CRINET- Cribriform Neuroepithelial Tumor Anyone else??

Hello, 

I was diagnosed with CRINET cancer in the pineal gland about 3 years ago. I've had surgery and radiation and currently in remission. It's extremely rare, my pathology says I'm likely the first adult diagnosed with it, records show only about 10 children have had it. Thought I would try on the off chance someone else has had it. It isn't very fun having cancer, even more when you know nothing about your cancer as you're the first.

I also now have a breast mass and lung nodules that we are investigating over the next two months to see if it's metastasis from the brain (very rare occurrence but can happen) or a new cancer all together.

Thanks for reading!