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JTgreybeard's picture
JTgreybeard
Posts: 22
Joined: Mar 2017

Good day.  I am a newbe to this forum.  I am scheduled for surgery Apr 11th.   Still trying to wrap my hands around this entire thing.    It is good to hear the stories from you all and to hear that things will get better.  Just wish it was tomorrow.  The waiting and the unknown is the worst part of all.  My emotions are all over the place.  Laughing one min and crying the next.   At times I know all is good and other times my brain tells me this is the last  (Whatever or time) you will do or see this thing.   I am a strong person and will get past this but it is not easy.  Thank you all for sharing on this forum and know that there are others like myself that draw strenth from your post.

 

BoondockSaint's picture
BoondockSaint
Posts: 242
Joined: Mar 2017

Yes JT.......you WILL get thru this. The waiting and what if's are the worst but try not to let it drag you down.

lean on us, lean on your family and friends. Do whatever you have to do to get to Apr 11 and the rest will be better every day.

hang in there brother.

Allochka's picture
Allochka
Posts: 946
Joined: Nov 2014

Hello and welcome!

would you please share a bit of info? How big is your tumor?

Yes, cancer diagnosis is scary, but it is not the end nowadays. Judging by the fact your surgery is month away, sounds like your situation is not critical, which is great!

please tell us more.

Alla

JTgreybeard's picture
JTgreybeard
Posts: 22
Joined: Mar 2017

I have a small tumor.  1-2cm and it is contained in the right kidney lower part.  Should not be to much of a problem.  I know this but still have all the emotional stuff going on and the fear of the unknown.  Will just be glad when it is out of me.  Surgery backlog here in SC is about 2 months.  Robot is very popular these days and lots of customers "Patients".  :)

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

suck? But as Alla says, there is a lot going on in your favor these days. Remember we are not dying from cancer. We are living with cancer.

JTgreybeard's picture
JTgreybeard
Posts: 22
Joined: Mar 2017

I like that.  Living with it instead of dying from it.

icemantoo's picture
icemantoo
Posts: 3317
Joined: Jan 2010

JT,

 

May you have an unevetful surgery and boring recovery. I would say painless, but I would be laughed off this forum.

 

 

Icemantoo

Bay Area Guy's picture
Bay Area Guy
Posts: 495
Joined: Jun 2016

Hi JT.  You're in almost exactly the situation I was in.  I had a 1.5cm lesion on the right kideny, but it was a little higher than yours.  I had a bit of an advantage over you because my sister is a nurse; her husband is a nurse; their daughter is a nurse; one of my wife's nieces is engaged to a nurse; and one of her brothers is dating a nurse.  So I had a ton of experience to call on when I first saw the words "suspicious for renal cell carcinoma" on a CT scan report.  Aso unlike you, I was referred to a urologic oncologist who recommended that we monitor the lesion because he was not convinced it was, in fact, malignant.  That was in December, 2013.  After six month scans for 2-1/2 years, an ultrasound finally determined in April, 2016 that the little bugger had grown to 1.8cm.  So, he recommended surgery, which I had on June 22nd of last year.  It was a robotic assisted laparoscopic partial nephrectomy and it took place at Stanford Hospital here in the SF Bay Area.  I checked into the hospital at about noon on the 22nd.  The operation started at about 3PM.  I was in my room at about 7PM, with the melodious voice of my niece (the one engaged to a nurse) kind of yelling into my ear, "WAKE UP".  I did, the nurse walked me around the room for a couple of minutes and then I told everyone to get the heck out cuz I was tired.  LOL.  I drank a lot of water during the night as my mouth was pretty dry, and I was absolutely starving in the morning.  They told me I would likely be released if I could control my pain and could pee.  Well, since I had no pain other than a little pulling, that part was easy.  (Just be aware that my experience with no pain is ratehr unusual from what I've read from my comrades here; but I have always had a really high threshhold for pain owing to those stomach issues.)  And after they removed the catheter, I peed in about two hours.  So, at 1:30PM, 25-1/2 hours after I checked in, they tossed me out.

The pathology report said it was chromophobe RCC, a rare (5%) strain of the disease, that seems to grow very, very slowly, rarely, if ever spreads and rarely, if ever, recurs.  So, I was set up for scans every six months, as well as a chest x-ray.  The one I had done in January of this year was completely clean and the doc said if the next one in July was the same, we'd move to one year scans, which is fine with me.  My stomach issues revolve around colon twisting, so anything that gives me a look-see down that way is fine by me.

As for the emotional part of it, I'm not going to pretend to tell you that I was a rock.  Heck, I went through all the same emotions as you did, adding in a healthy dose of self-pity because I didn't have any risk factors for this damn thing.  My suggestion is that taking nice, relaxing walks or working out is a good way to get rid of the feelings, at least for a little while each day.  It also has the added benefit of getting you in great shape for the surgery and that'll help you recover that much faster.

