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CNS Lymphoma

Anusha208
Posts: 1
Joined: Apr 2017

My father diagnosed  with CNS Lymphoma ... would like to know more on this 

po18guy
Posts: 996
Joined: Nov 2011

A fact sheet on central nervous system lymphoma From the Lymphoma Research Foundation.

It is genrally aggressive, requiring treatment sooner rather than later. It is also generally a form of Diffuse Large B Cell Lymphoma, one of two most common types of non-Hodgkin's lymphoma. Treatment is well established and outcomes are steadily improving.

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ShadyGuy
Posts: 400
Joined: Jan 2017

a member named Sten who has had CNS lymphoma but is now in total remission is quite knowledgeable.

Sten's picture
Sten
Posts: 162
Joined: Apr 2013

Hi Anusha208,

po18guy made a good summary.

The best treatment is autologous stem cell transplant preceded by a few rounds of chemo and antibodies and one round of high dose chemo. The prognosis is good and steadily improving. I was treated that way in 2012 at the age of 68 years. It was tough but after some months I recovered. I am now well and fit and the only remaining problem is a very slight neuropathy, numbness of my feet, which does not bother me at all.

If you have questions, you are welcome to put them to me via CSN email.

I wish your father recovery and good health!

Sten

Mlhauenstein
Posts: 1
Joined: Mar 2018

About a year and a half ago my father was diagnosed with CNS Lymphoma. We got news today that the chemo didn't work. What would you guys recommend? (Cell transplant, radiation) Any advice is well appricated. 

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Sten
Posts: 162
Joined: Apr 2013

Hi Mlhauenstein,

Autologous stem cell transplant is good. Radiation can be effective but increases the risk for dementia.

Good luck!

Sten

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