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Bowel problems

Soup52's picture
Soup52
Posts: 660
Joined: Jan 2016

Well after talking to my oncologist about my continuing constipation, I finally convinced him that I should see a gastroenterologist to be on the safe side and also for help to resolve some of my problem. So I saw one and he said we should do a colonoscopy. I had one last Friday, but it was incomplete. The doctor could only examine a small portion as the opening was two narrow and he was afraid that he could cause a major problem. I will have a virtual colonoscopy later this month. I know there are some of you who have had bowel problems and wondered if anyone had a similar problem and what was done if there is no evidence of cancer or if there is evidence.

Nellasing
Posts: 528
Joined: Oct 2016

haven't had that problem but wanted to just pop on and say I'm sorry to hear you are having trouble and that I'll be praying for you and will be waiting to hear how things go...  (((HUGS)))

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

So sorry to hear about this, Soup. I'm sure that others with more experience than me will jump in with some suggestions for you. Hang in there and stay hopeful! Kim 

survivingsu's picture
survivingsu
Posts: 105
Joined: Apr 2013

Hi Soup 52,

Radiation and chemo sure are hard on gastro!  I was treated for an aggressive uterine cancer.  For me, I think it took about 2 years to get back to "normal".  I had chemo and radiation simultaneously, so I don't know which affected my bowels.  I had colonoscopies (all normal) to rule out anything, and I recommend going to a cancer-specific place (for me it was Seattle Cancer Care Alliance), they deal very effectively with all kinds of conditions, including bowels that are challenging for colonoscopies.

Wishing you the very best,

Susan

pinky104
Posts: 377
Joined: Feb 2013

I'm having surgery tomorrow for masses on both sides of my ascending colon.  We don't know yet if it's a peritoneal mets from my UPSC or something else, like a GIST (gastrointestinal stromal tumor) that grows on the ouside of the colon.  I may have to have a chunk of colon taken out if the masses have adhered to it.  My colonoscopy showed those masses pressing into the colon.  Otherwise, it was normal inside. 

I've felt myself going downhill fast after the colonoscopy, losing weight, etc.  I felt fine before it even though I had a positive hemoccult and that's why I had the colonoscopy. 

derMaus's picture
derMaus
Posts: 200
Joined: Nov 2016

Pinky, best wishes in your surgery !! We'll be thinking of you and envisioning the best. Please do post when you're feeling up to it. Hugs, B

Soup52's picture
Soup52
Posts: 660
Joined: Jan 2016

Oh Pinky I'm so sorry. I'm praying that it won't be cancer! I'll be watching for your update when you are up to writing. My virtual colonoscopy wound be until April 24 And I would guess I won't hear too much for probably a week or so.

MAbound
Posts: 474
Joined: Jun 2016

I'm in the same boat. Never had an issue with diarrhea, even during radiation, like others have had. Radiologist said no colonoscopy till this fall at the earliest. It's not so bad as long as I stay really vigilant with my water drinking and don't delay if I feel the slightest urge and just take the time it takes, however long, for something to happen. It makes it really difficult to leave the house or travel anywhere. I'm trying to be patient with this, but wonder if this is just going to be my new norm along with the neuropathy. I can live with them, but it's not without difficulty. My primary suggested more fiber by taking Metamucil, but that just made things worse till I stopped taking it. I suspect the chemo drugs did a real number on the instestinal nerves that respond to bulking agents to move things along and its just going to take more time to let them recover if they ever will. My sympathies No Time, it's not fun. 

Pinky, I sure hope that everyone gets surprised and you won't need to to lose any of your colon to deal with the masses pressing on it. It's hopeful that everything was normal on the inside, but I guess one always has to be mentally prepared for the worse case scenarios. Best wishes and will be thinking of you.

Soup52's picture
Soup52
Posts: 660
Joined: Jan 2016

MAbound, while my oncologist kept saying Medamusial I had other advice from the gastroenterologist. He said I could try benifiber and also that I could use Miralax as often as I wanted. 

Soup52's picture
Soup52
Posts: 660
Joined: Jan 2016

Oops, I was cut off. I too never had diarea, always had constipation instead. Prayers that your problems resolve, too or we may be blessed with this new normal.