You and I are really lucky that our cancers were discovered at such a small size.  A few years ago, I'm told the scanning technology wasn't good enough to discover things this small.  We get a chance to have these things taken care of when it's relatively easier to take care of it completely and with a minimal amount of pain and discomfort.

belowpar
Posts: 14
Joined: Mar 2017

JT, I joined this group on March 11, 2017 when I discovered it as I was recovering from my radical nephrectomy Performed on February 20, 2017. 

Waiting and the unknown are definitely two formidable opponents i battled as well. Fortunately I did not have to wait very long and when the date did arrive, it was a relief to get it behind me. I had laparoscopic surgery even though my tumor was nearly 8cm. The surgeon did have to make a larger than normal cut to be able to remove it along with my kidney but all went well.

I will be praying for you, your family and your surgical team.

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

belowpar, welcome to the group! I'm guessing you're a [good] golfer.

 

Jan4you's picture
Jan4you
Posts: 1327
Joined: Oct 2013

Hey, just wanted to stop and say, welcome!

Glad you joined our site here! Like your name! HA! Hope your recovery is going well, is it?

Warmly, Jan

 

JTgreybeard's picture
JTgreybeard
Posts: 22
Joined: Mar 2017

Prayers lifted for you.  How is your recovery going?

Steve.Adam's picture
Steve.Adam
Posts: 463
Joined: Oct 2016

It is a lot easier to be relaxed about this stuff after it has been dealt with and you know what it is and know it is gone.

It is good to meet people who understand our feelings and it is also good to get some reassurance about the likely outcome, which should be good in your case.

But the waiting is bad... It is so good to get it all behind you.

Steve.

 

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

JT, welcome to the group!

daisybud's picture
daisybud
Posts: 506
Joined: Jan 2016

Welcome JT

;)  Kim

Jan4you's picture
Jan4you
Posts: 1327
Joined: Oct 2013

Hey JT glad you are here! I was lucky. I stopped here before even seeing my Urologist/surgeon. I asked tons of questions, received a lot of support and was so prepared by the time I even saw the Urologist. 3 years NED (no evidence of disease).

Its ok to feel whatever you are feeling. Our emotions aren't right nor wrong, they are OUR to feel.

I have had 4 abdominal surgeries, and this one was the easiest. Saw the operation online ahead of time, but that's me. I like to be THAT prepared!

Used ice over incisions, dry ice packs slipped inside my lumbar wrap to hold and support those healing muscles.

Hang in there. We'll be here for you all the way!

Warmly, Jan

Iggyrip's picture
Iggyrip
Posts: 44
Joined: Sep 2016

Hi JT. Welcome. Waiting for surgery and not knowing about the future is scary, but things will work out. When I was first informed of my cancer, I freaked out, but somehow got it together. After that, I just wanted it out. Glad you found this group. Prayers out for you.

 

Take care,

 

Iggyrip

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

Welcome, JT --

As others have said, sorry you have to be a member of this club, but glad you've found us -- great supportive bunch here.

Small is good when it comes to kidney masses.  Waiting sort of stinks. Hope you can keep yourself distracted / occupied in the meantime.  But your surgery date in April will be here before you know it (Not to mention, then you'll be post-surgery before you know it, because they give you anesthesia so you get to snooze while they do all the work). 

Deanie0916
Posts: 385
Joined: Nov 2016

I pray you have peace and calm while waiting for the surgery. Small tumor size is good as many have said already! God bless you.

JTgreybeard's picture
JTgreybeard
Posts: 22
Joined: Mar 2017

Thank you all for your kind words.   You are all making a differance. 

I have booked a Cruise with Carnival on the Magic traveling in October.  This one sales over Halloween so it will be a hoot.  That is going to be my 6 month celebration.   This also gives me something to look forward to that is positive and gives me a push to rehab quickly so I can enjoy snorkeling.  Would love to see some of you if you all want to book the same cruise.  We can all celebrate life together.

 

APny's picture
APny
Posts: 1998
Joined: Mar 2014

Hi JT, so sorry you have to be here but it's a very supportive and knowledeable board with great people. They got me through with my sanity intact. I have to say the waiting and anticipation anxiety are about the worst part. Not that the surgery and recovery is fun or a piece of cake but honestly, my imagination prior made it 100 times worse then it turned out to be. My surgeon advised me to up my exercising before the surgery so I used the treadmill twice a day for 40 minutes. It really improved my lung capacity and I do believe it aided in my recovery as well. Also, they gave me a breathing apparatus that I used several times a day before surgery. If you didn't get one, ask for it. All the best to you! Small tumor is great and your chances of being rid of permanently are excellent.

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

The wait can be some of the worst days to deal with.  Luckily, I didn't have to wait quite that long.  It's a lot to digest but you will get thru it.  The recovery will be the next hurdle.  Personally, I didn't have a lot of pain but the weakness was really something.  Never felt that weak in my life, but that too passed, I'm happy to say.  The good news is your beast growing within is pretty small.

Best wishes, I'll be praying for you,

Donna~

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