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Consequences of long term drug therapy

Dutch1's picture
Dutch1
Posts: 152
Joined: Mar 2014

I've been fortunate enough to have enjoyed success with treatment of my stage 4 cancer.  I am so thankful for that.  Of course, who knows what the next scan will bring.  I know that, too.

Drug therapy is a big part of that success.  For 3.5 of the last 4 years I've been on either Everolimus, Sutent or Votrient.  Currently, I've been on Votrient for 15 months.  I am looking for observations from the group as to what can happen with long term use.  Do side effects intensify?  Do new issues/risks come up as to the drug's effect on normal functions of the body?  We are advised of potential problems with our drugs when we start treatment.  I am just wondering if there are additional concerns that extended use brings to us.

My motivation to start a thread on this is that I had been getting along fairly well with Votrient.  However, side effects seem to be intensifying and a couple of new issues are popping up.  I'm wondering about what might be going on.

What I've picked up so far is that many of these drugs are so new, that long-term effects aren't al that well known.

Any thoughts?

 

Dutch

 

 

rhominator's picture
rhominator
Posts: 233
Joined: Nov 2015

I was on Votrient for ~36 months.

Fatigue, diminished strength, leg cramps and 'feeling cold' increased over time.

These all reduced remarkably soon after stopping Votirent.

Qt34167's picture
Qt34167
Posts: 41
Joined: Nov 2015

I had a month of IL2 which did not work.  I have been on Sutent for 2 years now and my side effects are a little different every time.

Sometime soles of feet hurt other times not.  Fatigue is big one but I try to push thru it.  Always feel better when riding my motorcycle.

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

like you I'm amazed at what my body has tolerated so far. Including so much radiation. I'll be happy to deal with the long term effects in 20 years. When my se's get untolerable my drug isn't working anymore or I get toxic and very sick. I think it is incredible what our bodies can tolerate and recover from. Considering how people fear overexposure from radiation, I don't know of anyone developing radiation sickness. No one else has either. Exceptions might be youngsters treated with radiation at a young age and then living into middle age. (which they never would have seen without the rad.)

Dutch1's picture
Dutch1
Posts: 152
Joined: Mar 2014

Thanks for the feedback.  I'm trying to be alert as to the changes in my body that I should just write off to the effects of my drugs and which changes are perhaps important enough to pursue with the docs. 

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