The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

1 year post thyroidectomy for papillary cancer. sudden high TSH: 84. what could be the cause?

jahess
jahess CSN Member Posts: 1
edited March 2017 in Thyroid Cancer #1

My 18 year old daughter had complete thyroidectomy after papillary Thyroid cancer.  Her levels have been normal up until Nov. 2016.  All of a sudden she is feeling terrible - cold, muscle pain, major fatigue, brain fog, depression.  Brought in for blood tests.  TSH now 84!  What could be the cause?  Has not missed doses of medication.

Comments

  • alapah
    alapah CSN Member Posts: 287 Member
    edited March 2017 #2
    was there...

    was there a change in brands of levothyroxine? for example, Synthroid and then a generic? was her prescription filled at the same place? Levothyroxne does have an expiration date. Maybe double check that the dosage is correct (I'm guessing you already did that but...)

    How long has she been on levothyroxine? Does she take calcium or any drugs containing calcium (ie antacids)? Calcium interferes with absorption of levo and should be taken at least four hours apart from levo. It should also be taken on an empty stomach - at least two hours after eating or one hour before eating.

    Did her doctor have any ideas about what might be going on?