The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

On Sutent , lost all taste

Dave S
Dave S CSN Member Posts: 3

i am taking sunitinib (Sutent) and for the second time have lost all taste, sometimes a metal taste . I read on this forum that taking Lglutamine might help. I have been taking 5grams /day for 2 weeks to no avail. I'm not sure if the dosage is right or not. Anyone out there with this problem?

Comments

  • Qt34167
    Qt34167 CSN Member Posts: 41
    edited March 2017 #2
    taste

    Same experience with taste but after six months either I dont realize it or some of my taste has come back.  Been on it for two years.  I find taste the smallest side effect I have exerienced.