrats

    what janjan says!!  Posts like this give us all great hope.

    heres to your continued great health.

  • marbleotis
    marbleotis Member Posts: 720 Member
    #10
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    RetiredNellie said:

    Congratulations!  I wish for

    Congratulations!  I wish for you a future life of NED.  I don't think the fear and concern will ever totally leave us but keep doing what you are doing as it is working!

    Many thanks

    Many thanks

  • marbleotis
    marbleotis Member Posts: 720 Member
    #11
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    ron50 said:

    Congratulations

       It is a great milestone to reach. I wish you a cancer free future. Keep up with regular scopes and don't give it the slightest chance to start a new one, Hugs Ron.

    Many thanks

    I am schedule to have scope at 3 year mark.  I am very comfortable with continued monitoring. 

  • marbleotis
    marbleotis Member Posts: 720 Member
    #12
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    Trubrit said:

    Congratulations!

    May you be NED forever more. 

    I found another little chap to help my Happy Dancing Man express my joy. 

    So here you go, running around emoticon  image

    TRU

     

    Little Guy - hilarious

    Tru,

    Many many thanks!

     

  • marbleotis
    marbleotis Member Posts: 720 Member
    #13
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    traci43 said:

    Wonderful news!

    Congratulations on hitting the magic 5 year mark.  May you never have to visit the oncologist again.  Traci

    Thanks

    My Onc was is a wonderful guy, I will miss him but glad I am done.

  • marbleotis
    marbleotis Member Posts: 720 Member
    edited April 2017 #14
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    JanJan63 said:

    Oh, I am SO happy for you!!!

    Oh, I am SO happy for you!!! Congratulations!! Hugs!! I pray that you will stay this way forever! Thank you so much for posting such wonderful news! It gives us all hope and positive feelings and we need that so badly. I am beyond delighted for you.

    Jan 

    Many thanks

    I always loved reading other's good news and was elated that I could provide my own good news.

    I send good and positive thoughts to you.

  • marbleotis
    marbleotis Member Posts: 720 Member
    #15
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    PamRav said:

    Congrats

    what janjan says!!  Posts like this give us all great hope.

    heres to your continued great health.

    Many thanks

    Thanks Smile

  • danker
    danker Member Posts: 1,276 Member
    #16
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    NED

    I too have been NED that long.  Let us wish the same for all our fellow  survivors!!

  • beaumontdave
    beaumontdave Member Posts: 1,280 Member
    #17
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    I don't know how it can get

    I don't know how it can get much better than this kind of result. Congrats on beating the tough odds that come, especially, with signet cell. Very happy for you, and we have one more hopeful tale to tell others who come here for glimmers of hope............................................Dave

  • marbleotis
    marbleotis Member Posts: 720 Member
    #18
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    danker said:

    NED

    I too have been NED that long.  Let us wish the same for all our fellow  survivors!!

    I wish this for everyone

    I wish I had that power that I could make NED contagious.

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