Soup52's picture
Soup52
Posts: 660
Joined: Jan 2016

I just got the results of my virtual colonoscop. Good news! No polyps and just some diverticulosis which I already knew I have had for several years. I did get some advice on foods and despite the fact that I thought I was drinking enough he said I should be drinking more than I have. I know that this appears to be my new normal, but nevertheless I'm glad that I had this done just to be sure. I put up a new picture with my current hair, but once again it's sideways?! I don't know why this is happening. I posted something in the problem area. Oh well. I'm happy anyway.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1298
Joined: Jun 2015

Yay! So happy to hear your wonderful news! Love the new Picture. :-)

Love and Hugs,

Cindi

derMaus's picture
derMaus
Posts: 200
Joined: Nov 2016

Love the current hair, and I'm glad we can really see your face now. Picture looks upright to me, thanks for posting!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Congratulations on the good results, Soup. Thanks for keeping us updates and love the new picture!

cindy0519
Posts: 166
Joined: Nov 2015

Soup - I had (and continue to have) gastro issues including periods trapped gas that rumbles around and isn't expelled,  extreme constipation, and occassional diarreha.  I had a colonoscopy done in Dec and had two very large pre-cancerous removed. I also had a CT done and no blockages of any type were found. I was also test for Cdiff due to the bouts of diarreha - it too was negative.  The gastro I saw said to start a probotic and insisted that Flora Stor is the only probotic that has been clincially proven to work when I told him I had taken one that was prescribed by my interventional medicine doctor during radiation and I would try to get it again.  I bought the Flora Stor and took a full bottle (30 days) - it did help to make many of my issues disappear or at least become much more tolerable.  I am taking the Flora Stor again now as I recently had surgery and of course a big dose of antibotics so many of my issues have returned.  I will say I do notice a difference when taking it.  Maybe it is worth trying????

 

cindy0519
Posts: 166
Joined: Nov 2015

Best wishes for an uneventful surgery and quick recovery Pinky!

Kaleena's picture
Kaleena
Posts: 1781
Joined: Nov 2009

Sorry to hear of your problems.   But I know what you are going through.  I have been having issues with my bowels also.  I call it achy bowels.  I have seen my gyne/onc and he says there's nothing concerning on his end.  I now have pancreatitis.   In the past two months, I have had a colonoscopy and an EUS.   I just recently (4 weeks ago) had my gallbladder out because of the pancreatitis.   I am STILL having issues.   I keep complaining of pain and achyness.  It is now feeling like menstral crampy pains.   I have tons of inflammation because of all my surgeries and endometriosis.   I don't feel well but I feel I keep getting the run around.  I finally will see my gyne/onc in June, well end of June and at that time will also have a CT scan.  I do have a soft tissue mass and I think because of all the scarring it is acting up as I am now getting some pain down my left leg.   Ugh!!!   I also had my ureter reimplanted due to the mass and a blockage from HDR brachytherapy. (left side also).

 

derMaus's picture
derMaus
Posts: 200
Joined: Nov 2016

Oh my! Pancreatitis is NO fun! I'm reminded of the Timex jingle from of our childhood: "takes a liking and keeps on ticking". Our group is, indeed, the Timex gang. Here's to hoping you feel better soon. B

ConnieSW's picture
ConnieSW
Posts: 1193
Joined: Jun 2012

that analogy 

sshhaarrii
Posts: 34
Joined: Oct 2016

I had those menstrual cramping pains too, after the change and before cancer. Turned out to be UTI and a kidney stone that was stuck.

Soup52's picture
Soup52
Posts: 660
Joined: Jan 2016

Oh Kaleena I'm so sorry about the pancreatis! I know it is very painful! I hope you 

Soup52's picture
Soup52
Posts: 660
Joined: Jan 2016

Get some answers in June! I know we have to be proactive. I love my oncologist, but I just couldn't take the answer of my new normal. We just never know and I don't think the doctors realize how debilitating some of our symptoms are! Here's hope you get relief!

Kaleena's picture
Kaleena
Posts: 1781
Joined: Nov 2009

Thank you everyone for your support.  This is sure a great group!   That's so true!  Takes a lickin and keeps on tickin!  I like that - the Timex group!

Its nice sometimes just to vent here because you all understand.   I hope everyone is enjoying their weekend.   Hugs!!!

 

Kathy

henhill's picture
henhill
Posts: 103
Joined: Aug 2016

I have also had gastro issues since radiation, but once last year and again this year, it has flared up beyond my endurance level.  I am getting a CAT scan next week and hope to God that we can see what is causing all of this pain.  My doc is something of a "cancer" specialist in her field, and I hope she;ll have better options than the gastro I had last year, who knew nothing about cancer treatments.  What a mess!  My sympathies to all who are suffering from this, it is very fatiguing and painful.

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