Is there anyone who has had nasal cancer?

I can't thank you enough for your reply! I am so glad you have survived this monster! It is uplifting to see the survivors on here! I have lost family and friends to various types of cancer and it is very scary! Hearing from you survivors gives so many people hope:) My question to you is did you have a sore in your nose that wouldn't heal? And were you able to be treated without surgery? Just rads and chemo? If I do get the "C" diagnosis I am praying I won't have to have surgery:p Bless you for replying! Truly appreciated!

Thank you for your reply! 2 more weeks until the scoping! And yes I love mtns and nature! I am at my retreat/ retirement home now! It is in the Western Mtns of Maine! It was just built and I come here as often as I can for reprieve, peace and quiet:) It is the beginning of a life long dream to have this home in the mtns that I love and just pray all goes well and I get to live out that dream! I am truly encouraged and enlightened by the posts on this site! I am grateful for all of your responses! I guess all the searching in the world isn't going to help me until I know what I'm dealing with but just want to be armed with all the knowledge I can get! Again thank you so much! 

letumwork said:

Mtngirl

I was diagnosed with NPC in 2013 and went through the same treatment as many here have done. 3 big doses of Cisplatin concurrant with radiation and then 3 smaller doses of Cisplatin with 5FU. Brutal but effective. I've been Cancer free since then with the typical Neuropathy and hearing loss.  Since the treatment I get a small amount of bleeding from one nostril or the other at various times and ofcourse worry about it but each time my ENT prescribed Mupricin ointment and it clears up. He says the nostrils are prone to pesky staff infections which will cause a small amount of bleeding. Maybe that's what you have going on. I never had any throat issues leading up to the diagnosis. My only warning signs were a nasal twang to my voice and a swollen lymph node behind my ear. As others have said, "it's not Cancer until it's diagnosed as such". Even in a worst case scenario, these cancers are very curable so try not to worry. I hope your upcoming appointment goes well and can provide you with some relief. Sometimes it's the not knowing that worries us the most. Remember the famous qoute-"You can't control events, only how you react to them"

I never thought of staph! Just not to familar with nasal issues except polyps and such. It is so true that not every thing is in our control! I am relieved to hear that these cancers can be cured! I am so glad you're cancer free! Thank you so much for your response! It really means alot to me! 

AndrewP16nose said:

initial symptoms

I think the initial symptoms of our cancers would all be so different. For me I got an occasional tiny nose from my right nostril. Looking back this went on for a couple of year then my front upper R tooth felt a little bit numb. No pain in my nose or head. The cancer was growing into my jaw bone so to get it out they took out my 5 front teeth, upper jaw, central hard palate and all the inside of my nose. However they've rebuilt my face and I can eat and talk fine. 

Unfortunately there has been no improvement in any of my symptoms. Left nasal sore is not healing even with antibiotic ointment. Moderate to severe headaches. Intermittent bleeding from left nostril. Sore throat comes and goes. Hoarseness. Feels like "junk" in my throat all the time. Very tired, but nor sure if it's my busy lifestyle:p I have been monitoring my sleep with my new Fitbit and it shows I am restless, sometimes up to 15 times per night as well as waking up 2-3 times. It also shows it's taking me upwards of an 1 1/2 hrs to get too sleep. So not sure if the nasal thing is interferring with breathing and causing me to wake up throughout the night? 10 more days until I see ENT and I am plan on insisting, at the least, a CT scan with contrast. Hopefully other tests will be performed to come too an accurate diagnosis! I agree with you that there are so many with Head and Neck cancers that have had different symptoms. I have been searching high and low on the internet and find this to be true. I so appreciate your responses and from others as well. Hopefully soon will find out what exactly I am facing. God bless you! I forgot to mention that my lips, especially upper lips have felt different for a few months or so now. Almost numb:( 

macmanrick said:

Hi - I am sorry you are going

Hi - I am sorry you are going through this.  I am 9 weeks out from two surgeries for SCC nasal cavity cancer.  I know what you are going through and will be happy to answer any of your questions.  My symptons started with a sore nose over the summer.  the tumor grew in my nasal cavity, had nose bleeds, headaches and seemed like a constant sinus infestion.   Be brave, follow through, ask questions and you will be OK.  You will have supoort here.

I appreciate your response so much! 4 more days to ENT visit! I have headaches for so long now, I can't remember when they started:p Ranging from moderate to severe! Of all the searching I have done for someone with similar symptoms you're one of the few that I have found! Many had symptoms starting with an enlarged Lymph node. Mine are sore but don't think they're enlarged. I hope the last ENT I saw 2 yrs ago didn't miss sometthing or give me a misdiagnosis! Too late to worry about that at this point however! This is a different ENT I will be seeing. The nasal lesion hasn't subsided. I can't see it it but can feel it and it's painful. My PCP who looked at it mentioned erosion and then said he was referring me to ENT. I have been trying to arm myself with all the info I can needless to say! Everyone has been great on this site and I feel kind of silly posting as I don't have a diagnosis yet but can't help but be scared and worried. I keep busy during the day with my job and in general but the scary thoughts creep in despite trying to force them out:p I will defintely check in after my appt Monday! God bless!